ConnorMackie11

[george @StokeyyG2]

Very poor refereeing performance.

[Paddy Power @paddypower]

That... looked suspiciously like a penalty.

[Mark Goldbridge @markgoldbridge]

That's a pen for Scotland surely?

[__YC9__ @__YC9__]

Simple ball over the top

Grant Hanley…

[Fabrizio Romano @FabrizioRomano]

🚨🏴󠁧󠁢󠁳󠁣󠁴󠁿 John McGinn, Man of the Match FIFA for Scotland beating Haiti. 🔝👏🏼

[Scotland National Team @ScotlandNT]

Our first @FIFAWorldCup goal in 28 years 😍

#HAISCO | #FIFAWorldCup

[John @johnb72_]

Adidas have just blown every single Nike World Cup advert since 2010 out the water

[ConnorMackie11 @connormac98]

@MeckerMutti I only take, Vitamin B,C & D, L-Lysine & Creatine. I went from 15 to these 5. No negative effects. I notice a difference in my immune system if I don’t take Vit C. I notice a lot more inflammation if I don’t take my L-Lysine!

[Channel 4 News @Channel4News]

The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.

Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.

But charities have warned that there is more to do and this must only be the start.

[ConnorMackie11 @connormac98]

@SarahBarx035 @DafoeWhitney Which ones are you using ? Are the prescribed ?

[Liam's LC/ME Journey @liamsLCjourney]

Yesterday, I stepped down as CEO of my company. Not because I wanted to, but because in mid-January, I became bedbound with Stage 4 ME.

For the past three months, I've watched my team run the company I built while I just lay here, unable to live the high-impact life I was used to.

At first, I vowed to get better so I could return to even part-time work. But as I gradually and inconsistently improved over months, I became radicalized for a different cause:

Not a single person deserves to live like this. But yet we do, and and no one will save us but ourselves.

So today, I begin a new role: I will dedicate the next year of my life - 18 waking hours a day - entirely to this community.

I suppose it's time I introduce myself (I've also attached a photo of me, in bed, feeling much worse than I look):
- Out of college, I co-founded a magazine that took me around the world doing sports journalism and broadcasting.
- Over the past 7 years, I have assembled the greatest team to build and run a sports tech company from the ground up
- In the early days of the pandemic, I co-founded and led @getusppe, a team of hundreds, to deliver 17 million+ pieces of PPE to healthcare workers.
- I specialize in acting with urgency, seeing gaps, and connecting people to fill them. And most of all, in uniting and building community.

I have accomplished a ton in my 35 years on earth before I got sick, but Long COVID and ME are, by an order of magnitude, the biggest challenges I have faced.

But when there are so many gaps, there's simply no time to complain. We must roll our compression-wear up and get to work. So here is what I have planned:
- Guides and essays:
- The Severe PEM Crash Survival Guide
- What's the Deal With Brain Retraining?
- So You Have Long COVID, Now What?
- ...and so many more!
- Treatment Experience Surveys to fill the gap between random Reddit anecdotes and slow clinical trials (GLP-1 data released in two weeks)
- The first comprehensive AI analysis of all publicly posted recovery stories to look for trends and correlations
- Helping a fellow patient and test expert publish the first interactive and comprehensive testing guide for ME
- Helping a fellow patient increase the visibility of Stage 4/5 patients as the faces of ME
- Creating a network of the highest agency patients working on these conditions to mutually share information, support, and unblock each other
- Creating Long COVID and ME microgrants to fund people to work on small but impactful projects
- Incubating and raising funding for founders who want to start non-profits and companies (let five more Amaticas flourish!)
- Overall, pouring my heart out to support every single person who is interested in working for the betterment of this community (especially where others are far better than me, like science and advocacy!)

No one is going to do this work for us. Not doctors, researchers, or government. This must be patient-led.

Want to join the movement? Send me a DM, and let's figure out what we can do together. Time to get to work.

[Dario ME Fighter @dario_MEfighter]

It's hard for me to admit, but this disease has made me a better person

[Ami @amiandlife]

lowest quality of life and still a lack of funding and treatment btw 🫩🫩🫩
#mecfs #chronicillness

[Pastor L. WayneTronics @Tronicssystem]

Long Covid/MECFS is physically hell but it’s also hell on your metal health so I’m definitely praying for you 🙏🏾

[Dario ME Fighter @dario_MEfighter]

Please God let me live again🙏 #mecfs

[Dario ME Fighter @dario_MEfighter]

If there was one thing I loved before, it was physical activity, in all its forms, and I'm not just talking about sports. I loved ice skating, going for a nice swim in the sea, or surfing a bit. I miss that part of me.

[elle carnitine 🍉 @elle_carnitine]

myalgic encephalomyelitis

[Carol 🛌👩‍🦼😷 @TickedOffCodess]

Severe ME/CFS means your body punishes you for existing. Not for overdoing it. For brushing your teeth. For chewing. For being awake. And almost no one is talking about it. #MEawareness

[Fin 🐈 @AgathasSapphic]

able bodied people will never understand the constant rationing of energy to survive. Every bit of movement and energy is calculated and has consequences; insluding the types of food I eat, the meds I take, and even the emotions I feel--

[ConnorMackie11 @connormac98]

@dario_MEfighter I want to start soon!

Did you start on 0.5? Cheers, hopefully 3mg works for you!!