Thank you @taylorswift13 for using your #VMAs Video of the Year win to bring attention to the #EqualityAct. ๐
You can sign the petition here.
https://t.co/v11HYLlDLt
@drjackyhewitt @WHO Many with CAH donโt like either term but prefer to just state the condition they have - CAH. @drjackyhewitt thank you for pointing out both terms can cause varying emotions. Words matter. We must listen to all stakeholders.
๐ณ๏ธโ๐ HISTORIC! ๐ณ๏ธโ๐
The #EqualityAct has passed in the House with bipartisan support! We are one HUGE step closer to *full* federal equality for all #LGBTQ Americans! #HR5
@BastienJanik @IWGregorio @AmerUrological@SPU_Urology@glaad And we should note, we are mostly speaking to classical CAH. Often misinformation and misuse of words correlates all forms of CAH together. There are many forms and all different!
@BastienJanik @IWGregorio @AmerUrological@SPU_Urology@glaad Again, for most intersex individuals there is nothing wrong and this should be celebrated. But correlating different conditions leads to misinformation.
@BastienJanik @IWGregorio @AmerUrological@SPU_Urology@glaad And please donโt ask โwhere our your studiesโ. The CAH community just had a patient panel and we heard many personal stories about how this misinformation & misguided word use hurts us.
@BastienJanik @IWGregorio @AmerUrological@SPU_Urology@glaad@LurieChildrens@childrenshealth Correlating over 30 different conditions as โthe sameโ down plays the important issues of each condition.
The misguided word use and misinformation regarding CAH has caused immense emotional distress to CAH people; and we already live with enough challenges.
@BastienJanik @IWGregorio @AmerUrological@SPU_Urology@glaad@LurieChildrens@childrenshealth In general, when it comes to CAH these statements don't apply and we end up having to re-educate the public. (And when we do, people understand). Example: yes CAH is a medical condition. Without medication we can die. - These facts are important.