PedPallCarePA

Pediatric Palliative Care Coalition provides resources for medical professionals, caregivers, and families working together for medically fragile children in PA

[PedPallCarePA @PPCC_PA]

Register today for the April 23rd PPC Webinar - Adolescent Palliative Care: Who Decides?

In this webinar, Dr. Macauley discuss tools for supporting and working with adolescent patients facing serious illness.

https://t.co/yx6f3aEWjH

[PedPallCarePA @PPCC_PA]

PPC Webinar on 3/17/26 - The Calm and the Storm: Hypothermic Dysautonomia Through a Palliative Care Lens. Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI & discuss dynamic goals assessment.
https://t.co/mXhLYrOzz0

#pedpc #pedspc #hapc #hpm

[PedPallCarePA @PPCC_PA]

Register for the PPC Webinar on 2/19/26!

Ped. palliative providers care for patients and families facing stressful and emotionally overwhelming situations. Explore communicating with compassion while cushioning the well-being of providers.

https://t.co/eozMlARAJj

[PedPallCarePA @PPCC_PA]

Join us January 22nd for our first PPC Webinar of 2026!

This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care.

Register: https://t.co/fUwDHyl9kZ

#pedpc #pedspc #hapc #hpm

[PedPallCarePA @PPCC_PA]

As we say goodbye to 2025, we are deeply grateful for our community.

We could not do this work without you!

Wishing you a New Year filled with peace, hope and meaningful moments with those you hold dear!

[PedPallCarePA @PPCC_PA]

We hope you'll join us for our Firefly Chat on Dec 10th at noon EST: "Bridging Language Gaps: Effective Support for Non-English Speaking Families"

During this Firefly Chat, we will be focused on language boundaries to ideal patient care and more!

https://t.co/3ttwzto2rh

[PedPallCarePA @PPCC_PA]

Today is National Day of Giving! PPCC has provided education, resources and support for over a decade. Please consider donating to help light the way for children with medical complexity, their caregivers and their care providers.

https://t.co/s0TXyRQyLa

[PedPallCarePA @PPCC_PA]

Here's how you can help:

🧡Make a donation today https://t.co/VTUH6hAV3B

💙💙Host your own virtual fundraiser through our donation platform, Give Lively https://t.co/6R5HeS1h45

💜💜💜Subscribe to the PPC Webinar Series https://t.co/mXhLYrOzz0

We're thankful for all you do!

[PedPallCarePA @PPCC_PA]

You can still register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System. TOMORROW.

Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers.

https://t.co/TYPM2FmXPI

#pedpc #pedspc #hapc #hpm

[PedPallCarePA @PPCC_PA]

Registration for the 2026 PPC Webinar Series Opens December 1!

This series is designed to raise the visibility of pediatric palliative care to help families & caregivers & to build clinicians’ competencies & confidence in providing care to children.

https://t.co/UNhJNchxGr

[PedPallCarePA @PPCC_PA]

Register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System.

Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers.

https://t.co/TYPM2FmXPI

#pedpc #pedspc #hapc #hpm

[PedPallCarePA @PPCC_PA]

Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care.

In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families.

https://t.co/D3cXv3laK6
.

[PedPallCarePA @PPCC_PA]

Join us to learn about practical tools & perspectives to navigate prognostic uncertainty & support families with compassion and confidence. Don’t miss this opportunity to strengthen your practice in neonatal care.

#NeonatalCare #MedicalEducation #PalliativeCare #Prognostication

[PedPallCarePA @PPCC_PA]

October 10 Webinar: Navigating Periviable Birth

Explore survival, outcomes, and NICU care for infants at the edge of viability. Learn about ethical challenges, emerging treatments, and the role of palliative care in supporting families and care teams.

https://t.co/toRStQsVZT

[PedPallCarePA @PPCC_PA]

Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.

This program will take place over 3 weeks: October 3rd, 10th and 17th, 12pm ET.

https://t.co/IHJ8zU3U3R

[PedPallCarePA @PPCC_PA]

PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to Pennsylvania families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program.

https://t.co/YHn9gAWCKo

[PedPallCarePA @PPCC_PA]

There is still time to register for the September 2025 PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families.

More information and registration at https://t.co/fUwDHyl9kZ

[PedPallCarePA @PPCC_PA]

Betsy Hawley was recently featured on the Remembering a Life podcast. 

They talked about how to help ensure families have the resources & support they need while caring for a child at end of life and honoring their life in meaningful ways.

https://t.co/fnJCmoQdtD

[PedPallCarePA @PPCC_PA]

Our next PPCC Firefly Chat, Managing Pediatric Complex Care, will highlight the importance of communication, collaboration and strategies to support patients and families.

Firefly Chats are FREE, but registration is required.

Register at https://t.co/A26FzqjbTR

[PedPallCarePA @PPCC_PA]

This summer, your kindness can shine bright. ✨

Join our Firefly Campaign to bring hope, knowledge and resources to families facing the unimaginable.

💛 Be a light in the darkness.
💡 Donate today and help us Light the Way.

https://t.co/k6dmzPaeUc