As the mother of a 19 year daughterย that died, what was the hardest part of Charlotte's brain tumour journey? Hearing her, literally, take her last breath. I then phoned her brother Miles (who had now suddenly become an only child). He was at home waiting nervously knowing that thisย call would be the call to tell him his sister was dead.ย I Never gave up hope, until that final breath then I knew all hope had gone.
I can't emphasise enough the severity of Glioblastoma, a grade 4 terminal brain tumour . We can do nothing else for Charlotte except to carry on where she signed off. 18.2.97 - 24.2.16
If you would like to donate to a small self funding charity where 100% of your donation goes to research at Charlotte's Lab based at King's College Hospital, London.
We also let you know how your donations have been spent and it's certainly not on salaries, overheads, advertising or merchandise.
If you can donate we would be so grateful but equally a RT would help massively.
With thanks
https://t.co/Ox60Th4Z4V
โBe sound, bring a poundโฆโ ๐
At Goodison on Saturday? If you can, drop ยฃ1 in one of the buckets around the ground to support the life-changing and life-saving work of @EITC, as our official charity celebrates its 37th birthday. ๐
I was Charlotte. I was born in Brighton on 18th Feb 1997. I loved handbags and fashion. I was looking forward to having a career. I was looking forward to getting married and having children. I was looking forward to a long and happy retirement. But none of that happened.
Thatโs why I write in the past tense.
I died when I was 19 years and 5 days old, on 24.2.2016.
Since I passed my mother and Miles, my older brother,
Have been raising awareness of brain tumours,
especially Glioblastoma.
Thatโs the one that took me.
It was a grade four and inoperable.
It was on the brain stem.
I had standard NHS treatment: 6 weeks radiotherapy to my brain and spine.
I also had chemotherapy.
Treatment abroad was too expensive.
It's the exception, not the norm. My mother tries to tweet daily about my journey, and now she is forced to tweet about her's.
I documented my journey on my YouTube channel.
https://t.co/AdhfiOjmvN
When I, Alex, Charlotte's mother, was diagnosed with grade two breast cancer earlier this year,
I was so, so glad that I went for my routine mammogram. Miles and Charlotte would never have forgiven me if I'd missed a free NHS breast screening appointment. Fortunately, it was caught early and I have had a lumpectomy and five days of preventative radiotherapy.
One day I will join Charlotte, but I want to be with Miles for as long as possible. Unlike Charlotte, I am able to fight my cancer because it was caught early. For Charlotte, that made no difference.
Fortunately, a lot of money is donated to breast cancer research, which is wonderful, as, hopefully, I will be able to live a long life. However, Charlotte was not so lucky, as brain cancer research receives virtually no funding.
If you would like to donate to a charity, please think of
https://t.co/Ox60Th4Z4V
A follow or/and a RT would help so much to raise awareness of two different types of cancer Brain & Breast.