Coco

Avoiding Sars2, making art, growing/preserving food. Trying to teach our littles how to live in this mess.

Living with EDS and its sack of toothy terrors

[Coco @cocomarvgrows]

Today I heard a news story about how many more accidents and near-misses there’ve been on commuter trains here since 2022. Human error. Then they lightheartedly talked about how helpful AI will be in fixing these problems. The dovetail of collapse.

[Cat (CovidSolidarity) @CovidSolidarit1]

I get the impression people's brain damage is getting worse. Anyone else seeing that?

[Coco @cocomarvgrows]

You already know it’s a steaming, malignant pile. Here’s why:

[tern @1goodtern]

Ok.
I've read "The Painful Truth About Long Covid" six times through, and I'm ready.

Here are ten clues in the article that point to the writer's bad faith.

[tern @1goodtern]

That does not directly say 'hysterical women', but it whistles close enough that the dog is sitting upright.

[Coco @cocomarvgrows]

@broadwaybabyto Hello from Ontario 🩵

[The Vertlartnic @TheVertlartnic]

Let's Find A Kinder Way To Blame Long Covid Patients

[Deb N-T 💜 @tryna_do_rite]

@Albertadoctors @UnitedNurses @pfparks @FriendsMedicare #MASKUPINRESPIES #CLEANTHEAIR

[ApocaLiz @Lizzardo77]

"Long Covid is a real, debilitating physical illness but you can heal yourself from it with your mind," is exactly as ridiculous as it sounds.

We are rightfully outraged. And I am equally outraged that our very justified rage is being used to "prove," some dumb fucking 1/

[Lelena @LelenaPeacock]

There is no consistency with mind-body therapies. You can't have this both ways...

Watch. This excellent question will be ignored.

[Taylor Lorenz @TaylorLorenz]

He’s an anti woke associate religion professor who went on Joe Rogan & is now publishing reactionary slop to mainstream RFK/MAHA pseudoscience abt one of the most studied diseases of all time. It’s appalling that WIRED would promote this level of medical misinformation 😵‍💫

[tern @1goodtern]

I kept reading his replies to people criticising the Wired article and wondering whether people were missing the point of the article.

Then I read the article, and how bad it was blew my mind.

*Everything* he says is boss level gaslighting.

[Danielle Beckman @DaniBeckman]

Hey @WIRED, how about interviewing neuroscientists who are actually studying the brains of people with #LongCovid? I'm available, and so are many others in the field.

"When the brain gets stuck in a feedback loop of fight or flight" What does that even mean? #Pseudoscience

[The Yeti of Kananaskis @kananaskinyeti]

That fucking asshole who authored the wired article and his ilk desperately need for LongCovid to all be in our heads because that means to them they are not in danger of getting it themselves. They are intentionally throwing people under the bus to protect their feeble emotions.

[Laura Miers @LauraMiers]

I just want to thank all the people who are loudly pushing back on the propaganda & pseudoscience featured in the Wired LongCovid article. We’ve been doing this for 6 long years now. I used to be able to discuss these articles with tens of thousands of people from around the world, but now I just talk to the tumbleweeds since the people who are sick & suffering have been isolated & driven off this app, while the grifters & corporate-funded chaos agents are allowed to go viral. Everyone gets to walk around patting themselves on the back for a job well done, as the record disability & death quietly continues & the kids get sicker. Our futures are evaporating into thin air, & the only treatment on offer is talk therapy & meditation. We aren’t allowed to talk about any of it unless we’re pretending it can be fixed with psychiatry. Watching everyone destroy themselves & their families is so deeply sad. After 7 years of HIV/AIDS, people weren’t dying yet, & they didn’t think many people would get it. Living with AIDS 2.0 while all of society gaslights you & humiliates you is not for the weak. This IS the plan for LongCovid. You’re looking at it.

[ApocaLiz @Lizzardo77]

First, YOU live with a debilitating illness that has no fucking proper treatment and nothing resembling a cure and then you can have an opinion. Until then shove it with your patronizing high and mighty uninformed bullshit.

[ApocaLiz @Lizzardo77]

I'm not a "twitter critic," Alan. I'm someone who can be directly harmed by the narratives you use your reach to convey.

[ApocaLiz @Lizzardo77]

Okay, so the hundreds of replies and criticisms you have gotten in 24 hours from rightfully betrayed, frustrated, and very sick people are not, "good dialogue."
Why, because it's not praise? Where is your humility? Why do you dismiss all but a select few? Disingenuous at best.

[Arijit Chakravarty @arijitchakrav]

@AlanLevinovitz @WIRED What a bizarre piece of writing!

There are literally hundreds of basic science papers on the molecular mechanisms behind long covid- with concrete biological changes documented.

Given that you lack a medical & scientific background, what motivates you to write stuff like this?

[Michael Moran | APC Injury @internetuserf12]

Wrote my first community note 💪

[Coco @cocomarvgrows]

@Lizzardo77 🫩

[Lazarus Long @LazarusLong13]

Just wrote a community note.

Search @ wired baffled.

If you can't see the note, you are either not signed up for community notes (Google how to sign up), or need to be a higher level.

Thank you!