Chr18 Registry (EU)

#chr18 Official feed of the Chromosome 18 Registry & Research Society (EU)

[The Conversation @ConversationUK]

Reports reveals that a relentless focus on test results is alienating children with special needs http://t.co/bcTrQ8AOMW

[Ch18Registry @Chromosome18Reg]

Registration is now open for our Annual Family Conference. Check out the details here! http://t.co/dO3TPQaisY

[Jeans for Genes UK @jeansforgenes]

Guest blog: a special Mother's Day message from mum and @JeansforGenes supporter @MrsSaraJJ http://t.co/sM9tfF7wK6

[Department of Health and Social Care @DHSCgovuk]

100,000 Genomes Project has exciting news for those with #RareDisease as 1st patient diagnoses announced #Genomes100k http://t.co/hM9kZEYTc2

[Gene People @GenePeopleUK]

100,000 Genomes Project: first successful patient diagnoses @uniofnewcastle announced today #Genomes100k http://t.co/wmbTsGeKK4

[Gene People @GenePeopleUK]

Gene therapy cures for specific SCID and metabolic conditions with encouraging early results with red blood cells. #gdls2015

[Gene People @GenePeopleUK]

Partner with industry #GDLS2015

[Gene People @GenePeopleUK]

Share with other patient group. It's important to share #GDLS2015

[Gene People @GenePeopleUK]

Stuart Pritchard from @GeneticAlliance and @rarediseaseuk is discussing rare disease strategy #GDLS2015

[Chr18 Registry (EU) @chromo18]

Excited about possible tie ups while @MrsSaraJJ listens to @ZillahBingley between Sparks and @Chromosome18Reg #GDLS2015

[TreehouseAtNumber9 @TreehouseGenies]

Morning all! Please look out for @MrsSaraJJ during coffee breaks today at #GDLS2015 who will introduce you to our Genies @GeneticDisUK

[Chr18 Registry (EU) @chromo18]

Amazing night at #GDLS2015. We can't wait for a jam packed day of info and lovely people. Thanks @GeneticDisUK

[TreehouseAtNumber9 @TreehouseGenies]

On #RareDiseaseDay2015 think about what makes YOU different and #wearthatrarewithpride @rarediseaseday @GeneticDisUK @JeansforGenes

[TreehouseAtNumber9 @TreehouseGenies]

http://t.co/M0PXlWBK6m here's a little blog by our friend and creator @MrsSaraJJ

[TreehouseAtNumber9 @TreehouseGenies]

We love the film #BigHero6 because our Genies want to help as many people as we can too. Download the app to see what superpowers they have.

[Gene People @GenePeopleUK]

A new FREE resource is launched to help kids with #GeneticDisorders! Meet the @TreehouseGenies http://t.co/DkznM5PHNm

[Gene People @GenePeopleUK]

Inspired by our films, @TreehouseGenies is a musical e-book about a gang of friends, the Genies, who all have differences in their abilities

[Gene People @GenePeopleUK]

Download @TreehouseGenies storybook for FREE http://t.co/2pj663kABs +learn more about the gang http://t.co/DkznM5PHNm

[Chr18 Registry (EU) @chromo18]

Today we received the first half of our very much appreciated & dreamed for @JeansforGenes @GeneticDisUK grant. Happy Christmas to you all

[Mark Kirkham @kirky78]

Just 3 more to make 250 likes, c'mon peeps help me out ••RT•• @_just_james @press_nystagmus @chromo18 https://t.co/SNW9dkVkHq