When you get the call that you’ve been APPROVED for Trikafta, it’s hard to contain your emotions!! My nurse called this morning as I was heading out to the gym. I’m overjoyed, shocked,… https://t.co/PRpeen2PgN
Had a craving for something sweet before I drink my sleepy time tea! My belly can handle the Reese’s without needing an enzyme - woohoo! Yes - I’m like an old lady and drink my tea… https://t.co/4xphXLbaYo
And now for my dinner meds!! I usually divide my ADEK vitamins up (the 3 round ones) but forgot to bring one for lunch. 🤦♀️ oops! #cfstinks#cfawareness#cfirl#medicinetime https://t.co/CRDCG7SxJp
Gym part 2!! I don’t normally go twice in a day but I’m doing a challenge at my gym so I had to get some miles in on the treadmill. I ran/walked/jogged/tried not to die for 4 miles!! 🏃♀️… https://t.co/gUjRMzs7Fq
Had a handful of almonds (no enzymes needed) and a vitamin water after the gym to hold me over for my lunch date with my hubby! #cfstinks#cfawareness#cfirl#getinmybelly https://t.co/VChhW2T19V
Good Morning! Since May is CF Awareness month, I thought it might be fun to show everyone all the pills and treatments I do in a day to stay healthy!
So, here’s how the morning starts. I… https://t.co/eSv4pnCQEA
What a beautiful morning walking for CF!! Largest ever Augusta walk - over $60,000!! And CF Stinks was $12,693!! WOW!! Thank you to all the donors!!!! #cfstinks#greatstrides2019… https://t.co/Kj9c2lHWx6
ToMoRrOw is the day!!!! Never too late to support CF Stinks’ fundraising efforts!! https://t.co/YAnNQQGDhh #cfstinks#greatstrides2019#untilacure https://t.co/viFTETti4q