This is a thread of things that I like, that make me happy and smiley
-the colour yellow
-the word starry
-soft things, like fluffy socks or jumpers
- blankets, especially handmade ones
-books, fiction mostly
-dogs, little paws, cute noses, soft ears
-paw print shapes
-puns
I was told my tachycardia was due to fighting with my boyfriend.
My hysterectomy was denied because I might “meet a man who wants kids”.
My lower leg edema was blamed on “getting fat”.
My crippling period pain was “part of growing up”.
Medical misogyny is real.
I don’t want a city on Mars. I don’t want AI in every app. I don’t want data centres in space. I don’t want humanoids or flying cars. I want clean water. I want a stable climate. I want bees to survive. And a habitable planet.
The minimum wage is meant to be the lowest wage you can live on and afford housing. So, for everyone saying "it's not meant to be that," yes, it is. That's why it's called the minimum wage.
I obviously have a great deal to say about this, but the crux of the matter is you never know what someone is going through. Hygiene poverty, illness (both mental and physical), disabilities, and housing inequality can all affect a person’s ability to maintain odourlessness.
I think a full-time salary should be able to buy you a neat, clean apartment to live in and electricity and internet and groceries to put in it, and I think it's weird to pay someone an amount of money for full-time work that would not achieve that
remember when jennifer lawrence said she and others had been referring to meryl streep on set as the goat and meryl had just assumed they meant the animal and still went along with it
I hate when people at work ask you what books you are reading for professional development. I am reading books to counteract the effects of being professionally developed. I am reading books that bring me back to being human.
The Final Delivery Plan for ME/CFS has been released today.
The full report was shared with some organisations and media outlets late yesterday. We’re waiting for it to go online.
A short 🧵with some thoughts…
(1/)
There's this entire myth that loads of people are faking/exaggerating sickness for some social/financial benefit, but the reality is that most people are actually pretending to be LESS sick than they are because that's what society demands.
the 1-10 pain scale system is so odd to me as a neurodivergent person because what do you mean how much pain am I in? usually? right now? this morning? in the evening? what is 10? burning alive or the worst pain I have personally experienced?
Today a doctor asked the question most disabled patients dread…
“What do you want ME to do about it?”
I wanted to scream:
Your job!
Help me!
Solve the problem!
Provide treatment!
But I didn’t. I remained calm. I avoided being “difficult”
I left with no answers 🧵
You’re telling someone who needs 1:1 care to wash, eat, and stay alive that they’ll get £3,000 less a year—because it might “encourage them into work.”
They can’t even dress themselves.
This isn’t just cruel.
It’s dehumanising. #UniversalCredit#CrueltyNotCare@UNHumanRights
Labour have opened the doors to the most vile ableism I’ve ever witnessed . Years of understanding re Autism, ADHD , disabilities and mental health advocacy washed down the drain and replaced with a barrage of hate. Shameful.