Carolina Huggare

Mommy to Alice and Lars, children’s book author: “Eddie Goes to School” and “Dudu vai à escola”.

[Carolina Huggare @clhuggare]

#RolTaxativoMata hoje eles negam atendimento ao meu filho, amanhã pode ser ao seu! @marcosmion

[WWOX Foundation @WwoxF]

We are heartbroken with the news that WOREE syndrome has claimed yet another brave little warrior. Beautiful Macy from Australia courageously battled this devastating syndrome until the very end. Our deepest condolences to her family during this very difficult time.

[Rami Aqeilan @aqeilan]

@WwoxF My deepest condolences to the family 💔

[Rami Aqeilan @aqeilan]

After 6 long years, our research on neuronal WWOX function in WOREE syndrome is finally published in "Brain”. A very big thanks and appreciation to all collaborators, @Carlen_Lab @jacob_hanna
@PelesMCB and Oded Behar, who helped shaping this study.
https://t.co/IhfQccfHRg

[Carolina Huggare @clhuggare]

@aqeilan @Carlen_Lab @jacob_hanna @PelesMCB 👏👏👏👏👏 the #WWOX families thank you and the team for your dedication and hard work! Hopefully #cureWWOX is on the way

[WWOX Foundation @WwoxF]

We are thrilled to present the release of a beautiful children's book written by one of our amazing WWOX parents.

Part of the author’s profit will be directed to us:

🇺🇸 https://t.co/MRAPNpxVXl

🇬🇧 https://t.co/GKHTYmiFlA

🇦🇺 https://t.co/2kF93EJYYK

🇧🇷 https://t.co/9bTnktXyjJ

[WWOX Foundation @WwoxF]

Please keep in your thoughts the millions of children and adults around the world bravely fighting a rare disease every day. Your awareness of Rare Disease means so much to the The WWOX Foundation https://t.co/HiLtB3o8Qk

#raredisease #wwox #rareepilepsy

[Carolina Huggare @clhuggare]

https://t.co/u8oDqPQjPL

[Carolina Huggare @clhuggare]

@elonmusk How about USD100,000 for the https://t.co/SfmwlwbV7I ?!? #wwox @WwoxF

[WWOX Foundation @WwoxF]

Update on our fundraiser “We Fight Together”: Thanks to you we are nearing our goal of $300,000 with more than $238,000 in donations! Your generosity is directly aiding the development of a cure!
Please help us reach our goal at:
https://t.co/HiLtB3o8Qk

[Carolina Huggare @clhuggare]

@WarriorMomPratt @elonmusk @WwoxF #wwox

[Karen Pratt @WarriorMomPratt]

@elonmusk PLEASE Donate to the WWOX Foundation @WwoxF to fund the groundbreaking research and clinical trials for a cure to my little boys ultra rare disease.This will not only help our wwox kids but will open the door for other rare diseases to receive gene therapy https://t.co/UnBnGcfy6g

[Carolina Huggare @clhuggare]

@jmc_lilla @elonmusk #wwox

[Carolina Huggare @clhuggare]

@jmc_lilla @elonmusk #wwox

[José Mauricio Lilla @jmc_lilla]

@elonmusk If you are looking for life changing donation please consider @wwoxfoundation working on groundbreaking gene therapy for WWOX mutations. https://t.co/tHvzU1ugxV #wwox #wwoxfoundation #wefighttogetherwwox

[Carolina Huggare @clhuggare]

@Moselfranke1 @elonmusk #wwox

[Carolina Huggare @clhuggare]

@Moselfranke1 @elonmusk #wwox

[Carolina Huggare @clhuggare]

@paatic @elonmusk @WwoxF #wwox

[Carolina Huggare @clhuggare]

@paatic @elonmusk @WwoxF #wwox

[Carolina Huggare @clhuggare]

@paatic @elonmusk @WwoxF #wwox

[Carolina Huggare @clhuggare]

@ThomasDiasBati1 @elonmusk @WwoxF #wwox

[Carolina Huggare @clhuggare]

@ThomasDiasBati1 @elonmusk @WwoxF #wwox