Ciliopathy Alliance UK

CAUK brings together patient support groups, researchers, doctors & allied health professionals representing patients & families living with ciliopathies.

[Ciliopathy Alliance UK @CiliaAlliance]

Update from Ciliopathy Alliance April 2026 - https://t.co/ZuS5RIRX35

[Ciliopathy Alliance UK @CiliaAlliance]

Great film about living with Usher Syndrome! Fantastic acheivement @jomilne10 https://t.co/zQNXTqTlLA #rp #usher #hearingloss #cilia #ciliopathy

[BEAT-PCD (ERS CRC) @beatpcd]

@Dr_Morv_ @Shoemelia @erin_cant

[Ciliopathy Alliance UK @CiliaAlliance]

Webinar 11th June Confirmation of Date - https://t.co/gAcORZGlBi

[Ciliopathy Alliance UK @CiliaAlliance]

Webinar 11th June Confirmation of Date - https://t.co/m1TIoqjhPx

[Ciliopathy Alliance UK @CiliaAlliance]

Update from Ciliopathy Alliance November 2025 - https://t.co/J8yGUoq3K0

[Ciliopathy Alliance UK @CiliaAlliance]

Join us to help shape the UK Government rare disease polices on 11th June at 12 noon online @rarediseaseuk

https//ciliopathyalliance.org/news-and-events/210-online-workshop-helping-to-shape-the-future-for-rare-policy

#raredisease #cilia #ciliopathies

[7th European Cilia Meeting @EuroCilia2027]

One week to go! ⏳
Don’t wait until the final hour—get those entries in now!

Check the original post below for all the details. 👇 #Cilia #Cilia2027 #SciArt #Microscopy

[7th European Cilia Meeting @EuroCilia2027]

📣 The #Cilia2027 Best Image Competition is open! 🧬✨

🏆 1st Prize: Cover of the program & website + FREE registration to Cilia2027
🥈🥉 2nd & 3rd: Featured in the event screensaver + website
Submit your best cilia visuals: https://t.co/fQ1GdTgQQ1

#Microscopy #SciArt #Cilia

[Ciliopathy Alliance UK @CiliaAlliance]

@EuroCilia2027 Looking forward to it!

[7th European Cilia Meeting @EuroCilia2027]

🌍 Cilia2027 | Mar 8–12, 2027 | 📍 Stresa, Lake Maggiore, Italy
Join the global cilia community for science, collaboration & discovery (+ fun!!).
#Cilia2027 #CiliaBiology

[James D Chalmers @ProfJDChalmers]

A summary of my talk to the Irish thoracic society “big news in bronchiectasis!”

[Ciliopathy Alliance UK @CiliaAlliance]

Excited to welcome interns from Keele University to the CAUK! Hannah (Bioengineering) is creating patient-friendly materials, Anastasiia (Forensic Science & Criminology) is boosting stakeholder engagement, & Afnan (Neuroscience) is strengthening our comms + community outreach.

[Genetic Alliance UK @GeneticAll_UK]

Do you have lived experience of rare conditions? #RareDiseaseDay on 28.02.26 is the annual awareness day for genetic, rare and undiagnosed conditions and we want YOU to be involved! Complete our short equity survey and make sure your voice is heard. https://t.co/r0ImUBFoK8

[Genetic Alliance UK @GeneticAll_UK]

We’re hiring a Senior Communications Officer– help shape creative, impactful communications at the heart of our work 📅 Apply by 17:00 on Thursday 27 November 2025 https://t.co/OkBL6nMkjK

[Ciliopathy Alliance UK @CiliaAlliance]

We are looking for a new treasurer. Do you have financial acumen and an interest in ciliopathies? Can you help? If so contact us. https://t.co/NgmADE6pMw #cilia #volunteering #trustees #treasurer #ciliopathies

[Ciliopathy Alliance UK @CiliaAlliance]

https://t.co/DKoXeLRYOX Fiona @pcdmum had a really enjoyable day last week learning about the @lifearc1 Translational Centres for Rare Diseases and what progress has been made in the 1st year of the programme. #pcd #raredisease #cilia

[Ciliopathy Alliance UK @CiliaAlliance]

[Here's our latest news] - https://t.co/wIPiTQBqFK

[Ciliopathy Alliance UK @CiliaAlliance]

Update from Ciliopathy Alliance November 2025 - https://t.co/wIPiTQBqFK

[Ciliopathy Alliance UK @CiliaAlliance]

Professor John Marshall giving a really good history of Retina UK and an excellent explanation of how gene therapy works #retinauk #ciliopathies #sightloss #retinaukconf