Courageous Parents

Blyth Lord is the founder and ED of Courageous Parents Network and a passionate advocate of pediatric palliative care.

[Courageous Parents @BlythCPN]

@melissacousino @StanfordQoLA @stanfordpedcard @CourageousCPN @justinnbaker I am also really looking to being with everyone and contributing and learning and channeling all I have learned from families.

[Courageous Parents @BlythCPN]

via @NYTimes yup!!!!!! https://t.co/zKLgqxWngi

[Courageous Parents @BlythCPN]

How is this possible? IT is NUTS!! This texas change would negate the VALUE of the home nurse (if you have one!) .... so a parent can go out (for self, with siblings, for anything). https://t.co/EvFQs1OGTr

[Courageous Parents @BlythCPN]

@OnceUponAGene This is really well evoked and depicted Effie!

[Courageous Parents @BlythCPN]

@PediPal I love all of your conversations and this is one of my favorites - as you might imagine. With CPN's NeuroJourney, which both Lauren and Marina contributed to as editors; and Julie co-authored. I love how these two MDs center the child and family, not the prognosis.

[PediPal @PediPal]

"Episode 34: Prognosticaution" is up at https://t.co/26xAFCm9gH! Sarah and Dan discuss the dreaded uncertainty of neurologic prognosis with Marina Ma and Lauren Treat.

(And in case you missed Episode 33, we'd recommend checking that one out, too. Julie Hauer is in it!)

[Courageous Parents @BlythCPN]

@KFILE Andy - our daughter Cameron's nurses gave us a dogwood tree after she died. It is 23 years high. It blooms beautifully and pricks our eyes and hearts every spring. I am glad you have a tree. xo

[Courageous Parents Network @CourageousCPN]

Clinicians - diid you miss yesterday's NeuroJourney demo session? No worries, we are hosting another session on Thursday 1/11 at 11 am ET
Register: https://t.co/BUxVo61xNd
#NeuroJourney #SNI #Learn

[Courageous Parents @BlythCPN]

Shared NeuroJourney and CPN with 30 1st year med students at @UMassMedSchool, who are in the SideKicks program and Complex Care special interest group. These kids are their interest. This video, mom Naomi, sure got them thinking! https://t.co/WWOvKhjVZ7

[Courageous Parents @BlythCPN]

via @NYTOpinion An important piece at the beginning of this new (election) year. So glad she wrote it and that this was her family’s experience. It makes the case for families with loved ones of any age who need home care. https://t.co/gWztPW96uT

[Courageous Parents @BlythCPN]

@CourageousCPN @KenPituch @MottChildren Check out this video of @KenPituch 's gracious remarks: https://t.co/p5ZWOIHNS1

[Courageous Parents @BlythCPN]

Two fun visits for me. A rich day at Mott Children’s with Drs Pituch and Keefer and a quick visit this morning with Dr Temonti in Detroit. CPN road trip!

[Courageous Parents @BlythCPN]

What a treat for me!!!!!! Love the Avengers theme here too. Coming to speak to Peds Residents and then give the 2023 Courageous Provider Award to Dr Ken Pituch. @CourageousCPN

[Courageous Parents @BlythCPN]

The families at Mott’s are lucky to have M-COPE. Coping coping coping… can there ever be enough support to help us cope?

[Courageous Parents Network @CourageousCPN]

Listen to James Robinson, whose son Nadav was born with a congenital heart defect and lived 5 bright brave years. His book is the opposite of a tragedy. It reminds us of the power of parent love and is for anyone seeking hope and light. @MoreThanAMemoir

https://t.co/w4YSVcA9zD

[Courageous Parents @BlythCPN]

CPN is so fortunate to have a parent with Parvathy's depth and breadth of experience as a Champion. She's also a fun, optimistic presence. xo

[Courageous Parents Network @CourageousCPN]

“And so for us, the palliative care team was the backbone -  empowering us to live the best possible life that we could caring for our children.”
Meet #CPNChampion Parvathy.
#pedpc
#courageousstories

[Courageous Parents @BlythCPN]

@CourageousCPN As both ED of @CourageousCPN and a trustree of the Cameron and Hayden Lord Foundation, I am excited and hopeful about this. And so appreciative for the time and talents that brought it here. You know who you are.

[Courageous Parents Network @CourageousCPN]

This is a significant milestone for the integration of Pediatric Palliative Care into the mainstream of hospice and palliative care. Just in time for Thanksgiving, the children have a seat at the grown up table! 

#pedpc
#hapc

[Courageous Parents @BlythCPN]

Parent Champion Lindsey is transforming care for children like Owen and their families in Washington State. Woot!

[Courageous Parents Network @CourageousCPN]

#CPNChampion Lindsey Topping Schultz shared the necessary role palliative care plays in the care of her son Owen and their family at the inaugural Grand Slam Luncheon benefiting Mary Bridge Children's Hospital @Mary_Bridge Palliative Care Team. 

#pedpc
#courageousstories

[Courageous Parents @BlythCPN]

I have really appreciated this conversation about the impact of structural historical racism in US on health outcomes. ⁦ https://t.co/OP0dMMpweW