Carol L. Binks

Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS

[Prof. Akiko Iwasaki @VirusesImmunity]

Excited to share our study by @keylas3 et al. on pathological autoantibodies in people with Long COVID. We asked whether IgG in patients with Long COVID bind to human tissues/antigens and cause pathologies when transferred into mice. With @PutrinoLab

https://t.co/tcowCufWyf

[Katy B @KatyBruce108]

@patmcfaddenmp Fund biomedical research into #ME urgently, it will lead to treatments for the 400,000 people in the UK who currently live with ME, that's how the government can help us to change our lives.
Until there are treatments for this life destroying disease, change won't be possible.

[Carol L. Binks @carolbinks]

@BBCMorningLive this morning. A considerable improvement on the last piece on #ME, thank you, but a shame they didn’t even touch on severe, or very severe ME, young children with ME, or how it can be fatal.
Thanks, as always, to Adam, @ABrokenBattery for providing this clip …

[Adam @ABrokenBattery]

BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.

Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.

[davidtuller @davidtuller1]

A recent paper made a categorical assertion about the cause of functional neurological symptoms. This definitive statement is unwarranted, given the state of the evidence. I have written to the journal asking for the sentence to be corrected: https://t.co/qEBk1TdbSR

[Cat in the Hat 🐈‍⬛ 🎩 🇬🇧 @_CatintheHat]

Incredible speech delivered by Baroness Linforth in the House of Lords today calling for clean indoor air in schools.

“It would cost less than a tenner per child per year to provide pupils and staff with clean air - about the same cost as a coffee and a cake.”

☕️🧁

[Carol L. Binks @carolbinks]

Excellent! Thank you, @PhysiosForME …

[Physios For ME @PhysiosForME]

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!)
https://t.co/CUyrkLSv1Q

[#MEAction Network UK @MEActNetUK]

𝗡𝗼 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁, 𝗻𝗼 𝘄𝗮𝗿𝗱, 𝗻𝗼 𝗡𝗛𝗦 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. 𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝘀𝗲𝘃𝗲𝗿𝗲𝗹𝘆 𝗶𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗠𝗘 𝗵𝗮𝘃𝗲 𝗻𝗼𝘄𝗵𝗲𝗿𝗲 𝘁𝗼 𝗴𝗼. #MillionsMissing 2026 read our article & our templates to contact MP https://t.co/EA5JURWQek.

#VerySevereME

[charlos @loscharlos]

"The third misconception is that people don't get #LongCovid anymore... we still see plenty of people who develop long COVID after their second, third, fourth, fifth, episode of COVID." — @MichaelPelusoMD https://t.co/dZA9Sph7Z1

[Sten Helmfrid 🇺🇦 🇬🇱 @StenHelmfrid]

Berkeley’s Crowdfunding Autumn 2026 in support of Dr. David Tuller’s project “Trial by Error” has reached 86% of its target. One day to go! These are the final six months of Dr. Tuller’s project. Let’s give him a push over the finishing line! #MECFS https://t.co/Vlk7dSMMsn

[ME Research UK @MEResearchUK]

Researchers have published a study investigating the experiences of people with ME/CFS, using information from memorial records—documents created to honour and preserve details about a deceased person. Read more about what they found here: https://t.co/Zkx4e7bMN7

[Adam @ABrokenBattery]

Exercise is not beneficial for everyone. Graded exercise therapy was the dominant treatment for #MECFS for years, but NICE withdrew it in 2021 after finding no reliable evidence it was effective, the research was flawed, and there was considerable evidence of harm.

[davidtuller @davidtuller1]

yeah, right? I wrote about it here: https://t.co/9CbjyIlD10

[Carole Bruce @CaroleBruce17]

The response to two Member’s questions about ME in the House was pathetic.
‘integrated care boards (ICBs) should continue to commission appropriate services for patients with very severe #ME/CFS as needed.’ Sharon Hodgson MP
There are no appropriate services, none. Disgusting!

[davidtuller @davidtuller1]

More than 17,000 people have viewed this post. So far, Berkeley's crowdfunding campaign for my project, Trial By Error, has received 566 donations. If you'd like to help get that just a bit closer to 17,000 (ha!!!), here's the link: https://t.co/Ad1zvdxXd4

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Excellent resource. Deserves to be better known. #MyalgicEncephalomyelitis #MECFS #MEAwarenessMonth

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

ME Awareness Week is approaching. I don't know that there's anything I can say that I haven't said before. A lot of progress *has* been made but acceptance and understanding by the whole medical profession and effective treatments for all patients are still a long way off. #MECFS

[Katy B @KatyBruce108]

This is why @davidtuller1's work matters so much,
he's spent 10+ years confronting those who've inflicted so much harm on #pwME & #LongCovid & doing the essential work which others wouldn't do.
Please donate if you can & share
https://t.co/RZMEpYsscy

[davidtuller @davidtuller1]

For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: https://t.co/Ad1zvdxXd4

[davidtuller @davidtuller1]

The post below has viewed more than 15,000 times. The current crowdfunder for Berkeley's Trial By Error project has received 428 donations. If you'd like to contribute, here's the link:
https://t.co/Ad1zvdxXd4

[Carole Bruce @CaroleBruce17]

My neighbour Barbara aged 101 saw the programme on Sunday and was absolutely shocked at the number of people suffering from #ME. She knew me even before I became ill but it hadn’t really sunk in. She has most generously sent me a donation to pass on. I’m incredibly moved.