Laura Beretsky

AUTHOR/ACTIVIST/EPILEPSY AWARENESS ADVOCATE
Writing about/fighting for disability rights, patient self-advocacy, and the challenges of living with epilepsy.

[Laura Beretsky @beretsky]

Increase @epilepsyawareness Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal: Inappropriate response to 26-year-old Rhyker Earl’s tonic clonic seizure leads to his death two days later: Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal - Laura Beretsky

[Laura Beretsky @beretsky]

Technological advances are increasing surgical options for children with refractory epilepsy in some parts of the world, but access is still ten years behind in developing countries like India. More on my blog: https://t.co/XO9Oqt5D4p

[Laura Beretsky @beretsky]

Viktorija Senkute, won the 1st ever Bronze medal for Lithuania, making her a local hero. Along with Beth Dobbin and Imogene Clark, she’s an #Epilepsy Ambassador, using her status to elevate #epilepsy awareness. Link: https://t.co/z2l9QGQ9Ng

[Laura Beretsky @beretsky]

Whether or not to drive if you have epilepsy is a personal decision to be made with input from one’s neurologist. Remember: disregarding the neuro’s advice can be tragic and fatal. More on my blog: https://t.co/98KegYj5fU

[Laura Beretsky @beretsky]

This week, Dr. Rasian’s neurosurgery team received FDA approval for a clinical trial to test new pre-surgery brain-mapping technology that could increase brain surgeries’ success and safety. More on my blog: https://t.co/4RotzSK0Px

[Laura Beretsky @beretsky]

@JocelynPippen https://t.co/LwlEdlEebv https://t.co/aXPoEZtetS https://t.co/IUN2yL1uNl CURE Epilepsy, https://t.co/OYYC4rAIsT Also, many FB discussion pages including Adults with Epilepsy, Defeating Epilepsy, Epilepsy Seizures/Let's Discuss It, Now What Epilepsy Support Grp

[Laura Beretsky @beretsky]

A study by Epilepsy Climate Change’s co-founder, Dr. Sisodiya evaluating climate change’s impact on neurological disorders found clear evidence of climate change’s impact on brain conditions, including #epilepsy. https://t.co/qRRknuVULn

[Laura Beretsky @beretsky]

@BrainAblaze No, because one is still medication-reliant. That's why funding epilepsy research is so critical, until they find a genuine cure. https://t.co/FunAqs5nWJ

[Laura Beretsky @beretsky]

Harvard-based neuroscience team research efforts led to the first ever digital brain map, which will advance cures for neurological conditions like #epilepsy. These kaleidoscopic brain images are from the team's gallery. Gallery link is in my latest blog: https://t.co/UDNAwn7hwW

[Laura Beretsky @beretsky]

Happy Mother's Day. Paul Karrer’s poignant commentary (https://t.co/khaxAZaPUn) inspired this blog about the challenges facing parents with #epilepsy, and the children they care for. https://t.co/rW2ImZtLqz

[Laura Beretsky @beretsky]

@BrainAblaze @DCClifford I had a kiwi-sized portion of my brain resected--TOTALLY scary, led to a subdural hematoma, a 2nd brain surgery and an end to my seizures. Glitchy, but worth the trip. Such a wild ride I had to write a book about it, hoping to raise epilepsy awareness: https://t.co/fTeAaCrp9G

[Laura Beretsky @beretsky]

@TalkAboutItorg Medication compliance is sooo important! Here's my blog on the topic, including my best tips (I almost never skip): https://t.co/PqRlVYCGYs

[Laura Beretsky @beretsky]

While new funding is being allocated for critical epilepsy research and advances, in Uganda people with epilepsy can’t even access medication. More info here: https://t.co/4mnYxYtwd3

[Laura Beretsky @beretsky]

I am delighted to share that Citizens United to Research Epilepsy featured an interview with me on their monthly podcast, Seizing Life. CURE's mission is finding a cure for Epilepsy, a condition that’s been around for millennia but still has no cure: https://t.co/wAXDOea1xc

[Laura Beretsky @beretsky]

Florida IS purple: In time for #PurpleDay Gov. DeSantis updated the state’s budget stabilizing epilepsy services, a boon for #epilepsyawareness, as it enables org's like #epilepsyallianceflorida to support the 360,000 Floridians with epilepsy. More here: https://t.co/acj2Ha0LZa

[Laura Beretsky @beretsky]

Honor #IntEpilepsyDay and #Epilepsy awareness by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. https://t.co/GzEFaGGRW2

[Laura Beretsky @beretsky]

@TalkAboutItorg If you're considering surgery or devices, you probably want to get care at an Epilepsy Center--there are 260 in US. Check #NAEC for list: All Epilepsy Center Locations - National Association of Epilepsy Centers (https://t.co/N02JNrsIsw)

[Laura Beretsky @beretsky]

@TalkAboutItorg If you have refractory seizures, be sure your neurologist is also an epileptologist, ie neuro who specializes in epilepsy. There's a list of them here by state: Find Top Epileptologists by State. (https://t.co/MevOqtCnFm)

[Laura Beretsky @beretsky]

Honor @IntEpilepsyDay by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. https://t.co/GzEFaGGRW2

[Laura Beretsky @beretsky]

@LAnanaPODEROSA @BrainAblaze Best of luck with the testing. That part can be grueling--may even require that you travel--but it's important.