thyroidie

#andmeT3

[The Thyroid Trust @ThyroidTrust]

Shocking news re new CMA investigation into medicines pricing. Now wholesalers are provisionally found guilty of price fixing with pharma manufacturers. Meanwhile liothyronine price issues remain unresolved too and thyroid patients continue to be harmed.

[Tara @aratenaj]

So grateful @MichaelRosenYes is interested in thyroid disease. Most people don't understand how much it affects people's lives, especially as many are poorly treated. Also many are refused the drugs they need #andmeT3

[ESE_President @EsePresident]

@NinjaThyroid @ThyroidTrust You are doing great job @NinjaThyroid @ThyroidTrust in advocate for patients with #hypothyroidism! This is severe disease which affects life of many persons and #LT4 #T3 therapy mandatory! Inappropriate use of #thyroid hormones e.g. for #weightloss detracts from their reputation

[ESE_President @EsePresident]

@ThyroidTrust True! As @ThyroidTrust correctly said #hypothyroidism #Hashimoto may occur at every age and in both sexes! Social costs #healthsystems are very high! Quality of life crucial also in "subclinical"! I won't giveup @EsePresident to raise awareness join forces fight #DiagnosticDelay

[ESE_President @EsePresident]

#Hypothyroidism #Hashimoto #DiagnosticDelay due to systemic symptoms not directly pointing to #thyroid! Patient seen by many specialists #cardiologist #neuropsychiatrist #dietologist #GI and by #endocrinologist after failure of specific treatments #statin #antidepressants #diet

[Tara @aratenaj]

Such a professional survey. Thank you ITT so much for this. NICE need to understand the depth of feeling from thyroid patients about the lack of understanding of drs. Patients deserve better.

[Improve Thyroid Treatment @campaign_itt]

As a reminder, the survey results presentation can be located here: https://t.co/rYgo2Ykyfo

The executive level summary of the survey findings can be located here: https://t.co/eDA1lXzN53

If you would like quick access to all 3 documents, click here: https://t.co/PCMaDYmDmZ

[Improve Thyroid Treatment @campaign_itt]

If you would like to read our formal response to the NICE Draft Guideline on thyroid disease, you can do so by clicking this link:
https://t.co/wLKb6gvE10

Thank you to everyone who helped contribute to our response including the 2022 people who filled in our survey! ❤️🦋

[Thyroid UK @thyroiduk_org]

We are pleased to see that @Britishgenerics and @OxeraConsulting are happy with their report on generics. Unfortunately, thousands of thyroid patients are not happy with one generic - https://t.co/fM8VcBW8qv

[Samantha Evans💙 @SamTalksSex]

Gender bias in healthcare is killing women and has to stop. We need a campaign to educate women so they recognize symptoms, seek medical advice and refuse to be dismissed by HCPs because our symptoms aren't classic text book symptoms @TheBHF @paulasherriff

[Dr Louise Newson @drlouisenewson]

Have you booked your place on our "Confidence in Menopause: a practical approach to primary care" educational event in September? This event is for healthcare professionals to gain a better understanding of #menopause. Click here to register your place: https://t.co/taYpiytH6O

[Pete Taylor @DrPeteTaylor]

Good to see the mail covering the T3 and subclinical hypothyroidism issues again

[Tara @aratenaj]

Very hard work to submit this response to NICE. Let's hope they really will finally take notice of thyroid patient groups.

[Tara @aratenaj]

Absolutely right. We are given a choice of one drug. And ignored if it doesn't work. There IS a choice, so why are we denied it? #andmeT3

[Society for Endo @Soc_Endo]

Article highlighting issues with #hypothyroid treatment in the UK. Despite the headline! @britishthyroid @DrPeteTaylor @ThyroidTrust https://t.co/3nYee2mrMK

[Tara @aratenaj]

Trivialising sub headline. But good content. These patients suffer awful symptoms but are denied the drug the need. Because NHS pays a huge price for a drug that's cheap elsewhere. WHY? @MattHancock we are STILL asking for your help #andmeT3

[Tara @aratenaj]

Rather trivialising headline but a big article to publicise the liothyronine scandal @MattHancock Please help.. we keep asking you.. #andmeT3

[The Thyroid Trust @ThyroidTrust]

If you are on long term levothyroxine therapy and your doctor will only prescribe for 1 or 2 months supply at a time, you might find this article worth sharing with them. From @britishthyroid newsletter 70 https://t.co/6qAURMP2k8

[Improve Thyroid Treatment @campaign_itt]

THE RESULTS ARE IN!
We recently asked you to complete a survey to help ITT formulate a response to the NICE Draft Guideline, Thyroid disease: assessment and management.

To access the FULL SURVEY PRESENTATION (or Executive Summary if you prefer) click 👇🏼

https://t.co/NzXeUwe5YD

[thyroidie @thyroidie]

@DrPeteTaylor @Endo_Editor @Soc_Endo @britishthyroid @ThyroidTrust @thyroiduk_org results of the survey on NICE draft now in. I do on T3 de prescription @LordPhilofBrum Most concerning is time off work and patient view that NICE does not deliver

[Improve Thyroid Treatment @campaign_itt]

THE RESULTS ARE IN!
We recently asked you to complete a survey to help ITT formulate a response to the NICE Draft Guideline, Thyroid disease: assessment and management.

To access the FULL SURVEY PRESENTATION (or Executive Summary if you prefer) click 👇🏼

https://t.co/NzXeUwe5YD