CM & SM Australia

A place for those suffering with chiari, syringomyelia and related conditions. The Faces of Chiari:

[CM & SM Australia @chiariaustralia]

@PtsWithPower @HMSACharity Makes you doubt who you are and what you feel. Now people question why I didn’t go to emergency…because when I did reach out for help before I got told to suck it up and did.

[CM & SM Australia @chiariaustralia]

@SydneyDAK Nice hair. That’s about it

[CM & SM Australia @chiariaustralia]

@BasicNeurosurge Broca’s?

[Kira @kirafae]

Despite the research saying at least half of not upwards of 70-80% (research is all over) of People with #chiari having #sleep disordered breathing so few are actually assessed and treated for it. How many symptoms are associated with this or made worse?

[CM & SM Australia @chiariaustralia]

#chiari #invisibleillness

[CM & SM Australia @chiariaustralia]

I have #chiari I am trying my best so please give me some credit and empathy instead of assuming the worst.

[CM & SM Australia @chiariaustralia]

What you don’t see with an #invisibleillness like #chiari and much more.

[CM & SM Australia @chiariaustralia]

The Chiari Song!
©️Chiari and Syringomyelia Australia

#chiari #chiarimalfornation #chiariawareness #arnoldchiari #cmsmaus

[CM & SM Australia @chiariaustralia]

If I could rate 0 stars I would. How would you review/rate Chiari?

#chiari #chiarimalformation #arnoldchiari #chiariawareness

[CM & SM Australia @chiariaustralia]

Having an chronic illness can be very isolating. So being there for your friends and lovers ones so they know they aren’t alone is an amazing gift you can give.
#chiari #chiarimalformation #chiariaustralia #chiariawareness

[CM & SM Australia @chiariaustralia]

How long does it take to get a Chiari diagnosis from when symptoms hit?
#chiari #chiarimalformation #arnoldchiari #chiari1

[CM & SM Australia @chiariaustralia]

September is also Pain Awareness Month. Chiari can be a very painful condition to have. #pain #chronicpain #chiari

[CM & SM Australia @chiariaustralia]

Who will join us wearing a crown to help raise awareness for Chiari Malformation? #chiari #crownsforchiari #chiariawareness

[CM & SM Australia @chiariaustralia]

Mentions Chiari as well. #chiari #take5 #cci #medical

[Kira @kirafae]

Take 5 Magazine Australia this week #cci #chiari #craniocervicalinstability #cciawareness

[Life for Liv @LifeforLiv1]

What an amazing day, Liv has been up and walking about the hospital corridors ! This is a video of her very first short walk, it's the first time she has walked properly for a long time so she was a bit wobbly. Later she took a longer and more confident walk too ! #CCI #EDS

[CM & SM Australia @chiariaustralia]

@Tash_Stanton One day I would love to be asked (politely though) if I had read my own paper. I just wish they had done so politely to you.

[Prof Tasha Stanton @Tash_Stanton]

Friends at conferences - please do not assume that the people that you talk to do not know anything. I just got told that I should read what Stanton et al found about pain.

I. Am. Stanton.

[CM & SM Australia @chiariaustralia]

@GaryJk64 A visible disability usually consists of things like using a wheelchair, having a limb removed etc. So some people’s disabilities can be more externally visible than others. It’s not a look it’s just whether people can see the cues of your disabilities or not.

[CM & SM Australia @chiariaustralia]

It’s Invisible Disabilities Week. Chiari and Syringomyelia defiantly fall under an invisible illness for many. Wear blue and share your stories about what it’s like.
Check their website out

https://t.co/yfNbmWtItE
#InvisibleDisabilitiesWeek #chiari #syringomyelia

[CM & SM Australia @chiariaustralia]

10yr survival rate of 68.6% for those with Syringomyelia in this study of 376 patients. Pneumonia and CHD had a big influence on these numbers. #syringomyelia

https://t.co/AudCxzAMHs