LEMS Aware

LEMS Aware provides patients and caregivers with the tools, information, and community support needed to navigate Lambert-Eaton myasthenic syndrome (LEMS).

[LEMS Aware @BeLEMSaware]

June is MG Awareness Month, & @MyastheniaOrg is shining a light on this often‑overlooked autoimmune disease. Lambert-Eaton myasthenic syndrome (LEMS) can cause extreme fatigue & significant muscle weakness, & MG is often mistaken for it: https://t.co/KQpRDQ8urO

[LEMS Aware @BeLEMSaware]

Jamie, who lives with Lambert-Eaton myasthenic syndrome (LEMS), believes that so much of this journey comes down to perspective. As she’s learned to navigate life with this condition, she’s discovered new strengths.

Read more of Jamie's story: https://t.co/5chK7cbYy1.

[LEMS Aware @BeLEMSaware]

Greg's life has changed being unable to work. One thing he has learned is to ask for help to prevent himself from just caring for everyone else's needs and putting himself second.

Check out his story and his tips for living life with #LEMS here: https://t.co/ZJCAarAg8U

#blog

[LEMS Aware @BeLEMSaware]

Emily, a mom living with Lambert‑Eaton myasthenic syndrome (#LEMS), kept careful notes about her symptoms, doctor's visits, and tests. Her story is a reminder: your voice matters, and advocating for yourself is always worthwhile: https://t.co/XqoQ4W6szx.

#raredisease

[LEMS Aware @BeLEMSaware]

Getting a #LEMS diagnosis doesn’t mean you have to put your life on hold. With the right care and some attention to smaller challenges, you can often move forward much like you did before. Be sure to talk with your doctor first and learn more: https://t.co/Ur2UO9mdpM.

[LEMS Aware @BeLEMSaware]

Rich, a former police dispatcher, shares his experience of being diagnosed with Lambert‑Eaton myasthenic syndrome (LEMS), and what it meant to finally receive treatment. Listen to Rich’s story and learn more about LEMS: https://t.co/YXND6aXXbT.

#LEMS #raredisease

[LEMS Aware @BeLEMSaware]

We recently attended the 2026 @MyastheniaOrg's National Patient Conference, introducing a new resource: a brochure featuring a word puzzle designed to reflect the many pieces that often need to come together to reach a LEMS diagnosis: https://t.co/pvydtUT9Gp

#Advocacy

[LEMS Aware @BeLEMSaware]

We recently returned from the @MyastheniaOrg's National Patient Conference, where we had the opportunity to connect with dozens of individuals living with seronegative myasthenia gravis (MG). These firsthand stories directly shape the resources we create: https://t.co/hNPbc4k5zQ

[LEMS Aware @BeLEMSaware]

In this episode of the LEMSaware podcast, we spoke with Peter to explore his Lambert-Eaton myasthenic syndrome (#LEMS) journey. Peter is determined to prove that LEMS hasn't defined his limits.

Listen to more: https://t.co/zt583tdiMU

[LEMS Aware @BeLEMSaware]

Information is empowering. If you’re living with LEMS or suspect you might have #LEMS, visit https://t.co/JNl9BdX4jg to learn more and take the next step toward support.

[LEMS Aware @BeLEMSaware]

For those living with Lambert-Eaton myasthenic syndrome (#LEMS), we've made it easier than ever to find helpful information on the disease, treatments, and financial assistance. Head over to our site & find the resources you need on Catalyst Pathways®: https://t.co/wEhIP8p3QG

[LEMS Aware @BeLEMSaware]

“There’s a difference in attitude.”

This is how Karyn, who has been living with Lambert-Eaton myasthenic syndrome (#LEMS) for 12 years, accepts her diagnosis.

Listen to her story in the #LEMSaware episode: https://t.co/H5hucQoOyg

[LEMS Aware @BeLEMSaware]

Do you know the differences between Lambert-Eaton myasthenic syndrome (#LEMS) and myasthenia gravis (#MG)? They have numerous symptoms that separate them. Think you might be misdiagnosed? Test yourself below and find out more information about LEMS: https://t.co/60PG9BmPi4

[LEMS Aware @BeLEMSaware]

Coordinated care can sometimes make the difference in a patient's life. Tescha, a patient living with Lambert-Eaton myasthenic syndrome (#LEMS), emphasizes how important it is for her doctors to communicate across specialties. Learn more: https://t.co/ipgD8ndRcf

#raredisease

[LEMS Aware @BeLEMSaware]

March 30th was #LEMSAwarenessDay, a day to spotlight Lambert‑Eaton myasthenic syndrome (LEMS). Members of our Catalyst team joined The Lambert-Eaton Family Association's call to wear yellow & help bring greater awareness to the LEMS community. Learn more: https://t.co/V4kn0VkQpg

[LEMS Aware @BeLEMSaware]

Lambert-Eaton myasthenic syndrome (#LEMS) is often confused with other illnesses, such as myasthenia gravis (MG). For Maria, it took digging into her own research to realize her symptoms actually fit LEMS better.

Hear the full episode on our #podcast: https://t.co/bEfakWFXtd.

[LEMS Aware @BeLEMSaware]

In our LEMS Aware blog post, Jamie gave helpful tips on how your next trip can be easier with a bit of planning if you have #LEMS. Read more here: https://t.co/ock7bixsYd.

[LEMS Aware @BeLEMSaware]

Today, is #LEMSAwarenessDay!
LEMS is a rare neuromuscular disease, and today is all about spreading awareness. March 30th commemorates the important research of Dr. Edward Lambert and Dr. Lee Eaton.

Discover more about LEMS: https://t.co/V4kn0VloeO & https://t.co/VyqxTBMzOj.

[LEMS Aware @BeLEMSaware]

Curious about being a caregiver to someone who is living with Lambert-Eaton myasthenic syndrome (LEMS)? Need to know the symptoms of #LEMS & myasthenia gravis (MG) and what makes them different? We've got a webinar for that!

Watch: https://t.co/sifiwrLVgm

[LEMS Aware @BeLEMSaware]

Living with Lambert-Eaton myasthenic syndrome (LEMS) and on a Catalyst treatment? When living with LEMS, finding support is important, & Catalyst Pathways® is here to help.

To enroll in Catalyst Pathways®, please visit: https://t.co/6TflJ5Zcao