Being Sickled

Chronic illness journey | The goal is to spread Sickle Cell awareness and have fun while at it✨ | Creator: @joy_fro

[Being Sickled @beingsickled]

We talk so much about pain when discussing sickle cell that some of the other complications can easily get overlooked.

Eye health is one of them.

I had my eyes checked, and here's your reminder to add yours to the list too👁️
#sicklecell #sicklecellretinopathy #eyetest

[Being Sickled @beingsickled]

We talk a lot about pain in sickle cell, but it can affect much more—including the eyes. 👁️🩸

Sickle cell retinopathy may develop before obvious vision problems appear, which is why regular eye checks matter.

Warriors, when last did you get your eyes checked?

[Being Sickled @beingsickled]

And somehow, in between all of that, we still had a childhood. ❤️ We played, laughed, had birthday parties, watched cartoons, ate our favourite snacks and sometimes did exactly what we were warned not to do 😂 #SickleCellAwarenessMonth #SickleCellWarrior #2000s

[Being Sickled @beingsickled]

For many of us, sickle cell was woven into childhood: sickbay, missing school, watching others play in the rain, harmattan warnings, hospital stays… and siblings policing your every move

Thread🧵

#SickleCellAwarenessMonth #2000s

[Being Sickled @beingsickled]

Childhood memories with sickle cell #SickleCellAwarenessMonth #SickleCellWarrior #2000s

[Being Sickled @beingsickled]

#sicklecellawarenessmonth #beingsickled

[Being Sickled @beingsickled]

Okay, but what actually IS sickle cell?
We hear about sickle cell all the time, but not everyone understands what's actually happening inside the body.
Here's a simple breakdown without the medical textbook.
#SickleCellAwarenessMonth #beingsickled #sicklecell

[Being Sickled @beingsickled]

#sicklecellawarenessmonth #beingsickled

[Being Sickled @beingsickled]

Happy new month! ❤️

September is Sickle Cell Awareness Month. 🩸

This month, let’s learn, ask questions, challenge the myths and listen to people living with sickle cell.

Here’s to greater awareness, empathy & understanding. ❤️

#SickleCellAwarenessMonth #BeingSickled

[Being Sickled @beingsickled]

From blank shirts to personal stories. 👕✨ Every shirt at Paint Beyond Pain told a different story, but they all carried the same message: we are more than sickle cell.

#sicklecell #worldsicklecellday #PaintBeyondPain #sicklecellawareness

[Being Sickled @beingsickled]

Just look at these beautiful sickle cell warriors from Paint Beyond Pain. 😍❤️

My heart is so full.

Thank you to @tolanijulius and team @tofamz_ for capturing these memories, and thank you to @ceracerni_arthub for having us. #PaintBeyondPain #Worldsicklecellday #beingsickled

[Being Sickled @beingsickled]

Paint Beyond Pain was a success.
Thanks to everyone who showed up and made the day special.
It was beautiful to connect, create, share stories and celebrate World Sickle Cell Day together.

Thank you to @ceracerni_arthub for hosting us #worldsicklecellday #paintbeyondpain

[Being Sickled @beingsickled]

Happy World Sickle Cell Day. ❤️🌍

We celebrate the strength, resilience, creativity, and achievements of individuals living with sickle cell disorder around the world.

Today's agenda: 🎨 Paint Beyond Pain

#WorldSickleCellDay #BeingSickled #PaintBeyondPain #SickleCellAwareness

[Being Sickled @beingsickled]

Registration for Paint Beyond Pain is now closed ❤️

Thank you to everyone who registered, reposted, volunteered, partnered with us, and supported this event so far. We are truly grateful.

We look forward to celebrating World Sickle Cell Day on June 19. 🎨❤️

God bless you all🙏

[Being Sickled @beingsickled]

As we mark World Sickle Cell Day this June,

Join us for an evening of Sip & Paint, refreshments, and community connection with others living with sickle cell.

🎟 FREE ENTRY, Registration required

🔗 Registration LINK IN BIO: https://t.co/S4id8ULnWK

[Being Sickled @beingsickled]

"Why does she always get exempted?"
For many people living with sickle cell, accommodations can be misunderstood as favoritism.

Accommodations are not special treatment.
They are protection.
#sicklecell #sicklecellawareness #animation #chronicillnessawareness #chronicillneas

[Being Sickled @beingsickled]

The reality of growing up with sickle cell
😭💔 #storytelling #animation #sicklecell #sicklecellawareness

[Being Sickled @beingsickled]

Some people stop seeing love the moment they hear "sickle cell."

#sicklecellanimation #sicklecell #sicklecellawareness #genotypecompatibility #storytelling