Holly Carmichael

Wife, Mom, Boss, #DisabilityRights & #raredisease Advocate, former CEO @gtindependence, co-founder @epalrestat, here to change the world.

[Holly Carmichael @CarmichaelHolly]

I promise I was smiling most of the game! Go Lions!! 🦁

[ERM__ SPACEX_ MANAGEMENT @Cc_Jennifer_]

Lions fan of the Day…

[Holly Carmichael @CarmichaelHolly]

@i000 @eperlste The parent was reporting progress observed by a blinded therapist and prefaced with a statement that more observation is needed.

[Holly Carmichael @CarmichaelHolly]

@i000 @eperlste Gaslighting parents that they don’t know what they see and observe in their own children when they have by far spent more hours than anyone with the child is horrific.

[Holly Carmichael @CarmichaelHolly]

Our public education systems are failing students with disabilities. We can and should do better @usedgov, @mieducation, @GovWhitmer, @POTUS, @KamalaHarris, @SecCardona.

[Holly Carmichael @CarmichaelHolly]

Actual response from a public school when requesting a reasonable accommodation under the ADA:

“As a student with a disability, Maggie is entitled to equal access to the District’s programs, activities, and services. That access, however, is governed by Section 504 …

[Holly Carmichael @CarmichaelHolly]

doing so would fundamentally alter the nature of the service, program, or activity being provided.”

This site gives a great description and breakdown of the applicability of disability rights laws in public schools:

https://t.co/DH5KDJ2hvo

[Holly Carmichael @CarmichaelHolly]

standards in the new construction and alteration of their buildings. They also must relocate programs or otherwise provide access in inaccessible older buildings, and communicate effectively with people who have hearing, vision, or speech disabilities.

[Holly Carmichael @CarmichaelHolly]

opportunity to benefit from all of their programs, services, and activities (e.g. public education, employment, transportation, recreation, health care, social services, courts, voting, and town meetings). State and local governments are required to follow specific architectural

[Holly Carmichael @CarmichaelHolly]

FYI - school districts please note, it’s not just “one kid”.

#disabilityrightsarehumanrights

[Andy Imparato @AndyDRC]

What federal education data shows about students with disabilities in the U.S. https://t.co/eZsxmAD0Kg

[Holly Carmichael @CarmichaelHolly]

@Tom_R_Webb Deepest condolences. Your love and admiration of her are evident. My heart goes out to you. ❤️

[Holly Carmichael @CarmichaelHolly]

Read our blog on the topic here:

https://t.co/zzKa2czSSx

[Holly Carmichael @CarmichaelHolly]

Thank you @ADvancingStates for sharing “In A Day” with a family caregiver. As states unwind from the PHE they have a critical choice of whether to permanently add options for family caregivers to be paid for the services they provide.

https://t.co/pkrvG1f7su

[Holly Carmichael @CarmichaelHolly]

@gtindependence sat down with Melissa to talk more about this topic in our virtual @AppliedSD presentation.

https://t.co/fBYSB5OdIf

[Holly Carmichael @CarmichaelHolly]

@AppleHelix You forgot a key player. The patients!

[Natali Fili @NataliFili]

Our daughter has been diagnosed with this rare brain cancer, DIPG. Due to its rarity, available data and treatment options are limited! Please retweet and If you are aware of any trials, please get in touch! Thank you!

[Holly Carmichael @CarmichaelHolly]

Godspeed brother - no trial but this link holds invaluable information on laying out a path: https://t.co/p3NR8emnqr

[Chris Toseland @ChrisToseland]

I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with #dipg Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! #braincancer #childrenscancer @CR_UK