Cystic Fibrosis Foundation - Gateway Chapter

The @CF_Foundation Gateway Chapter serves the #CysticFibrosis community, which includes people with CF and their families and volunteers, in MO and Southern IL.

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

Way to go, Avery, Gabe & Jenna! We’re so proud of you for representing the #cysticfibrosis community virtually and sharing your story with @RoyBlunt & @senhawleypress during @CF_Foundation’s 12th annual Teen Advocacy Day. #CFadvocacy @jennabernstein2 @meporter

[Cystic Fibrosis Foundation @CF_Foundation]

The Foundation awarded up to $5.6M to Microbion Corp. to develop an inhaled antibiotic that could help break down biofilms and kill drug-resistant bacteria in people with #cysticfibrosis. #CFresearch https://t.co/LX9FkRgIlv

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

We're so proud of our #GatewayTogether Pep Rally that went live this morning! Missed it? Don't worry - it's saved on our Facebook page. (The first 15 min are just video intros!) Watch here: https://t.co/fjuaNqTV4W
#CysticFibrosis #CysticFIbrosisAwareness #STL #UntilItsDone

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

@sewlalaleah You are so welcome and thank you for tuning in!!! We do all of what we do for families like yours. Until it's done.

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

After multiple scrimmages, 2-a-day practices, injuries & (a few) calls on the play - the Cystic Fibrosis Sports Network is READY to go live for our #GatewayTogether: Virtual Pep Rally! Go here to watch us live tomorrow at 10 am: https://t.co/NZL8MKFFn7

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

Join us Saturday for #GatewayTogether: A Virtual Pep Rally! We'll feature moments from our #cysticfibrosis community, updates from staff, Great Strides Ambassador & Advisory Board Chair, & the voice of @StLouisBlues @paguytom & @LouieSTLBlues!
RSVP here: https://t.co/qVXvkgjzbt

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

#Cysticfibrosis is a life-threatening genetic disease that affects the lungs & makes it hard to breathe. #CFawareness https://t.co/jCYDM5IlZr

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

We wouldn’t be able to put on such a successful CF Cycle For Life event each year without amazing backing from some of our local bike shops. Thanks @bikestopcafe and @bigsharkstl for your long-time support of our ride. #ThankYouThursday #RidingForACure

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

CF mom Deidre Burke is hosting a virtual chat where those who are caring for people with #cysticfibrosis can find support by connecting with fellow members of the CF community. Advance registration is not required but you can here: https://t.co/WXLpZFCD3x #STL

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

We’re proud to announce this year’s Gala CF Ambassador is Marjorie!
On Nov. 13 @RitzCarlton help us "Follow the Yellow Brick Road: Path to a cure”
@ExpressScripts is our honoree as 20-year presenting sponsor
We’ll celebrate Emerald City-style in Nov. For now, #StayHome #SaveLives

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

.@RoyBlunt @hawleymo People with #cysticfibrosis shouldn’t have to choose between their health and their paycheck during #COVID19. Please act to expand paid leave for people with chronic conditions and their caregivers!

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

Choosing between going to work during #COVID19 or staying healthy is unacceptable. Especially for our community. Join us in asking Congress to expand paid family leave to protect those living with #cysticfibrosis #CFadvocacy https://t.co/kG7E7mifLe

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

There’s no place like home. Stay home. Stay safe. Save CF lives and be on the lookout for a special announcement from the Gateway Chapter next week!

#CysticFibrosis #CFAwareness #StayHome #SaveLives #Covid_19

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

Join us online April 9 at 6 pm as we discuss active approaches to emotional wellness amidst #COVID19
Ginger Birnbaum will share her story & moderate a panel w mental health profs Stephanie Filigno & Shaina Blair on well-being & coping w stress & anxiety https://t.co/HZGjrEQBYd

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

Spread cheer & #cysticfibrosis awareness in your neighborhood!
1. Click below to download a rose template
2. Color the roses!
3. Tape them in your window for your neighborhood to see
4. Post on social media #GrowTheGarden & tag us
https://t.co/qtg3vgWtRd

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

CF Foundation | COVID-19 Updates from Michael Boyle, MD, President and CEO https://t.co/Bbez8x0EDy via @YouTube

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

The last couple of weeks, & days, have been hard. Cancelling trips. Working from home. Closing schools. Social Distancing. There couldn’t be a better time for a hug—a virtual hug, that is. Share this w a loved one who could use one. Here’s one from us, to you.🤗#CysticFibrosis

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

(4/4) Please take care of yourselves and your loved ones with CF... and we will do the same, as we continue to push this mission forward. #CysticFibrosis #CysticFibrosisAwareness #coronavirus #Covid_19

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

(3/4) This will impact our #GreatStrides walks in Columbia, MO; Edwardsville, IL; St. Charles, MO; & #STL. We're working to reschedule these walks & are hopeful they can be held later in 2020. We will be in regular communication concerning these walks & any other affected events.

[Cystic Fibrosis Foundation - Gateway Chapter @CFF_STL]

(2/4) Rest assured, the work of the CF Foundation & the Gateway Chapter continues & our dedication to this mission is unceasing. This is why the Foundation has decided to postpone all CF Foundation events through the end of May.