Pleased to share our third co-produced paper with young people out today
Important context and need for this and more research on - young people's online help seeking for emotional abuse and neglect
Accessible summaries coming soon -🤞with young people
https://t.co/3uSL0e8uaU
Please do join us for this event - 8 project teams will be sharing their experiences of co-production and its evaluation
#coproduction
Appreciate many with lived experience are still using this or transitioning.
https://t.co/wua6UKqM89
📢 Call out to anyone in England aged 25 and under 📢
💙 Biggest ever NHS conversation with children & young people is happening this month!
🔗 Have your say on the NHS https://t.co/TMdDZaUpZh
ℹ️ For workers/groups - resource hub https://t.co/r9etAfiIUX
Please share!
Please do join us for this event - 8 project teams will be sharing their experiences of co-production and its evaluation
#coproduction
Appreciate many with lived experience are still using this or transitioning.
https://t.co/wua6UKqM89
📢 COMING SOON: #16Days of activism against gender-based violence starts on 25 November.
There is #NoExcuse for gender-based violence. Not now. Not ever.
🤝 Let's UNITE to end violence against women.
Learn more about this year's campaign: https://t.co/7lEwwXdnca
Shifting over to Bluesky (https://t.co/AulgHN1w5H) and LinkedIn
Lovely people come and join us!
Not figured it all out but hope will be a good place to share stuff
Only checking/posting here now and again
Slightly different (though familiar) content, context and focus to the usual these days (though that’s also quite diverse!).
✨Get in touch if you’d like to explore how to collaborate with myself and/or other EUPATI Fellows to put more of this into action!
🎉 Fellow of the European Patients’ Academy!
Final 4-day in-person training - EUPATI Patient Expert Training Programme - met fab folks committed to representing and/or involving patients with range of illnesses/diseases in medicines research & development.
https://t.co/93XCK87w5s
learning & how patients can be meaningfully involved to create change across medicine R&D. Delved into…
✨Pharmacovigilance
✨Risk management planning
✨Patient labelling and information
✨Ethics
✨Health technology assessment - excited to see ‘co-production’ get a mention 💕
‘Fighting every step is so hard'
Katie, 17, is autistic and has barely been to school since she was 13.
She joined @BBCNuala to discuss her experience as a child navigating England’s Special Educational Needs and Disabilities (SEND) system, and how it has impacted her.
Come, hear about my PhD tomorrow & meet a Young Interview Assistant #PPI 🙌🏻 (Wed) 15.35 LT003 CYP #RCNResearch24 Presenting how our methods were designed to champion the voices of children & young people in eye and vision research #EBCD@Moorfields@MoorfieldsBRC @KingsNursing
Help: exp of 18 yo in adult ED service going to uni/transfer care first term? On @FREEDfromED w MANTRA, awful CAMHS transfer, delay start, s depression, ADs, change therapist now improving, 10 sessions in, weight stabilising, start resocialise, thinking start to shift. Options?
@jamesldowns - any ideas who can help? National or local issue?
After session today said feels like an inconvenience 😢. Touch and go even going Uni. Asked her to register with GP & start process - gap care poss - where is thinking & transfer of care? How many YP go through this?