Imagine trying to function with a heart rate that goes above 150 whenever you’re upright.
Imagine constantly passing out, falling over and sweating like you’re running a marathon while doing mundane activities.
That’s POTS.
It can be utterly devastating.
We cannot go through Dysautonomia Awareness Month without mentioning orthostatic intolerance - a common issue for people with ME/CFS - where the body fails to properly compensate for moving to an upright position, which can result in various symptoms.
https://t.co/5j6Vg1FlyQ
🚨 New study from our @dysclinic research team!
✔️ #POTS and #migraine were the most common comorbidities among 84 women with #EDS/HSD affecting more than half of patients.
‼️ Quality of life in women with #EDS/HSD was worse than in pts with POTS, MS, RA and lupus!
🦓 Chronic pain (98.8%) affected almost everyone in this cohort.
🧠 25% of patients reported having a triad of HSD/#POTS/#MCAS
https://t.co/3vLIOxT0Eq
#Dysautonomia #EDS #MCAS #migraine #DysautonomiaAwarenessMonth
I’m not really a claustrophobic person, but the thing that makes me feel the most claustrophobic in the world is being trapped in a chronically ill body that I can never get a break from.