Australasian Blistering Diseases Foundation

The ABDF supports patients with autoimmune, metabolic & genetic blistering diseases through education, advocacy and research as a non-profit foundation.

[Australasian Blistering Diseases Foundation @blisteringdz]

The ABDF is happy to donate one of the new editions of Treatment for Skin Diseases to A/Prof Johannes Kern of @UniMelb who is co-chairing the session on #blisters tomorrow at #ACDASM2022 with @DedeeMurrell ABDF President, who Co-Edited this book, for his trainees to use.

[Australasian Blistering Diseases Foundation @blisteringdz]

Dermatologists! Come and find out about the new clinical trials going on in Australia for #pemphigus snd #pemphigoid at the @blisteringdz booth from Dr Ben Koszegi

[Australasian Blistering Diseases Foundation @blisteringdz]

Dr Ben Koszegi is manning our booth at the ⁦@DermatologyACD⁩ #ACDASM2022. We have a fundraiser raffle with the new edition of Lebwohl’s Treatment of Skin Diseases Textbook 6th edition as one of the prizes. Thanks to ⁦@PierreFabre⁩ for donating a prize.

[Australasian Blistering Diseases Foundation @blisteringdz]

Dr Ben Koszegi is manning our booth at the ⁦@DermatologyACD⁩ #ACDASM2022. We have a fundraiser raffle with the new edition of Lebwohl’s Treatment of Skin Diseases Textbook 6th edition as one of the prizes. Thanks to ⁦@PierreFabre⁩ for donating a prize.

[Australasian Blistering Diseases Foundation @blisteringdz]

We care about patients with blistering diseases. These may cause blindness. Research into rare diseases has led to novel treatments for common diseases & therefore supporting these will benefit us all.

[Rare Disease Day @rarediseaseday]

Did you know that there are more than 6,000 identified rare diseases?

The spectrum of rare diseases is diverse, but the rare disease community is united by a common goal: to fight for equity for everyone living with a rare disease.

👉 Find out more: https://t.co/jjdc7vxamR

[Australasian Blistering Diseases Foundation @blisteringdz]

Children afflicted with #epidermolysisbullosa in the #Ukraine still need their dressings and carers’ time to change them-2-3hours per day. Sad that the vulnerable get caught and suffer in these conflicts they have nothing to do with. Their lives are tough enough!

[DEBRA International @InterDEBRA]

If you are an EB patient from/in Ukraine, please visit us at https://t.co/npFjg8slha
Гаряча лінія для українських пацієнтів з невідкладними станами
Будь ласка, відвідайте наш веб-сайт за адресою
https://t.co/npFjg8slha

[Dedee Murrell @DedeeMurrell]

We held a lunch and talks with the @blisteringdz at our trial centre a few days ago for our patients with autoimmune blistering diseases. Our research team presented their latest work. Support your local events and charities. https://t.co/9IiMdvNxZD

[Rare Disease Day @rarediseaseday]

Kicking off Rare Disease Day 2022... It's Oceania! 🌏

With over 50 events taking place across the continent today, Oceania is leading the way for #RareDiseaseDay

Are you marking Rare Disease Day in Oceania? Let us know how you're getting involved! 👇👇👇

[Dedee Murrell @DedeeMurrell]

Will you be joining us for the ⁦@IntSocDerm⁩’s next world congress , the world’s first 24h a day rolling virtual dermathon, @icd2021_dermathon? Nov 10-13, 2021? https://t.co/wdbV9GzyYn

[Australasian Blistering Diseases Foundation @blisteringdz]

Excellent session on blistering diseases at @AsdrResearch yesterday -register to rewatch all the recorded talks

[Dedee Murrell @DedeeMurrell]

Fantastic ASDR Colleagiality Award lecture just now on peripheral tolerance to Dsg3 by Prof Masa Amagai of Keio University School of Medicine, Japan ⁦@AsdrResearch⁩ #pemphigus

[Australasian Blistering Diseases Foundation @blisteringdz]

Biosimilars of Mabthera/Rituximab have been tested in Rheumatoid arthritis but not pemphigus. This Australian group reported consecutive adverse events after their pemphigus patients were switched to biosimars. https://t.co/h17jVSRuIP

