Every year, @Nemours@cditro, APRN, DNP. CPNP, takes personal time to staff Camp Seneb. Camp is for kids w/ #skeletaldysplasia & their siblings. Everyone enjoys daily activities, bunking together in cabins, & coming together for mealtime. Best of all, it’s all #unplugged fun.
As we recognize #RareDiseaseDay, @WilliamGMacken1, Chairman of the Department of Orthopedics at Nemours Children’s Health, shares why this day is so important to Nemours, and to many families around the world. #MedTwitter
A longtime patient of ours since he was a baby, now he is almost 16 years old! After multiple surgeries, he has a great outlook on life! #nemours#diastrophicdysplasia
Charlie, 10, has Thanatophoric #Dysplasia, a form of #dwarfism. He's needed a tracheostomy, ventilator, and a few other interventions along with way. At 8yo, he came off the ventilator, and he's now breathing completely on his own! Learn more at https://t.co/G9oD5cKUeJ.
October is #DwarfismAwarenessMonth. We would like to celebrate our many wonderful patients and families who share a #dwarfism diagnosis. Dwarfism is characterized by short stature, with hundreds of different causes. Learn more here: https://t.co/eW4tNTWjbR