CDK13 Genetic Disorder

This is the Twitter page for CDK13 Genetic Disorder.A rare genetic condition identified in 2016 & just 280 confirmed cases w/wide.Set up & run by Parent/Carers.

[CDK13 Genetic Disorder @Cdk13D]

This is the link to Our #CDK13 Community #facebook page. Through this page new cases/parents/carers can in turn join Our private group page to connect and support each other. #StrongerTogether
https://t.co/0rUKfyNQu7
or email [email protected]
#cdk13geneticdisorder

[SuperheroSeries @SuperheroTri]

KABOOM! Who's excited for Superhero Tri powered by Marvel?! You can walk, run, wheel, push or however you see fit. How will you face you race? Sign up now & save the day!! #findyourpower https://t.co/IoNlJh6CN9

[SuperheroSeries @SuperheroTri]

POW! Here at Superhero Series, anything goes! Whether you take on your At Home Superheroes mission OR flex your powers at Superhero Tri, you are all true Superheroes! Who's signed up already? #findyourpower https://t.co/IoNlJh6CN9

[SuperheroSeries @SuperheroTri]

POW!! So exciting!! We’ve had 2 more SUPER ENTRIES to be with in a chance to race with of our Super Team Captains. Make it your mission today!! https://t.co/IoNlJh7aCH #findyourpower

[Lottie Morison @Lottiedmorison]

Pre-print for “#CDK13-related disorder: a deep characterisation of speech and language abilities and addition of 33 novel cases” available now: https://t.co/SbRfRETeJz

[CDK13 Genetic Disorder @Cdk13D]

Families from France, Germany, Canada and US have just joined our #supportgroup taking numbers of confirmed cases to 274 worldwide. #cdk13 #cdk13geneticdisorder #rare #genetics #StrongerTogether

[CDK13 Genetic Disorder @Cdk13D]

Another family joins our #supportgroup taking the groups confirmed cases to 270 ! #cdk13 #cdk13geneticdisorder #cdk13geneticmutation #genetics #rare #TogetherStronger

[Lottie Morison @Lottiedmorison]

Just published in @ejhg_journal ➡️ #CDK13-related disorder: a deep characterization of speech and language abilities and addition of 33 novel cases. https://t.co/mbQECX1pLA 🧵1/4

[CDK13 Genetic Disorder @Cdk13D]

Families from Germany, US and UK have joined today taking numbers of confirmed cases in our support group to 267 ! Contact details are in the pinned tweet. #stongertogether #cdk13 #cdk13geneticdisorder #cdk13geneticmutation #rare #supportgroup #support #genetics

[SuperheroSeries @SuperheroTri]

POW!! What a line up & we still have more to come!! Enter our Super Celeb Team Captain Competition and bag yourself one of these awesome Captains. https://t.co/IoNlJh6CN9 #findyourpower

[SuperheroSeries @SuperheroTri]

KAPOW!! Superhero Tri wouldn’t be the same without the Super Celeb Team Captain @Anne200solo ENTER our Super competition now to have a chance to be with this super cycling powerhouse !! https://t.co/IoNlJh6CN9 #findyourpower

[CDK13 Genetic Disorder @Cdk13D]

We have welcomed another family from the US. 261 confirmed cases worldwide ! #CDK13 #cdk13geneticdisorder #genetics #rare #supportgroup #StrongerTogether

[CDK13 Genetic Disorder @Cdk13D]

Another family form the US joins our support group taking our numbers to 260 confirmed cases worldwide. #cdk13 #cdk13geneticdisorder #cdk13supportgroup #supportgroup #genetics #rare #StrongerTogether

[CDK13 Genetic Disorder @Cdk13D]

We have welcomed to Our #supportgroup our first family from Chile! We are now 246 families strong. #cdk13 #cdk13geneticdisorder #strongertogether #rare #genetic

[CDK13 Genetic Disorder @Cdk13D]

Over the last few hours Our #SupportGroup has welcomed another 5 families from France, Australia, Italy and US. #CDK13GeneticDisorder #StrongerTogether #Genetics #Rare

[CDK13 Genetic Disorder @Cdk13D]

Today is #cdk13geneticdisorder #awarenessday !!! #awarenessday2022 #cdk13 #cdk13geneticmutation #genetics #rare #disorder

[CDK13 Genetic Disorder @Cdk13D]

We have just welcomed family no.233, and the first family from The Philippines! #cdk13 #cdk13geneticdisorder #cdk13geneticmutation #supportgroup #rare #genetics #StrongerTogether

[CDK13 Genetic Disorder @Cdk13D]

Toby Keith gets a shout-out from young girl in her own health battle. https://t.co/TqTdP0JZaj via @YouTube
#CDK13 #CDK13geneticdisorder #tobykeith @tobykeith

[CDK13 Genetic Disorder @Cdk13D]

Two more families from Australia and Poland have joined our #supportgroup,taking our numbers to 230 confirmed cases worldwide. #cdk13 #cdk13geneticdisorder #cdk13geneticmutation #genetics #rare #strongertogether

[CDK13 Genetic Disorder @Cdk13D]

Another 2 families from Spain and Luxenbourg join our support group. This takes us to 228 confirmed cases worldwide. #StrongerTogether #cdk13 #cdk13geneticdisorder #cdk13geneticmutation #genetics #rare #supportgroup

[CDK13 Genetic Disorder @Cdk13D]

Family number 226 joins our welcoming support group. Another family from the UK !! #cdk13 #cdk13geneticdisorder #genetic #support #strongertogether