Thyroid Patients Canada

Thyroid Patients Canada is a patient-led nonprofit organization offering public education and patient support.

[Thyroid Patients Canada @CanadianThyroid]

@simonhspearce Indeed it would be "strange" to claim T3 is a new and unproven prescription. Selenkow & Rose's 1976 chart of thyroid preparations listed no less than five T4/T3 combination brands and "liothyronine daily maintenance dosage 0.075-0.125 mg/day" had 9 citations.

[Thyroid Patients Canada @CanadianThyroid]

Pilo's 1990 #thyroid study proposed that 20% of #T3 hormone is from the thyroid gland, 80% from peripheral conversion. This is a reductive theoretical model, not a universal law of biology. People misuse this study as if this 20/80 ratio is true for all. https://t.co/FFtjdyK4kO

[Thyroid Patients Canada @CanadianThyroid]

Pilo’s 1990 study of only 14 people is still being cited in works that try to establish "physiological" limits on all #T3 dosing in thyroid therapy. This is a misuse of Pilo's study. ASK: Are these 14 people representative? What were their ranges? https://t.co/deLfx54ky9

[Thyroid Patients Canada @CanadianThyroid]

@ThyroidTrust @bbchealth @NYTHealth @thyroidie @thyroiduk_org @ThyroidChange @NinjaThyroid If the UK prices for T3 / liothyronine are "daylight robbery," then Canada has "daylight inequity" among different doses and formats of T3. See 3 very different prices for 1 mo. of #T3 liothyronine in Canada. Few know about the 2 cheaper options. https://t.co/nf13J5M7Ll

[Thyroid Patients Canada @CanadianThyroid]

UK #thyroid pharma economics: DailyMail news article gives costs for T3 / Liothyronine. For 20-25 mcg / day, 1 month: ◘UK, 2007 = £4.46 GBP ◘UK, 2019 = £204.39 GBP◘GREECE, 2019 = £1 GBP. ◘Compare with Canada & Mexico and get further analysis at https://t.co/nf13J5M7Ll

[Thyroid Patients Canada @CanadianThyroid]

Global #thyroid pharma economics: #T3 meds. CANADA, Cytomel, 150 x 5 mcg = $223.50 CAD. /BUT/ 30 x 25 mcg = $53.70 CAD. Very strange that the 5 mcg pills by the same company cost 4.16x more per microgram than 25mcg pills. Let's ask WHY. https://t.co/nf13J5M7Ll

[Thyroid Patients Canada @CanadianThyroid]

Question Pilo’s 1990 #thyroid hormone study, basis of T4:T3 ratios that guide our therapy. The the 62.5 mg/d of Lugol's iodine could have affected the amount and ratio of #T3 and T4 secreted from their thyroid glands. Does it give 20% or 30% of T3 supply? https://t.co/FWm4jz8BU0

[Thyroid Patients Canada @CanadianThyroid]

I'm not claiming I influenced them, but British endocrinology SfA & BTA press release echoed several of my letter's points five days after it was published on the BMJ website. We are on the same wavelength regarding subclinical #hypothyroidism. https://t.co/Vz8Mg0twVI

[Pete Taylor @DrPeteTaylor]

Excellent overview from Rachel Ellis on T3 and hypothyroidism (I even get a mention) #mumwillbeproud
How can firms justify the drug daylight robbery? https://t.co/bRq7RMcdhD via @MailOnline

[Thyroid Patients Canada @CanadianThyroid]

One misuse of the oft-cited article by Pilo et al in 1990: To dismiss lower T3:T4 #thyroid hormone ratios and low-range Free T3 in thyroid patients' blood. Read the article. Blood #T3 is essential to tissues that rely less on local T4-T3 conversion. https://t.co/vosDwBeoat

[Thyroid Patients Canada @CanadianThyroid]

The two most pervasive, limiting, and potentially harmful presumptions about #T3:T4 hormone ratios in #thyroid science today are cherry-picked factoids. They often support medical-ideological positions and pharmaceutical prejudice rather than human health. https://t.co/ryPZvdqmA1

[Thyroid Patients Canada @CanadianThyroid]

A 1990 study by Pilo et al is a major source of two #thyroid T4:T3 hormone ratios. Many misunderstandings of thyroid hormone conversion rates are behind the drive to dismiss Free #T3 testing. https://t.co/vosDwBeoat

[Thyroid Patients Canada @CanadianThyroid]

What are the implications of £47M pharma research money being funnelled through "patient" organizations in 5 yrs? Do patients co-manage research? Decide on which questions to ask, which drugs to study, and how? Who funds the hard work of patient support groups?

[Dr Aseem Malhotra @DrAseemMalhotra]

Oh dear. BMJ investigation reveals ‘patient’ organisations including Cancer ‘research’ UK (Pfizer) and Alzheimer’s ‘research’ UK (Lilly) received £57 million from the drug industry between 2012-2016.
#systemfailure #BadPharma #NHS

[Thyroid Patients Canada @CanadianThyroid]

@DrPeteTaylor @ThyroidTrust @thyroidie @simonhspearce @ThomasAgoritsas @Soc_Endo @BMJPatientEd @bmj_latest My rapid response letter & 16 references in response to the new subclinical #hypothyroidism guidelines was just published today in the British Medical Journal today. Hope it helps inform and persuade. - Tania S. Smith https://t.co/l8QnRsWNKO

[Thyroid Patients Canada @CanadianThyroid]

Letter on #thyroid diagnosis published in British Medical Journal today in response to the new subclinical hypothyroidism guidelines. "Surely medicine wishes to prevent harm. Identify the genuinely hypothyroid patients in this category." 16 references. https://t.co/l8QnRsWNKO

[Thyroid Patients Canada @CanadianThyroid]

Rhetoric is not a derogatory word. How can rhetoric aid #thyroid therapy change? Well, How has rhetoric struggled to end slavery? How does rhetoric build communities and shape laws? Good rhetoric digs deep into truth and builds. Bad rhetoric lies and divides.

[Thyroid Patients Canada @CanadianThyroid]

"When you're down, someone else can stand up for you." My message of hope for all #thyroid patients who desire improvements to their own thyroid therapy, and all who desire to see improvements for everyone's thyroid therapy. This is not just YOUR private struggle. It is OURS.

[Thyroid Patients Canada @CanadianThyroid]

Why say there's ONE single "physiological" ratio for T3 and T4 in our medication? #Thyroid science proves there's wide ranges even in health. The human body uses TSH and T4 to protect #T3. Loss of thyroid tissue + static dosing = loss of flexibility. https://t.co/ryPZvdqmA1

[Thyroid Patients Canada @CanadianThyroid]

Question the #T3:T4 ratios that are commonly cited in discussions of #thyroid therapy. What research are they based on? Are they being taken out of context? Which thyroid ratios, levels and ranges matter the most for human health? New series launched. https://t.co/ryPZvdqmA1

[Thyroid Patients Canada @CanadianThyroid]

Thank you @Thyroid_Twins I've just read your book "#Hypothyroidism in childhood and adulthood." Highly recommended. Enlightening re symptoms, measurable signs, hormone levels, and how it deeply affects our lives. https://t.co/lv7nQvj1Xx link: https://t.co/4nUVDu3EoE