a fair life hack ng may power card βΏοΈ
and I say fair dahil hindi ito nakaw mula buwis o pera ng iba π«ͺ
lubusin na lahat ng benefits na pwede kesa π makinabang
still hoping na makalusot ang first sss db claim sa july kahit lagpas 10 yrs na since dx β
Did you know that someone living with HIV can have surgery without having to share their HIV status? It's perfectly legal!
#3rdAsiaPacificHIVPracticeCourse
@sirbebeboi πββοΈ I see myself a progressive centrist. Though a bit left-inclined, hindi ko poon ang kahit sinong politician. Lahat sila may sariling agenda π€·ββοΈ but I support actions that makes sense, and vigilant on actions that are just for agenda, regardless kung sino pa π
@bylrsctt And we try to live both lives in parallel - the person we were before the diagnosis continuing to pursue life as normal, and the new person fighting the silent battle to survive. I feel you bro π«
01
I tested positive 33 years ago. At that time, there were no effective treatments, so I waited. I watched my CD4 go from almost 900 to <200. In 1996 were the first effective treatments and started soon after. In the beginning, I was taking 24 π, 2X a day. The side effects were terrible.
As better treatments arrived, I kept switching until todayβs treatments.
I have to say after reading other peoples responses, Iβm shocked at how long it takes to start treamtent in Japan. I started a program at the hospital where I worked that gave HIV tests to everyone who had blood taken for testing. It helped to find rare cases, where a person didnβt think they were at risk. We also started giving patients their first ARV pill there in the emergency room, as soon as they found out.
Numerous studies has shown that we get much better outcomes, and todayβs medications (like Biktarvy) can be given before lab tests are done. This is called Rapid ART.
02
Todayβs ARVs are much more forgiving around late or missed doses. They are 1 π a day, not 1 π every 24 hours exactly.
There have been studies in France that gave PLWH the option to take their medication for 4 days, with 3 days off. They all had been undetectable for more that 6 months with a normal CD4. They found that it worked just as well as a daily pill. The folks in the study got more frequent viral load tests, in case there was breakthrough.
The reason doctors tell us to take it at the same time is so that we create a habit, and therefore are less likely to forget. Personally, I think itβs better to tie your pill to another daily activity like a morning coffee or brushing teeth before bed. We donβt forget to brush our teeth, and if youβre worried about a late or missed dose, that unnecessary stress.
If you forget frequently, some things that help can be a phone set with a daily alarm or using a pill box. You can also buy a single pill holder that attaches to a keychain. That way, if you remember later in the day, you have a pill with you.
03
Our immune system as many different parts that can work with other parts to fight an infection. Our CD4s focus on identifying new viral infections or reactivating memory cells from past infections. They have nothing to do with bacterial or fungal microbes.
In truth, if our numbers are in the normal range, we should have normal immune function. Often we become hyper aware of our bodies, looking for, and sometimes imagining miniscule changes. For peace of mind, realize that everything will be OK. βΊοΈ
The most important thing is to make sure our immunizations are up-to-date, especially for HBV, HPV, Shingles, seasonal flu and covid ππ, and the childhood ones that may need to be repeated. If you travel, meningitis and mpox may be needed beforehand, depending where youβre going.
I also recommend 3-site screening for STDs, depending on how sexually active you are. I get tested twice a year, with my regular HIV labs, including syphilis, oral and rectal swabs, and urine for gonorrhea and chlamydia. I also have a prescription for DoxyPEP, which is taken after sex to prevent these diseases.
04
My husband and I met through a casual sex hookup. I was safe and we didnβt discuss HIV before the encounter. He moved away, and when he returned to California, I had a spare bedroom and he asked to rent it. At that point we were just roommates. We both dated and had other people over. Sometimes weβd go to a gay bathhouse together. It was during that time that I disclosed my status.
We lived together for four years, and during that time we became closer and closer. Itβs kind of strange, because we never dated in the traditional sense. Because we started as roommates, our relationship was open and stayed that way.
Eight years ago when gay marriage became legal, we got married so he could stay here with me. Heβs HIV-negative and takes PrEP, mainly because were in an open relatonship.
If you have questions, feel free to DM or post here