Joy Berwald

Working mom, always on the go with a medically complex kiddo among the 4. Mostly here to add commentary when @joshua_boe posts. 🤣
She/her

[Joy Berwald @carpearticulus]

@sweetcarolinatv @MissChris614 @clarajseverson Medically that is what it is considered, regardless of the reason.

[Joy Berwald @carpearticulus]

@RayChas52 @joshua_boe Spouse here- can confirm that the non Bougie part of SP is VERY close to the bougie part- governors mansion is walkable from many parts of Midway/Union park, he actually was known to utilize
The Midway YMCA years ago.

[Joy Berwald @carpearticulus]

@itsxamie Halloween at the governors mansion isn’t exactly private family lives. This is a long standing destination spot for St Paul and surrounding area kids, but Walz has been much more festive and fun than governors of the past.

[Joy Berwald @carpearticulus]

@HonorBlueLapels @derekwebb Funny. To minister as a verb means to “tend to the needs of” and pretty sure there’s lots of folks (myself included) who have found a space to hypothesize about their faith and felt seen by @derekwebb thanks to his music today. “Out of love” is just an excuse to judge.

[Joy Berwald @carpearticulus]

@ThomasDierson @joshua_boe Where do you live? King Sealy posturpedics are pretty easily found under 1k in our area.

[Joy Berwald @carpearticulus]

@RayTempleton @joshua_boe @StellerHairCo Delete your comment asshole. She’s having brain surgery and requested this hairstyle to show off/embrace her scars because she is a better human than you can ever hope to be.

[Joy Berwald @carpearticulus]

@Alisha12287 @joshua_boe Yes! They have some kind of sweet alliance- one year old will literally demand more of whatever we are eating, then deliberately feed it to the dog the moment we turn around. Dog will let 1 yo use him to walk and all kinds of other shenanigans most dogs wouldn’t tolerate. 😂

[Joy Berwald @carpearticulus]

@CXRYNWA @joshua_boe Science says it is though, meta analysis of numerous studies shows the same receptors of the brain are activated and that there are no significant differences in comprehension outcomes in one vs the other. For many, audiobooks are more accessible for a myriad of reasons.

[Joy Berwald @carpearticulus]

@Peril_in_Pink @AliLozoff Once you are looking at vehicles to fit more than 7/8, it’s white because that’s what will be available off the lot for “people movers.” If you have a gathering with a lot of big families it’s going to be a lot of white Ford Transits by necessity.

[Joy Berwald @carpearticulus]

@JennXMommie @joshua_boe Good-ish. The O2 overnight seems to be helping, but we don’t know why!

[Joy Berwald @carpearticulus]

@LaMonsterMom @joshua_boe And to answer the initial question- no, originally everyone was assuming his respiratory symptoms were CNS driven but MRI was clear so…

[Joy Berwald @carpearticulus]

@LaMonsterMom @joshua_boe So I just looked that up and am now quite curious because his older sister with some medical complexities ticks a lot of boxes as well but currently get respiratory and ent issues are managed as separate things. Would that have been ruled out since she had WES testing?

[Joy Berwald @carpearticulus]

@invisiblegirl99 @joshua_boe Yeah- it’s really more a triggering timing- Joshua is pretty on top of celebrating/honoring outside of fabricated holidays! w”We just have had two other really traumatic hospitalizations for big sister the same week!

[Joy Berwald @carpearticulus]

@ABKinSTL @joshua_boe Oh yeah- this is actually our second time down this road with a kiddo so we’ve navigated a lot more outpatient than they usually would because of those connections and things we’ve learned to try!

[Joy Berwald @carpearticulus]

@DrCWebbDO @joshua_boe In her case- Chiari malformation and hydrocephalus- deemed somewhat complex because of connective tissue disorder and adrenal insufficiency so her trajectory has had a slew of the unlikely critical complications come to fruition but is doing well now!

[Joy Berwald @carpearticulus]

@themessreg @joshua_boe We’ve dealt with neurosurgery with one of our other kiddos so oddly in this case the theory was more manageable than a lot of what genetics is suggesting/ testing for right now!

[Joy Berwald @carpearticulus]

@ruth_iowa @joshua_boe He’s getting a pretty thorough work up with a slew of specialists because those “usual suspects” have been ruled out already and he has some additional red flag symptoms!

[Joy Berwald @carpearticulus]

@lyssazim @joshua_boe Working with genetics and they have some theories we are waiting for results on!

[Joy Berwald @carpearticulus]

@Eloewien @joshua_boe 1000% in this case besides the FTT he has a few different symptoms that scream brain stem/central nervous system dysfunction so dead ends make it seem like there may not be a solution

[Joy Berwald @carpearticulus]

@ElisaGabrielli1 @joshua_boe Yes! One of his siblings has a quirky history as well and he has some other “red flag” symptoms so they’ve got a few different labs out that will be back in a few weeks with plans for WES