🦋 DEBRA UK supports people living with epidermolysis bullosa (EB), a rare and painful skin condition.
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: https://t.co/1uDY1IVjK6
#EB#RareDisease#DEBRAUK
First Minister @JohnSwinney met with Graeme Souness and @CharityDEBRA to discuss support for people living with Epidermolysis bullosa.
He reaffirmed @scotgov's commitment to high-quality care in Scotland and wished Graeme success in his upcoming Ben Nevis fundraising challenge.
We’re thrilled to share the incredible news - former Chair of Trustees, Jim Irvine, has been recommended to His Majesty The King for an MBE in the New Year 2026 Honours List for his outstanding services to people living with EB over the past 25 years. 💜
https://t.co/fdkYEKb0Lj
🔬 The protocol for a clinical trial that we're currently funding has been published in a scientific journal & lays out how this trial will study whether apremilast, a drug approved for psoriasis, could help people living with severe EBS.
🔗Read more: https://t.co/H2dPF2wvNr
Proud to stand with @CharityDEBRA and the remarkable work they do for those with EB. A huge thank you to everyone who came together to make this event so special.
Please see further donation details here: https://t.co/a4nvxJj6rx
Every day is an uphill battle for 13-year-old Jasmine Ritchie, who has a rare skin condition called Epidermolysis Bullosa, also known as butterfly skin, which causes her skin to blister and tear at the slightest touch.
Jasmine's mum, Anna, and Grandad Robert took on their own challenge to raise money for those living with the skin disorder by climbing Mount Kilimanjaro.
Anna recalls the experience as Graeme Souness explains why raising awareness and money is so important.
@susannareid100 | @edballs | @CharityDEBRA
@justconfidence Hi @justconfidence, we're really sorry about this - our Greenwich store had to close at short notice on Sunday due to staff shortages. We appreciate you trying to donate and your support means a lot 💜
Brand new challenge launching to help raise awareness for @CharityDEBRA
Read all the details here 👇🏼 and get involved or you can. Few things in the pipeline for me, all will be revealed in the next few weeks! 🦋
https://t.co/MIY9gbXgzo
𝗪𝗶𝗻 𝗮 𝘁𝗿𝗶𝗽 𝘁𝗼 𝗺𝗲𝗲𝘁 𝗧𝗼𝗺 𝗛𝗼𝗹𝗹𝗮𝗻𝗱 𝗼𝗻 𝘁𝗵𝗲 𝘀𝗲𝘁 𝗼𝗳 𝗦𝗽𝗶𝗱𝗲𝗿-𝗠𝗮𝗻 𝟰
https://t.co/bauX3q5i4O
Visit the set for a meet & greet, a tour of the studio, and lunch with Tom. PLUS lots more.
Sweepstakes close 23rd Feb 11:59pm EST, good luck!
JFA CHARITY WALK 🚶♂️ 🚶♀️
The JFA will be doing a 12 mile charity walk from Tiptree to Maldon on the 12th of April!
This aims to raise money for @CharityDEBRA and @mnessexmind
We would love as many people as possible to take part, either from the start or joining along the way.
📣New featured role:
💼Assistant Shop Manager @CharityDEBRA
📍Stockbridge
✍️Deadline: 19/01/2025
💻https://t.co/vljyxAZuxk
DEBRA is recruiting for a friendly and customer-orientated Assistant Manager.
#Careers#JobSearch