childneph

Canadian Childhood Nephrotic Syndrome Project. A national initiative to improve care and outcomes of children with nephrotic syndrome.

[Chronic Disease Care @ICDC_Research]

If you have a child between 1 & 18 years with nephrotic syndrome we would love for you to join the @Childneph study. Help us build a registry, find the different treatments used across Canada, & find the best way to provide care to our patients. Email [email protected]

[Chronic Disease Care @ICDC_Research]

Why is there practice variation in pediatric nephrotic syndrome and what does that mean for treatment in Canada? https://t.co/B7pdXWZHb0

[childneph @childneph]

@childneph research team is inviting patients and families to help us prioritize research efforts in #nephroticsydnrome https://t.co/S4WDH6vIeM

[Chronic Disease Care @ICDC_Research]

#MotivationMonday CHILDNEPH is a great example of #patientengagement & listening to what patients & families want. https://t.co/A7mIXlS2ZV

[childneph @childneph]

Children with nephrotic syndrome don't have equal access to medications in Canada. @CAPNeph calling for harmonized pediatric drug approvals. https://t.co/U3za7tx15f

[Susan Samuel @drsusansamuel]

Canadian kids with kidney disease deserve equitable access to medication @CSNSCN @CBCHealth @CKRRenal @rheault_m @KidneyCathy @ISNkidneycare https://t.co/RQwOJI27bF

[childneph @childneph]

Why is there practice variation in nephrotic syndrome? Qualitative study of pediatric nephrology providers https://t.co/E7rrdFaXA6 @CAPNeph

[childneph @childneph]

Setting new directions for research in childhood nephrotic syndrome: results from a national workshop in Canada. https://t.co/RTrfzcDtq8

[childneph @childneph]

CHILDNEPH mid-point data will be presented soon at: 1) Canadian Society of Nephrology Meeting May 6 & IPNA Epidemiology Meeting May 25, 2017

[childneph @childneph]

CHILDNEPH study is recruiting patients with steroid sensitive nephrotic syndrome from 12 Canadian centres, and >200 patients are enrolled.

[childneph @childneph]

Follow us on Twitter to get updates of the @childneph study. All @CAPNeph members welcome to attend our next meeting in Montreal on May 4.

[childneph @childneph]

CHILDNEPH is now on Twitter! #bettercarefornephroticsyndrome @CAPNeph @CSNSCN @Nephcure @kidneycanada @CIHR_IRSC @UCalgary @UofCr4kids