Anne L

Human rights, antiracism and equality❤️
Environmentalism and climate justice 💚 #antiableism
Living with #hEDS and #LongCovid

[Nele @NeleHelena]

The thing about mind-body is that anyone can talk about it. It doesn't require you to have any knowledge of the body and the brain. 

1. pick a misunderstood physical illness in an ableist society 
2. act like you're the first one ever who thinks of a psychological aspect

1/2

[Jack | amatica health @JackHadfield14]

Brain-retraining logic applied to a broken leg to show how illogical it is:

Stumble, notice the leg, get anxious about standing, avoid standing, standing feels harder, avoid it more.

Conclusion: no fracture, just a fear-avoidance loop. Reassurance and graded standing will fix it.

[Jan Eliasson @JanKEliasson]

Vi bör veta att slakten på USAs bistånd och minskningar i Europa inkl Sverige nu leder till massdöd i den fattiga världen.

Tidigare kolleger i FN och civilsamhället vittnar om mängder av abrupt avslutade livräddande program.
Även denna verklighet är vår.
Allt hänger samman.

[Jeannie Di Bon @jdibon]

Today is ME/CFS Awareness Day.

Research suggests that around 1 in 4 people with hEDS or HSD also has myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Many more are still waiting for a diagnosis.

[sean stidston @seanstidston]

Just think how much each individual patient has spent on supplements, vitamins etc just to be the exact same level of functioning if not decline. We’re all mugs in this world.

[Briana Mills, LMFT ♿️🏳️‍🌈🍉 @theBrianaMills]

Speaking as a therapist, there is no such thing as “Covid anxiety.” The mental health field is built on ableism and most therapists don’t understand that viruses can disable or kill someone. You’re not “crazy” for not wanting to get sick. It’s called self preservation.

[Candace D. @DiaryofaSickGrl]

Called lazy, a hypochondriac, whiny, etc as a child only to find out as an adult that I have hEDS and the fatigue, pain, etc all makes sense.

[Kelly @broadwaybabyto]

“Are you better yet???”

Chronically ill people hear this all the time from those who can’t comprehend the “chronic” nature of living with disabilities.

We aren’t getting “better”

Sickness & suffering is our baseline

Please don’t pressure us to fake being well for your comfort

[Svenska Covidföreningen @covidforeningen]

Med minst 300 000 drabbade är postcovid vår tids stora folkhälsoproblem.

Men inom den svenska politiken tycks ämnet vara helt frånvarande.

Nu vill vi ändra på det.

@socialdemokrat @moderaterna @sdriks @vansterpartiet @Centerpartiet @kdriks @miljopartiet @liberalerna

[Salvatore Mattera @SalvMattera]

The reason why there's so much fraud in the chronic illness space is that people are so desperate to be believed that they will shut off their critical thinking and empty their pockets for someone who validates their experience.

The validation is the product. The fake tests, the diagnosis, the unproven treatments: those are just the delivery mechanism. Really, what the person is buying is someone with a title saying "you're not crazy, this is real, I believe you." That's it.

That's also why the mainstream medical system bears most of the blame here. If they simply said, "I believe you're sick, I don't know what's wrong yet, and I'm going to keep looking and trying things" - that would be enough.

Instead, people are told, "your labs are normal, nothing is wrong." Maybe you'll get offered an SSRI, if you're lucky.

So people go looking for anyone who will say otherwise, and there's an entire marketplace of cons looking to take advantage.

[ThePOTSPostman @ThePOTSPostman]

EDS isn’t just “bendy joints.”

Connective tissue is what holds your entire body together.

It’s in your blood vessels, organs, nerves, skin, heart, gut.
It’s everywhere.

So when it’s defective, it doesn’t stay in the joints.

It shows up everywhere and affects everything.

[Briana Mills, LMFT ♿️🏳️‍🌈🍉 @theBrianaMills]

I wish more people understood that if you don’t stop and slow down when you need to, your body is eventually going to force you to slow down, and it might not let you go back to how you were before.

[Michael R Scoma MD @DrMichaelScoma]

🚨🚨🚨 The chronic illness space on this platform is deteriorating rapidly. A fringe group of so-called physicians and academics are espousing psychosomatic narratives around ME/CFS, Long COVID, and MCAS…processes rooted in biology that are ravaging millions.

[Jack | amatica health @JackHadfield14]

Getting COVID more than once may carry extra risk.

In this large study, people with reinfection had higher risks of death, hospitalisation, and health problems across many parts of the body than people who had COVID once and were not reinfected.

[Sex Industry Research @SexIndustryRes]

#SexIndustryArticles

Letter to sex buyers from a Danish survivor of prostitution

https://t.co/jjoxRGzk0j

"Dear sex customer,

If you think that I ever felt attracted to you, you are terribly mistaken. I have never had any desire to go to work, not once. The only thing on my mind was to make money, and fast.

Do not confuse that with easy money; it was never easy. Fast, yes. Because I quickly learned the many tricks to get you to come as quickly as possible, so I could get you off of me, or from under me, or from behind me.

And no, you never turned me on during the act. I was a great actress. For years I have had the opportunity to practice for free. Actually, it falls under the concept of multi-tasking. Because while you lay there, my thoughts were always elsewhere. Somewhere where I was not confronted with you sucking out my self respect, without spending as much as 10 seconds on the reality of the situation, or to look me in the eye...

When you buy sex, it reveals that you have not found the core within your own sexuality. I feel sorry for you, I really do. That you are so mediocre that you think that sex is all about ejaculating into a stranger’s vagina.

And if one is not handy, it is never further away than down the street, where you can pay an unknown woman to be able to empty yourself into a rubber while inside of her.

What a petty and frustrated man you must be. A man unable to create profound and intimate relationships, in which the connection runs deeper than just your ejaculation.

A man, who expresses his feelings through his climaxes, who does not have the ability to verbalise them, but prefers to channel them through his genitals to rid himself of them. What a weak masculinity. A truly masculine man would never degrade himself by paying for sex.

As far as your humanity goes, I believe in the good in people, also in you. I know that deep down, you have a conscience. That you have quietly wondered whether what you did was ethically and morally justifiable. I also know that you defend your actions and likely think that you treated me well, were kind, never mean or did not violate my boundaries.

But you know what? That is called evading your responsibility. You are not confronting reality. You delude yourself in thinking that the people you buy are not bought. Not forced into prostitution.

Maybe you even think that you did me a favour and gave me a break by talking about the weather, or giving me a little massage before you penetrated me. It did me no favours. All it did was confirm to me that I was not worth more. That I was a machine, whose primary function was to let others exploit my sexuality.

I have many experiences from prostitution. They enable me to write this letter to you. But it is a letter, which I would much rather not have written. These are experiences I wish I could have avoided.

You of course, you thought of yourself as one of the nice customers. But there are no nice customers. Just those who confirm the women’s negative view of themselves.

Yours truly,

Tanja Rahm"

[Venessa MacLeod @NessaMacLeod]

Prostitution requires a form of brainwashing. The way prostitutes lie to ourselves just to get through the day and the regurgitation of pimp lobby lies, it’s comparable to cultist indoctrination.

[Anne L @brummann]

@LongCovidss2022 What a cutie 😻

[Anne L @brummann]

@finnishgunners Tackar 🙂

[Anton 🇫🇮 🇸🇪 @finnishgunner.bsky.social @finnishgunners]

After getting severely ill with ME I’ve developed such a dark sense of humour as a coping mechanism. I’m funnier these days. No wonder some famous comedians had really rough childhoods.