Chiara Lionel 🌹

🇮🇩|🇪🇪 — Psoriasis Advocate | Data Analyst | Beauty Enthusiast | Transverse Myelitis Survivor

[Chiara Lionel 🌹 @chichilionel]

@AliAbdaal Non profit organization for psoriasis in Indonesia that truly creates real changes and impacts to everyone, even in rural areas. #psoriasis

[Chiara Lionel 🌹 @chichilionel]

@AliAbdaal Physiotherapy to fight for my recovery🧡 #transversemyelitis

[Chiara Lionel 🌹 @chichilionel]

being equipped doesn’t necessarily mean coming out unscathed.

[Chiara Lionel 🌹 @chichilionel]

fighting for my recovery isn’t just about gaining back my nerve function that enables me to feel and move, but it’s also fighting to get my life back, my privacy back, my freedom back. #transversemyelitis

[Chiara Lionel 🌹 @chichilionel]

to get closer to "normal" starts by learning to do "normal" activities again. #transversemyelitis #recoveryjourney

[Reuters Health @Reuters_Health]

A safety panel of the European drug regulator on Friday recommended adding a rare spinal inflammation called transverse myelitis as a side effect of AstraZeneca's COVID-19 vaccine. https://t.co/aK5dUirwE9

[Chiara Lionel 🌹 @chichilionel]

it’s the journey after, in the recovery process that seemingly never ending. the agonizing days that turn into months while you work to get better everyday but progress feels so damn slow. add in the looming question of ‘is this as far as i could recover?’ #transversemyelitis

[Chiara Lionel 🌹 @chichilionel]

the hardest part ain’t the excruciating burning pain that was felt at the beginning that left me paralyzed, nor was the first few weeks spent in hospital being poked around, given various medications, and MRIs.

[Chiara Lionel 🌹 @chichilionel]

amidst all of this recovery journey, one thing that i find comforting is reading on novels that went through something similar. it gives my bottled up frustration and silent battles a voice to be heard and to be understood. #ChronicIllness #transversemyelitis

[Chiara Lionel 🌹 @chichilionel]

just as i was starting to finally learn how to dream and chase it, i lost all sense of normalcy and hit the rock bottom without knowing what’s possible and how far could i even get back up. #ChronicIllness #transversemyelitis

[Chiara Lionel 🌹 @chichilionel]

Acknowledging what hurts and uncomfortable, whats lacking and what hasn’t been improving enough do not equal to not being grateful for how far one has come. though frankly, there’s a thin line in between lol #transversemyelitis #chronicillness

[Chiara Lionel 🌹 @chichilionel]

Battling #transversemyelitis is just as much of a mind game as it is a physical game, if not more actually

[Chiara Lionel 🌹 @chichilionel]

we often forget so easily to extend some love and compassion towards ourselves.
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a kind reminder to not be too harsh on ourselves and to validate our feelings, take a little break. it’s okay to not be strong all the damn time🥰 #ChiaraTransverseMyelitisJourney

[Chiara Lionel 🌹 @chichilionel]

had a mental breakdown this morning. my body ache, my back radiated so much heat, everything feels overwhelming, frustrating, and tiring. it’s been 25 days battling through #transversemyelitis

a voice in my head just kept saying one thing: “i’m tired”

[Chiara Lionel 🌹 @chichilionel]

“don’t you think it’s valid and normal to feel tired and exhausted through the battle? would you have tell them that they’re weak and make them feel in the wrong?”
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“it’s valid and no I wouldn’t”, I’d usually answered.
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“then why don’t you allow yourself to feel tired too?”

[newsmerahputih @newsmerahputih]

Penyintas Autoimun Negeri Aing Gemakan Kampanye Se-Asia Tenggara Hapus Stigma Negatif Psoriasis

#merahputihcom #PsoriasisIndonesia #loveyourself

https://t.co/UExsu9mB6Y

[Chiara Lionel 🌹 @chichilionel]

Calling out fellow #psoriasiswarrior in Indonesia, how’s life guys? Let’s connect! #psoriasisindonesia

[Chiara Lionel 🌹 @chichilionel]

OLLA twitter✊🏻 i’m back😂 it’s been … 7 years?