A pALS Journey

ALS Warrior & LIFE student as a father, a son, a brother and a husband to my beloved caregiver !

[A pALS Journey @berttyih_als]

At 3.13 am (local time), i recalled greeting the birth of my princess 21 years ago. I am so happy that I got to celebrate her life and adulthood while i am still around. In the words of Brian Wallach famous saying "Not today ALS, not today.

Happy Birthday girl
#endALS #Hope4ALS

[Brian Wallach @bsw5020]

This is my arm minutes after we welcomed our first daughter into the world in 2015. Nearly 7 years later the ink has faded but my love has only grown.

Not today ALS. Not today.

[A pALS Journey @berttyih_als]

Accept my invite & Get freebies!
https://t.co/3cXC4KPB26

[A pALS Journey @berttyih_als]

Yes we can make a change #Hope4ALS

[ALS/MND Alliance @ALSMNDAlliance]

We would like to extend a great big THANK YOU to all the people living with ALS/MND and their caregivers who give their time and experiences to the fight against ALS/MND. 🙏 ❄️ https://t.co/ppQbC8qcwp #ALSMNDWithoutBorders #ALSIceBucketChallenge #MNDIceBucketChallenge

[A pALS Journey @berttyih_als]

Do you feel helpless and alone when you have ALS, worrying doesn't help. Live a little! Credit to Goosebumpcinema for sharing this snippet

[A pALS Journey @berttyih_als]

One of the reason that I am unable to enjoy my motorized wheelchair when I have to air travel. Sigh, when will baggage handlers wake up that those are our only form of mobility? Please have mercy on our only form of movements. Let’s start to create awareness and educate #ALS

[Becca Peter @DefectiveBecca]

Wheelchair users have been trying for ages to raise awareness about their wheelchairs being broken so often when they fly, and the devastating impact this has on them.

@AmericanAir baggage handlers decided to give a demonstration of how much they enjoy breaking them 😡

[A pALS Journey @berttyih_als]

The dreadful 2 lines
The kind of positive that people hates !

[A pALS Journey @berttyih_als]

Covid for the 2nd time ! Back to drinking coconut water, Vitamin C, K2 D3, zinc and magnesium ! REPEAT. I pray that none of the pALS and their caregivers will not be a victim to this unseen monster !

#als #overcomingchallenges #MND

[A pALS Journey @berttyih_als]

@ChanYeow1 Congrats Dr Chan Yeow !! Wishing him every success ! God bless

[A pALS Journey @berttyih_als]

"I love those who can smile in trouble, who can gather strength from distress, and grow brave by reflection. 'Tis the business of little minds to shrink, but they whose heart is firm, and whose conscience approves their conduct, will pursue their principles unto death.
-LeoDVinci

[Jodi Allen @JodiAllenSLT]

“The scene quite literally sets the stage for the rest of the person’s life”

A powerful session from @ALSMNDAlliance @MelindaSKav & colleagues - supporting clinicians to deliver news of #MND #ALS diagnosis. A journey #patients, #caregivers & healthcare teams travel together.

[A pALS Journey @berttyih_als]

Sometimes I do feel tired as it seems that I am the only person making the effort to keep in touch ! I always believed in the notion that friendship are mutual ! No one is too busy to call ! It’s a matter of priority #friendship

[A pALS Journey @berttyih_als]

As a pALS, I have lost some friends when I stopped being the first to text them ! Is this statement true to some of us who are in this position ? We didn’t asked to be in this but we have to faced this ! #cruelALS #friendship #grateful #gratitude

[A pALS Journey @berttyih_als]

A very important event on the 7th September 2023

[ALS/MND Alliance @ALSMNDAlliance]

NEXT WEEK: Join us for our next webinar, “Global Fundamental Rights Survey Results,” on September 7. Learn more about the data, strengths and weaknesses globally, the topics that require further attention, and how these compare to our 2021 survey.
🔗 https://t.co/vyGQoug9qI

[A pALS Journey @berttyih_als]

Sharing hope @bfm.my

#ALS #LivingwithHope #LivethePresent #Gratitude

[A pALS Journey @berttyih_als]

Marcey is now a lonely figure as she sleeps in a different place. I no longer able to spent as much time with her since making my bed downstairs. I miss you, Marcey ! #marcey #gooddog #furryfriend #loyal

[A pALS Journey @berttyih_als]

This little ninja decided to make our house her home ! Loves high places to keep to her predatory skills. A bundle of joy as she terrorize the whole household ! #littleterror

[A pALS Journey @berttyih_als]

It’s easier said than done but struggling through a dry spell when everything is so gloomy and future is so bleak ! Not gonna let this pull me down ! There are other important things for me to do still ! #Livethepresent #Hope4ALS

[A pALS Journey @berttyih_als]

Spent some time chatting with a friend who is dying from late stage Liver cancer. Doctor has just given him until Oct or November 2022. We spoke and we both agreed that our life is in God’s hand not medical science ! #livingwithALS #Hope4ALS #NeverGiveUp #LiveLife

[A pALS Journey @berttyih_als]

Maintaining my independence is now available on YouTube. Check it out today !

[ALS/MND Alliance @ALSMNDAlliance]

Alliance Board Member Gudjon Sigurdsson and occupational therapist Sarah Solomon provide recommendations on how to maintain independence while living with ALS/MND in our latest webinar: Maintaining my Independence:

https://t.co/GpEhc2t6bs

#ALSMNDWithoutBorders

[ALS/MND Alliance @ALSMNDAlliance]

Alliance Board Member Gudjon Sigurdsson and occupational therapist Sarah Solomon provide recommendations on how to maintain independence while living with ALS/MND in our latest webinar: Maintaining my Independence:

https://t.co/GpEhc2t6bs

#ALSMNDWithoutBorders

[A pALS Journey @berttyih_als]

Look out for this survey ! It’s happening next month !

[ALS/MND Alliance @ALSMNDAlliance]

The Alliance supports fundamental rights for people living with ALS/MND and their Caregivers.

Our 2023 survey will open to all PALS & CALS worldwide in the first week of May. Stay tuned to our social channels for updates on how you can get involved.