The Government of Canada announces investments of up to $1.5B over three years to increase access to, and affordability of, effective drugs for rare diseases.
https://t.co/mxY74DNIgV
On Rare Disease Day SPIN Team Leader @cmwDouglas will present work entitled "Disrupting dominant bio-pharma industrial approaches to rare disease treatment through 'social pharmaceutical innovation' (SPIN)", as a part of the STS Departmental Seminar Series at York University.
In our latest blog post Tineke Kleinhout-Vliek shows how decentralising clinical trials can be a form of social pharmaceutical innovation for rare disease treatment in Europe: https://t.co/iQxxto7cRZ
A central challenge facing drugs for #rarediseases is the production of robust evidence given the inherently small patient populations within each disease, writes @cmwDouglas in International Experiences & Made-in-Canada “Social Pharmaceutical Innovations”
https://t.co/UL8mb0N0uY
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Click here to learn more: https://t.co/cstO5gB9gy
#scicomm#sts#YorkU#scicom#ststwitter
Considering a career in academia? Applications are open for the largest and most diverse Science and Technology graduate program in Canada. Click here to learn how you could receive a fully funded MA or PhD degree: https://t.co/cstO5gB9gy #scicomm#sts#scicom#ststwitter
In our latest blog post, @cmwDouglas shares some of the recent real-world ways that our research team has been involved in contributing to advancing, supporting, and inspiring #SPIN initiatives.
Read the full post here:
https://t.co/EoTwuvGzgS
#socialpharmaceuticalinnovation
Our latest blog post presents a summary on the book 'From Big Pharma to Commons' by Gaëlle Krikorian - providing insight into #socialinnovation in rare disease from a French perspective
Read more here: https://t.co/vVYWXsmB5p
#raredisease#SPIN#socialpharmaceuticalinnovation
#Crowdfunding is an increasingly common means of raising money for patients with #rarediseases around the world to access #expensive treatments - some see this as an act of #solidarity, others would disagree.
Read more about this in our latest blog post:
https://t.co/o493RVhuEO
If you're interested in doing an #MA or #PhD in social studies of #science, #technology & #innovation then check out our #STS graduate program - now recruiting for Sept 2023! Each place has funding & their are C$6k & C$8k entrance scholarships too!
https://t.co/gn0NEghqvF
I'm excited to be presenting in the Health Symposium | 675: Social Pharmaceutical Innovation: Made-in-Canada solutions to address unmet medical needs for advanced therapeutics at CSPC 2022 https://t.co/mJ0x33HnRV @sched
@IStedman I had this exact conversation yesterday, about this graffiti. Either way it's a bad look, and wrong...whatever the student or prof or "teacher" might think.
The first allogenic CAR-T treatment is one step closer to market authorisation, a development that is certain to have a substantial impact on treatment for patients with rare disease
Read more in our latest blog by @FaisalMohamedA
https://t.co/7rlW9tCanx
#raredisease#SPIN
In our latest blog post, our Brazilian researcher @Marina_Borba discusses the term 'scientific colonialism' as it relates to rare diseases and the Global South.
Read more about this interesting and eye-opening discussion here: https://t.co/YrYnjdCcDc
#SPIN#RareDisease
As a result of the #COVID19 pandemic, many countries are developing improved #genomic surveillance programs. Many in the #raredisease field are wondering what effect this may have on patients who rely on genomic sequencing for diagnosis.
Read more here:
https://t.co/ED933cOdJx
The Research Seminar Series in Science, Technology and Society will return for the 2022-23 academic year! Click to see a summary of seminars on a wide range of STS-related topics scheduled for this Fall! https://t.co/ZTx4rGFUxS | @YorkUScience@CDNJobar @GanaeleLanglois
In our latest blog post, our research team identifies proof that alternative forms of research and development are possible by reflecting on the treatment for SPG50 which was found in Canada
Read more
https://t.co/IJotEM9AmU
#SPIN#socialpharmaceuticalinnovation#raredisease