RareByDesign

Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @kegottsleben.

[The Event Company @EventCompanySD]

The Style Show: A Runway to Empower was such an honor to help plan + design.

Rare by Design creates such a unique space to empower voices, bring awareness + encourage inclusivity within our community. Congratulations on an incredible 5th year!

[Minnehaha County Democratic Party @MinnehahaCoDems]

Happy 35th Anniversary to the Americans with Disabilities Act!

[RareByDesign @RareByDesign]

Don’t miss your chance to see your film on the big screen at our beautiful downtown Sioux Falls State Theatre. 📷

Tap the link: https://t.co/uMY1ME0Xcx

#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn

[RareByDesign @RareByDesign]

Thanks for the kind words, Claudia! 📷

Remember that submissions are OPEN! Tap the link to submit. https://t.co/uMY1ME0pmZ

#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn #Disability #RareDisease #Films

[Center4Disabilities @CD_SouthDakota]

Have you registered for our 4th annual Run, Walk & Roll event?!
Join us on September 20, 2025, at Elmwood Park in Sioux Falls, SD. This is a great local 1-mile, 5k and 10k on the bike trail. Learn more here: https://t.co/ms3PXIamH1 #SDCenterForDisabilities #HealthAndWellness

[RareByDesign @RareByDesign]

We are so grateful for @EventCompanySD!

[The Event Company @EventCompanySD]

The Style Show: A Runway to Empower 2025.

What an incredible night of celebrating the rare that makes us all beautiful!

Client: @rarebydesign
Venue: Hilton Garden Inn DT Sioux Falls
Photos: @pinstudiossf

#MidwestEventPlanner #EventDesign #CharityEvent #FashionShow

[RareByDesign @RareByDesign]

We are so grateful for your support and assistance with this event each year.

[The Event Company @EventCompanySD]

The Style Show: A Runway to Empower 2025.

What an incredible night of celebrating the rare that makes us all beautiful!

Client: @rarebydesign
Venue: Hilton Garden Inn DT Sioux Falls
Photos: @pinstudiossf

#MidwestEventPlanner #EventDesign #CharityEvent #FashionShow

[RareByDesign @RareByDesign]

[Video Description] 7 rare disease advocates talking about them being 1 in 10 and sharing the name of their rare disease.

[RareByDesign @RareByDesign]

1/2 Did you know that it is estimated that 1 in 10 people (30 million) in the United States have a rare disease? This year’s #RareDiseaseDay is more critical than ever to increasing awareness & research.

https://t.co/ojVTOwp7OJ

[RareByDesign @RareByDesign]

2/2
Advancing lifesaving treatments & initiatives is vital! Average time to diagnose rare diseases is 4.8yrs & only about 5% of #RareDiseases have approved treatments. We'd love for you to join in recognizing #RareDiseaseDay on Feb. 28 by wearing stripes or rare disease colors.

[Kendra Gottsleben @Kegottsleben]

.@EveryLifeOrg Asks Advocates to Urge your Members of Congress to protect #RareDisease experts, funding, and stability of our nation’s biomedical research and public health agencies. It takes no time at all to do this. https://t.co/gMdUeLPoM0

[RareByDesign @RareByDesign]

3/3
Grab your early bird pricing ticket(s) and other fun add-on items at https://t.co/ahdGYvmU4R.

#InclusionIsAlwaysIn #RepresentationMatters #FashionForAll

[RareByDesign @RareByDesign]

1/3
Meet Cara McGary! You will see her as one of our models at #TheStyleShow on May 3!

Cara is from Sioux Falls, South Dakota, and is currently a freshman at South Dakota State University (SDSU) studying nursing. She is also a cheerleader on the SDSU Cheerleading team.

[RareByDesign @RareByDesign]

2/3
Cara was born deaf. She has cochlear implants in both ears but she prefers her right one.

Cara wants to see you cheering loudly for all the models on Sat., May 3! Let's see if you can accomplish this for her during the runway show by spending the evening with us.

[RareByDesign @RareByDesign]

We are excited to announce that tickets for #TheStyleShow at the Catlin (formerly known as Hilton Garden Inn DTSF) are now available for purchase. This year we have early-bird pricing. Prices will last until March 15!

Snag your ticket(s) at https://t.co/ahdGYvnrUp

[RareByDesign @RareByDesign]

[Video Description] Photos of people with different disabilities in a TV studio in front of a green screen and sitting in studio.

[RareByDesign @RareByDesign]

Today we shot video footage for our Tradition of Caring commercial with @keloland! We had a wonderful time with the #Keloland crew as we filmed. Our team is incredibly excited to see the final product.
#InclusionIsAlwaysIn #RepresentationMatters
https://t.co/wVM5wShSsh

[RareByDesign @RareByDesign]

#ModelMonday
Let's meet our next model who will join us on our #TheStyleShow runway this May 3!
Derek Smith lives in Sioux Falls, SD, and has a dog, Jaxon. He works at @joingreatlife Fitness and Performance Center and loves to... https://t.co/C0ZOYZLNqN
#InclusionIsAlwaysIn

[Neena Nizar @NeenaNizar]

Rare disease research is already underfunded. Cutting indirect costs only worsens the situation, jeopardizing the very science that leads to breakthroughs. How can we expect innovation when the basic support for it is stripped away? @doge #SaveScience #RareDiseaseTruth

[RareByDesign @RareByDesign]

#FashionFriday
Let’s give it up for Terra Shepherd Boutique & Apothecary! Not only is our team excited to have them back in lineup for #TheStyleShow, but so are our models! Trendy & adaptable clothing is what we like to see. Can’t wait to have our models show off their clothing.