Chronically-ill Caty

hEDS🦓 & Co, Chronic Pain🤕, Celiac🙅‍♀️🌾, Spoonie🥄, Old House Enthusiasts🏠, She/Her, 🏳️‍🌈 💗💜💙

[Marie🧚 @glitchu__]

Me choking on my own salvia for no reason in my room

[@[email protected] @Imani_Barbarin]

I’ve done that for free.

[𝗚𝗿𝗮𝗰𝗲. @graciell__]

"How do you handle stressful situations??"

Me:

[Kelly @broadwaybabyto]

Imagine trying to function with a heart rate that goes above 150 whenever you’re upright.

Imagine constantly passing out, falling over and sweating like you’re running a marathon while doing mundane activities.

That’s POTS.

It can be utterly devastating.

[ME Research UK @MEResearchUK]

We cannot go through Dysautonomia Awareness Month without mentioning orthostatic intolerance - a common issue for people with ME/CFS - where the body fails to properly compensate for moving to an upright position, which can result in various symptoms.
https://t.co/5j6Vg1FlyQ

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

🚨 New study from our @dysclinic research team!
✔️ #POTS and #migraine were the most common comorbidities among 84 women with #EDS/HSD affecting more than half of patients.
‼️ Quality of life in women with #EDS/HSD was worse than in pts with POTS, MS, RA and lupus!
🦓 Chronic pain (98.8%) affected almost everyone in this cohort.
🧠 25% of patients reported having a triad of HSD/#POTS/#MCAS

https://t.co/3vLIOxT0Eq

#Dysautonomia #EDS #MCAS #migraine #DysautonomiaAwarenessMonth

[The Notorious J.O.V. @whotfisjovana]

favorite part of the day

[Candace D. @DiaryofaSickGrl]

She believed she could but she was chronically ill so she was wrong

[Candace D. @DiaryofaSickGrl]

Not my ancestors passing down a connective tissue disorder instead of money or land 😶

[Candace D. @DiaryofaSickGrl]

Healthy.

[bonky @shesbonky]

mine is my children being shot in their elementary school but okay

[Candace D. @DiaryofaSickGrl]

I’m not really a claustrophobic person, but the thing that makes me feel the most claustrophobic in the world is being trapped in a chronically ill body that I can never get a break from.

[Alison Burke @TiredActor]

If you have a chronic illness, this exact appointment has happened to you

[SEDSConnective @SEDSConnective]

Connective tissues
The 'issues with our tissues' continues...
Here is our well known umbrella and if you would like any of our infographics please let us know !
#hypermobility #neurodivergence #Autism #ADHD #dyspraxia #EDS #HSD #POTS
https://t.co/NvD2A1GACT

[chey @iwishurosesxo]

our father, who art in heaven, baja be thy blast

[Dr Sean Travers @seanjetravers]

When I tell someone to wake me up early and they actually do