[Australasian Blistering Diseases Foundation @blisteringdz]

@DedeeMurrell International Day of Girls & Women in Science encourages women to pursue these great careers; here are some of the ones I have enjoyed working with from all over the world. @IntSocDerm @WomensDerm @ILDSDerm

[Australasian Blistering Diseases Foundation @blisteringdz]

We see dofferent skin diseases emerging and flaring as the seasons and weather changes, hence it is logical that climate change will affect the skin- see this special issue of #IJWD

[WDS @WomensDerm]

IJWD In Press | Climate Change & Dermatology – a special issue for a special topic: Publication date: Available online 3 December 2020 Source: International Journal of Women's Dermatology Author(s): Misha Rosenbach, Mary Williams https://t.co/8wjAoOz2hy

[Australasian Blistering Diseases Foundation @blisteringdz]

Great to see clinical trials and translational studies at #ASDR2020virtual thanks to a mixture of clinical and basic researchers

[Dedee Murrell @DedeeMurrell]

It was a pleasure to chair my last ASDR board meeting after 2 years as ASDR President & today at the end of our congress the reins pass to Kiarash Khosrotehrani, our Secretary. ⁦@AsdrResearch⁩

[Australasian Blistering Diseases Foundation @blisteringdz]

Hopefully in the future we will be trialling some topical #SOX9 inhibitors to reduce fibrosis in #scleroderma and other scarring conditions @AsdrResearch

[Dedee Murrell @DedeeMurrell]

⁦Prof Kiarash ⁦@kiakho⁩ showed that elevated SOX9 promotes evolution of endothelial cells in blood vessels into mesenchymal cells which cause fibrosis & this can be blocked with siRNA to SOX9- potentially a good treatment for scleroderma and scarring at #ASDR2020Virtual

[Australasian Blistering Diseases Foundation @blisteringdz]

It’s a dilemma whether to take rituximab fir pemphigus during the #covid-19 pandemic... here is some hard data on this from #EADV2020

[Dedee Murrell @DedeeMurrell]

@EADV Task Force for autoimmune blistering diseases met today during #EADVVirtual to hear the latest research. Pascal Joly presented findings of a 5.7 fold increased risk of #COVID-19 complications in pemphigus patients who had received rituximab in France #EADV2020 #pemphigus

[Australasian Blistering Diseases Foundation @blisteringdz]

This clinical trial for Bullous pemphigoid is now open for recruitment in Sydney at Premier Specialists in Kogarah and in Melbourne at 3 centres, Sinclair Dermatology, Royal Melbourne & St Vincents.

[Marc Yale @MarcYale]

“Dupilumab may be an additional treatment for BP, leading to disease clearance or satisfactory response in 92.3% of patients”! @healourskin, @Regeneron, @RegeneronPharma, @SanofiGenzyme, @SanofiUS, @sanofi, @RarePOV, @RareDisReport, @PatientWorthy

[Dedee Murrell @DedeeMurrell]

I will be speaking on the role of specific BTK inhibitors for pemphigus in this free international cpnference over the Australian long weekend. Lectures are 7-9.30am Saturday through Monday & registration is free. #pemphigus

[Marc Yale @MarcYale]

“Dupilumab may be an additional treatment for BP, leading to disease clearance or satisfactory response in 92.3% of patients”! @healourskin, @Regeneron, @RegeneronPharma, @SanofiGenzyme, @SanofiUS, @sanofi, @RarePOV, @RareDisReport, @PatientWorthy

[Dedee Murrell @DedeeMurrell]

I’ve been away from Sydney so missed the chance to be interviewed by SBS on the latest treatments for Epidermolysis Bullosa

[Australasian Blistering Diseases Foundation @blisteringdz]

We have several clinical trials of new therapies for eczema which block this pathway

[Journal of Investigative Dermatology @theJIDJournal]

Atopic Dermatitis Is an IL-13–Dominant Disease with Greater Molecular Heterogeneity Compared to Psoriasis https://t.co/gFDHSSjG99