Bryant Harbourne

Husband, father, scientist, orphan drug / rare disease advocate - aHUS // Scientist // Views are my own

[Bryant Harbourne @bt_har]

These recordings bring together expert presentations, patient stories, and community insights and the latest in aHUS treatments.
Whether you attended or couldn't join, this is to revisit the inspiring talks and valuable information shared by medical experts and fellow patients.

[Bryant Harbourne @bt_har]

Today is aHUS Awareness Day. A day to raise awareness worldwide about the rare disease, aHUS. AHUS Canada held a spring 2025 aHUS Conference. It was a great weekend full of speakers, patients and families. Videos available on aHUS Canada Youtube channel.
https://t.co/H6imEmirVr

[Bryant Harbourne @bt_har]

#aHUSawarenessday #aHUS #aHUSCanada #RareDisease

[Bryant Harbourne @bt_har]

Canadian’s can learn more @raredisorders and American’s @RareDiseases

[Bryant Harbourne @bt_har]

#RareDiseaseDay2025 was on Feb. 28. Under appreciated by most except those living with one of the more than 7000 rare diseases. In Canada 1 in 12 people has a rare disease/disorder totalling ~ 3 million people. Much needs to be done to improve treatment, access and diagnosis.

[Bryant Harbourne @bt_har]

@Biotech2k1 Please add

[GI Society @GISociety]

British Columbians are hurting, we are not being treated fairly in BC. Why won't the Health Minister do right by us? The rest of Canada gets these medicines, but we are shut out!
https://t.co/AT3dmht9Be
@Gail_Attara @adriandix @Dave_Eby #cdnpoli #bcpoli

[Abdera Therapeutics @AbderaTx]

We're excited to announce the clearance of our IND by the @US_FDA for ABD-147 for the treatment of small cell #lungcancer. Learn more about this next-generation precision #radiopharmaceutical therapy here: https://t.co/9KYxx5uoV8

[Bryant Harbourne @bt_har]

It’s not as rare as you think. Did you know 1 in 12 Canadians have a rare disease/disorder?

[Rare Disease Day @rarediseaseday]

Why raise awareness? Shedding light on rare diseases is vital. Limited healthcare knowledge leads to delayed diagnoses, while expensive treatments pose financial burdens. Advocacy can drive better resources, research, and quality of life. 💙
#RareDiseaseDay #ShareYourColours

[CORD @raredisorders]

📢 Cdns with #rarediseases:

A year ago, #GoC🇨🇦 promised $1.4B to fund #raredisease meds. One year later, not a single dime has been spent.

We’re launching the #FightForOurLives campaign to change that. Please email your government: https://t.co/SY9a2flf0z

#CdnHealth #CdnPoli

[Bryant Harbourne @bt_har]

@CPHO_Canada @GovCanHealth @aHUSCanada

[Bryant Harbourne @bt_har]

This is an amazing study! I hope it encourages more countries to expand new born screening programs. (nudge nudge Canada) There are many more diseases that could be added to the list if successful.
#aHUS #rarediseases https://t.co/YgZyTvR1LC

[Bryant Harbourne @bt_har]

More and more options becoming available for complement mediated diseases. SubQ would be certainly be favoured over IV. #complement #aHUS #aHUSCanada https://t.co/jzLvoJnlsi

[BC Transplant @BC_Transplant]

Meet Derek, he’s been registered as an organ donor for 10 years. He checked his registration details by logging on to Health Gateway with his BC Services Card. Log on today and view your registration details - how many years have you been registered?

[Bryant Harbourne @bt_har]

I’m excited to introduce Abdera! Learn more about us below.

[Abdera Therapeutics @AbderaTx]

We’re excited to announce today $142M in financing that enables us to design and develop tunable, antibody-based radiopharmaceuticals for #cancer. Learn more here: https://t.co/3zaaOY1yRr

[Bryant Harbourne @bt_har]

Very proud to be a part of this paper! Great work done by a lot of talented people. #zanidatamab #zymeworks $zani

An anti-HER2 biparatopic antibody that induces unique HER2 clustering and complement-dependent cytotoxicity | Nature Communications https://t.co/BICe0jGL0u

[Bryant Harbourne @bt_har]

Encouraging press release yesterday! Nice to see some alternatives finally nearing the market. SC instead of IV dosing is an added bonus

#complement #aHUS #PNH

https://t.co/wdnjid01X8

[Bryant Harbourne @bt_har]

If you’ve ever thought about it but haven’t done it

[BC Transplant @BC_Transplant]

Take two minutes to register as an organ donor and give hope to more than 500 people and their families, waiting for an organ transplant. 💙https://t.co/50FT6gwGkm

[Bryant Harbourne @bt_har]

@WWL_18 @CellReports @FJ_Scientist @BCCancer_GSC @SJD956 Congratulations Fraser and Will!

[Rare Disease Day @rarediseaseday]

Today marks the first day of Rare Disease Awareness Month!

Join us this month in raising awareness for the 300 million people living with a rare disease all around the world!

➡️Find out how you can get involved: https://t.co/Tx68pdZRFb