ERN CRANIO

The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders

[ERN CRANIO @cranio_ern]

🌟 Join @ejprarediseases for the End-user Training Webinar on June 26, 2024! 🌍🔬 Learn to navigate the Virtual Platform for Rare Diseases.
ℹ️ Registration and more information: https://t.co/rY0S5slRl6

[ERN CRANIO @cranio_ern]

Exciting update for rare disease enthusiasts! 🌟Registration deadline for the Final EJP RD Conference extended to May 22nd, 2024! Join us on online May 27-28, 2024 for engaging sessions on RD research. Check out the agenda and secure your spot today! ℹ️ https://t.co/TnWSv7rS3M

[ERN CRANIO @cranio_ern]

🚨Don't miss out! Engage with industry experts in @EJPRareDiseases online courses
"Diagnosis Rare Diseases: from clinic to research": until Dec 8th
"From Lab to Clinic: Translational Research for Rare Diseases": until Dec 2nd
Join us and learn from them!
https://t.co/NBHJCymPUW

[ERN CRANIO @cranio_ern]

Starting today and running through December 2nd, mentors and educators specializing in the field will be accessible online to address your inquiries and provide guidance throughout your participation in the @EJPRareDiseases online course. Join the course!
https://t.co/8TYi582xui

[ERN CRANIO @cranio_ern]

Applications for the 2024 @eurordis Open Academy Schools are OPEN!
Apply before October 27th for an immersive week of learning, networking, and advancing patient advocacy in Medicines R&D and Scientific Innovation in Barcelona from June 3-7.
ℹ️https://t.co/ZkMeXyaTaQ

[ERN CRANIO @cranio_ern]

Follow us on Instagram!
We share regular updates, videos, photos and more on our Instagram account.

Interested? Follow us on Instagram via the link below!

https://t.co/nRWGKzQ4xU

[ERN CRANIO @cranio_ern]

New IRDiRC Publication: @irdirc's Chrysalis Task Force on Making Rare Disease Research Attractive to Companies
📝Check out the article at https://t.co/LamMsrQi56

[ERN CRANIO @cranio_ern]

Join the FREE @EJPRareDiseasesonline training on "Item Response Models for Analyzing Assessments in Rare Diseases" 🧬🔍
🗓️ Date: September 29, 2023
💡 Advanced-Level
📝Registration deadline: September 28, 2023
More information: https://t.co/I4uGQSOvgJ

[ERN CRANIO @cranio_ern]

The guideline on treatment and management of craniosynostosis: patient and family version has been published in the Journal of Craniofacial Surgery and is now also available in Slovenian!

Click on the link below to read and feel free to share!
https://t.co/JbMQV3skEH

[ERN CRANIO @cranio_ern]

Join @EJPRareDiseases at the Variant Prioritization and Enrichment for Rare Diseases Workshop
📅20-22 September 2023
Don't miss this chance to dive into genomics for rare diseases!
ℹ️More information and registration here before 9 September: https://t.co/uVgIkX5hpX

[ERN CRANIO @cranio_ern]

The latest ERN CRANIO newsletter has just been published!
Subscribe to our newsletter to get automatic updates on the latest ERN CRANIO news. You can also read the newsletter via the link below:

https://t.co/jrwGp42Mrt

[ERN CRANIO @cranio_ern]

📢 Your opinion is important to us!

We would like to improve the feel of our website! The questionnaire consists of a total of 71 questions, providing answers will take 15 - 30 minutes.

📲 Please follow the link below to access the survey!
https://t.co/2W1CvemFwC

[EURORDIS-Rare Diseases Europe @eurordis]

Are you living with a rare disease or caring for someone who is? 👥

What could screening at birth mean for access to treatment, psychological wellbeing, and family dynamics?

Don’t miss the chance to make your voice heard! 👂https://t.co/OI6UOVHESJ

[ERN CRANIO @cranio_ern]

🚀Enhance your skills and stay ahead in rare disease research! Join the free @EJPRareDiseases online training on Replicated N-of-1 RCTs for Rare Diseases. Learn from Patrick Onghena about this research strategy and statistical analysis techniques.
More: https://t.co/4I4nwbaElb

[ERN CRANIO @cranio_ern]

📣 Calling all researchers, clinicians, and healthcare specialists! Registration now open for two upcoming ERN workshops:
1: https://t.co/MXKJw2XoEH
🚨Deadline: 01 July 2023
2: https://t.co/JIITh5oHop
🚨Deadline: 15 July 2023

[ERN CRANIO @cranio_ern]

📢Share your opinion: the Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership is now open.
📝You can share your voice here: https://t.co/w84FxAGfTr
🚨Deadline: 9 June 2023

[ERN CRANIO @cranio_ern]

📢 Share your opinion: the Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership is now open.
📝You can share your voice here: https://t.co/w84FxAGfTr
🚨Deadline: 9 June 2023

[ERN CRANIO @cranio_ern]

Great news! @irdirc's DSC is looking for #RareDisease diagnosis researcher/clinician from Africa or Latin America, and a rare disease patient/patient advocate involved in RD diagnosis projects or initiatives worldwide. Apply by June 9th!
ℹ️https://t.co/sfI9f0XQq6

[ERN CRANIO @cranio_ern]

Don't miss out on the opportunity to register for the remarkable @EJPRareDiseases - ERN trainings! The best part? These trainings are absolutely free of charge, plus travel and accommodation fellowships are available.
Register before the deadlines!
ℹ️More: https://t.co/5OSN29N41z

[ERN CRANIO @cranio_ern]

Are you already following us on Instagram? We regularly post new videos and stories about ERN CRANIO there!

Follow us via the link below!
https://t.co/qtdzae2Gle