Florin Bösch

Psychologist; Ph.D. candidate 👨‍🎓; Research field: Children with rare metabolic diseases👨‍🔬; Football enthusiast (FC St.Gallen 1879)💚⚽️

[Florin Bösch @boe_flo]

@EhrlerMelanie @UZH_AdaBD Let‘s gooo!💪🏽 Congrats🎉

[Florin Bösch @boe_flo]

It's done🏁🎓 I look back on three years full of adventure and curiosity🔎 Thank you for everything Markus Landolt (@child_trauma), Martina Huemer & @UrteScholz.

[Prof Markus Landolt / @markuslandolt.bsky.social @child_trauma]

Es gibt noch freie Plätze in unserem CAS Kinderpsychotraumatologie an der @UZH_ch mit Beginn im September 2022! #Trauma #Weiterbildung
Weitere Infos unter: https://t.co/oZUN65rTOY

[Florin Bösch @boe_flo]

So grateful for the opportunity to have worked with such an experienced group of researchers on a topic that is so important to me. A tiny step towards a better understanding of patients with rare metabolic diseases and their parents #RareDisease #parenting

[Prof Markus Landolt / @markuslandolt.bsky.social @child_trauma]

Very relevant new paper by my fabulous PhD-student @boe_flo and a wonderful group of colleagues👏👏👏#raredisease
https://t.co/vGzV5inwbv

[Kinderspital Zürich @KispiZuerich]

Wir suchen dringend diplomierte Fachpersonen mit pädiatrisch-pflegerischer Erfahrung, die uns bei der #Pflege von ukrainischen Patientinnen und Patienten unterstützen. Bitte weitersagen und bewerben: https://t.co/OXrlB2KKe0

[Florin Bösch @boe_flo]

Very excited about our new @ojrarediseases publication🎉🏁 We are confident about its contribution to a better patient-provider communication 📢 and a more holistic understanding of paediatric patients living with rare metabolic diseases and their parents 🔎

[Prof Markus Landolt / @markuslandolt.bsky.social @child_trauma]

New paper out - led by our fabulous PhD-student @boe_flo 👏👏 #RareDisease
Key patient-reported outcomes in children and adolescents with intoxication-type inborn errors of metabolism: an in… https://t.co/CJrF4RhN5e

[The Journal of Inherited Metabolic Disease @JIMD_Editors]

For our 'something borrowed' there is:
Homocystinuria patient and caregiver survey: experiences of diagnosis and patient satisfaction
Morrison, @boe_flo et al
#HCU #openaccess
https://t.co/O1eHdpsWYk

[Kinderspital Zürich @KispiZuerich]

Manche Krankheiten lassen sich nicht heilen. «Familien sollen die verbleibende Lebenszeit nach den Bedürfnissen ihres Kindes gestalten können. Wir unterstützen sie dabei.» PD Dr. Eva Bergsträsser lässt in ihren Alltag als Leiterin #PalliativeCare blicken: https://t.co/J53JqNujHJ

[Prof Markus Landolt / @markuslandolt.bsky.social @child_trauma]

Finally out - our paper on "Age-related effects of the COVID-19 pandemic on mental health of children and adolescents"
Wonderful collaboration with @unibe_pkj
#CoronaInfoCH #COVID19 #coronavirus
https://t.co/MB8LMlpdyN

[EURORDIS-Rare Diseases Europe @eurordis]

People living with a rare disease and their families remain largely marginalised in society.

We must support them and reduce the level of psychological, social & economic vulnerability of people with a rare disease by one third.
👉 https://t.co/OQpphqRsw6

#Rare2030

[Florin Bösch @boe_flo]

It was such an honour to work with these highly respected and specialized researchers on such an important topic. Many thanks for the experience!
#homocystinuria #RareDiseases #Patientempowerment #participatient

[Prof Markus Landolt / @markuslandolt.bsky.social @child_trauma]

New paper out on #Homocystinuria patient and caregivers views. Wonderful experience with many international co-authors! @boe_flo @KispiZuerich @UZH_en #RareDisease
https://t.co/6cQ2eTku09

[The Journal of Inherited Metabolic Disease @JIMD_Editors]

Volume 44, Issue 1 is out now

This issue hi-lights work presented at the #SSIEM2019 meeting in Rotterdam and discusses the new international classification system for IMD.

#CDG #PDE #mitodisease @RobPitceathly

https://t.co/SkKafTCA6d

[Kinderspital Zürich @KispiZuerich]

Wir suchen eine #Apothekerin oder einen #Apotheker. Sie arbeiten im führenden #Kinderspital eng mit dem Onkologie-Team zusammen, betreuen die Zytostatikaherstellung und tragen so dazu bei, dass krebskranke Kinder eine optimale #Chemotherapie erhalten: https://t.co/rWVDcMiasC

[Kinderspital Zürich @KispiZuerich]

In grosser Trauer nehmen wir Abschied von Prof. Dr. med. Remo H. Largo. Sein Fachwissen & sein unermüdliches Engagement für Kinder prägten Generationen von Ärztinnen, Ärzten und auch Eltern. Unsere Gedanken sind bei seiner Familie, der wir unser herzliches Beileid aussprechen.

[The Journal of Inherited Metabolic Disease @JIMD_Editors]

More new publications:
Seeking impact: global perspectives on outcome measure selection for translational and clinical research for primary mitochondrial disorders
Amy Goldstein of @childrensphila & Shamima Rahman of @UCLchildhealth
https://t.co/0jlKvQIPXf

[Betty S. Lai, PhD @BettySLai]

We often treat mental health as something that can be separated from physical health.

But data show over and over again that mental and physical health are connected.

An example relevant to this disaster? See our findings ⬇️

@OpenAcademics @mothersinsci @xiaofei_lin

[The Journal of Inherited Metabolic Disease @JIMD_Editors]

Finally our “something blue” comes with one of our earliest #visualabstract
Extent, impact, and predictors of diagnostic delay in Pompe disease: A combined survey approach to unveil the diagnostic odyssey
Florian B. Lagler et al #pompe #LOPD #raredisease
https://t.co/henR5gT85a

[Florin Bösch @boe_flo]

@M_arenT_P Die Website ist von uns so angedacht, dass wir sie laufend erweitern mit neuen diagnosen und themen. Solche Einwände aind darum super wertvoll, danke!

[Florin Bösch @boe_flo]

Very happy about our new website for german speaking children and teenagers with inborn errors of metabolism (and of course their parents).
It provides information about diseases and other important aspects of patients' life✈️💌💃🕺
Go check it out here: https://t.co/KPlz9xha3w

[MarenT @M_arenT_P]

@boe_flo Sonst bei "interessanten Links" auch erwähnenswert unsere 2018 gegründete deutschsprachige Selbsthilfegruppe für angeborene FettSäurenOxidationsStörungen- kurz Fett-SOS e.V.
#MCAD
#LCHAD
#MTP
#VLCAD

https://t.co/e9y7HX9Wfq