Natrayan C

[News24 @news24tvchannel]

''हमने इंजेक्शन से इम्पोर्ट ड्यूटी और GST हटाने के लिए कई बार सरकार से अपील की है...सुप्रीम कोर्ट भी गए'': अल्पना शर्मा, संस्थापक, SMA फाउंडेशन

@alpanaS16

#SandeepChaudhary #SabseBadaSawal

#kanav #kanavjangra

[Alpana Sharma @alpanaS16]

Thanks @news24tvchannel @sandeep_news24 V @curesmaindia lost more than30 life in last 6 month while waitin 4 d Govt support, lifesaving medicine #Risdiplam #zolgensma can save lives. we helpless parent hav to watch our child dyin slow death in front of our eye #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We are delighted to announce our strategic partnership with esteemed @SMAEurope to work on transversal issues to improve the lives of people with SMA and their families. #India #Europe #BattleAgainstSMA

[HeadSpin @headspin_io]

Read the blog ‘What are the Differentiating Factors That Make #HeadSpin Unique?’ by Rohan Singh, Director, Solutions Engineering, to learn about the HeadSpin Platform’s unique capabilities and understand how HeadSpin is better than its competitors: https://t.co/nVVfowQPe0

[HeadSpin @headspin_io]

Watch this video to know more about #HeadSpin's unique #CreateYourOwnLab (#CYOL) capability that offers a seamless way for organizations to utilize their existing device setup to run extensive compatibility tests and remotely test and debug apps: https://t.co/pesR2udzbt

#Testing

[HeadSpin @headspin_io]

Read the blog ‘An #Appium Cloud Service with Performance Features’ by @jlipps, Sr. Director, Automation Technology, #HeadSpin, to learn more about cloud services and other types of paid software used in mobile #performancetesting: https://t.co/h6FDstfZyT

#MobileTesting

[HeadSpin @headspin_io]

Leverage @headspin_io's enterprise solution that offers a single platform to meet end-to-end app testing needs and optimize your end-user experiences

#AutomationTesting #SoftwareTesting #TestAutomation #EnterpriseSolution #TestingPlatform #HeadSpin #TestingSolutions #Appium

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Today's #SMAwarrior (Type 1) is Dhairyarajsinh Rathod from Gujarat who was diagnosed after 2 months of age.The family could successfully crowd fund, to treat him with #Zolgensma & #Evrysdi. Now he is fiercely fighting his #BattleAgainstSMA .
#SMAckSMA
#SMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessmonth
Day 6: Today's #factsheet is on #SMA type 0 babies,the most severe type,usually born with severe respiratory issues. In India diagnosis may be delayed as newborn screening isn't done. Type 0 SMA is a major cause of neonatal mortality with respiratory distress.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 7: Today's factsheet is on the importance of early diagnosis & treatment much needed to preserve maximum neuronal health and muscle strength in #SMA. This can help to minimize the complications & ensure better quality of life.
#BattleAgainstSMA
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Today's #SMAwarrior is Naksha Gowda from Telangana. Her delayed milestones were noticed by parents & physiotherapy was started early. Luckily, she got selected in #SIPHAP program too. Thanks to #Spinraza medicine which improved her walking.
#BattleAgainstSMA
#SMAawarenessmonth

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On this #FriendshipDay2022 , sharing a cute photograph of our #SMArtwarriors enjoying their therapy session together. We wish they remain #Friends forever ! Enjoying tiny moments of #BattleAgainstSMA .. #SMAckSMA with a smile 😊!
#SMAawarenessmonth

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Today's #SMAwarrior is Rishvika, who started showing symptoms of #SMA type 1 when she was <3 months & tested with only 2 copies of SMN2. She could start #Evrysdi ,the only medicine approved in India, at 5 months of age. Watch & support her #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 8 :Today's #factsheet is about SMARD (SMA with respiratory distress).This is a very rare & severe type of SMA caused by mutation in a gene - IGHMBP2. It leads to respiratory failure & death before 13 months if not ventilated.
#BattleAgaisntSMA
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Today's #SMAwarrior is Firmino from Tamil Nadu. A delayed diagnosis & improper management complicated his #BattleAgainstSMA . His experience shows that for a progressive disease like SMA,the earliest diagnosis & intervention ensures better prognosis.
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAAwarenessMonth
Day 4: Typical course of a Type 1 #SMA progression can be seen in our patient story today, our beloved #SMAangel Fiodor from TamilNadu.
He lost his #BattleAgainstSMA days before his first birthday !
#GoneTooSoon
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessmonth
Today's #Factsheet is on the clinical course of the commonest form of SMA (Type 1 SMA ) - the symptoms, complications and life expectancy if untreated.
#BattleAgainstSMA
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
We are thankful to Dr. Nilofer Vora Shaikh, Ped. Physiotherapist from Gujarat for today's awareness video. Dr. Nilofer has been working with #SMA for over 7 yrs. She talks about various scales for motor assessment in #SMAwarriors .
#BattleAgainstSMA
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Our heartfelt gratitude to Dr Saumyajit Basu, Dr Dheeraj Maddali and Dr Aditya Guduru for this amazing article on 'Halo-Gravity traction in SMA'. New techniques & methodologies are making life of #SMAwarriors better, thanks to doctors like Dr Basu.
#Grateful

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAwarenessMonth
Day 5: #SMA Type 1 survival is dependent on the early start of medicine and a proactive approach on medical interventions. Today's #factsheet gives ways to improve the quality of life through Non-Invasive Ventilation & Enteral feeds. #BattleAgainstSMA
#SMackSMA