In partnership w/ the Jones family, @CSFinfo hosts the #BobbyJonesClassic to support those w/ #Chiari, #syringomyelia & related disorders in honor of Bob Jones.
Thrilled to be at @playofffinale raising awareness about #Chiari, #syringomyelia & related disorders in honor of the legendary #BobbyJones, who himself had syringomyelia. And check out this great shot from @eastlakegc of board member Bob Jones IV hitting the ceremonial tee!
We’re excited for this year’s #BobbyJonesClassic... will we see you there? Follow us to see more action from past years and learn about this year’s exciting goings-on!
Mark your calendars and register for the tournament or submit your sponsorship today! Take part in the annual Bobby Jones Classic to benefit the amazing nonprofit, Chiari & Syringomyelia Foundation. There's only 50 spots left, so register now while they're still available!
If you want to play East Lake on April 1 for an incredible charity with @bkatrek and me all in the name of Bobby Jones ...go to https://t.co/0aIEHJ5x1k for more information
Bobby Jones (1902-1971) is the only man in history to win the Grand Slam, all four of golf's major championships in the same calendar year. At the age of 48, he was diagnosed with syringomyelia. From then on out, the disease led to paralysis, rendering him unable to play golf.
“Some days I can barely get out of bed,” Ricky states. But he always tries to get back out to play #golf— he refuses to stop doing things that make him happy despite #Chiari and #syringomyelia. #BJC2018
Last few RTs got us thinking... We kinda like this idea for #awareness... use the hashtag #ChiariIs or <yourdisorder>is explain what you go through on a daily basis!
Tell us why you #uniteatnight!
Wouldn’t wish this disease on my worst enemy. Can’t imagine what he went through. Medical professionals today still don’t know how to recognize and treat this debilitating progressive disease. https://t.co/m3R4ZhfPiX
The #BobbyJonesClassic raises money for education and research into the debilitating condition that so greatly affected the legendary #BobbyJones late in his life-- #syringomyelia. https://t.co/rxKEzD0VZz