crixmother

PhD in medicinal chemistry. Willing to discuss different opinions as long as it is respectful. @kinderenLC #Longcovidkids #pwME #teammicroclots

[Anil van der Zee © @AnilvanderZee]

Very strong item from New Zealand. A mother who in desperation sets up a care home for people with severe ME. Including her daughter. And the amazing @drannanz who really cares about us. ❤️

https://t.co/onHNEtDWFP

[Emerge Australia @EmergeAus]

Powerful moment at Sir Bob Geldof's event: Belinda & Brooke Nickeas (ME/CFS community) shared a letter outlining the history of ME/CFS. Touched by their courage, he shared these words 💙 On #MECFS Awareness Day, their act is a gift. You are seen. You matter.

[Sarah O'Connell @SarahOC_MECFS]

Today my son got home from the hospital (PFT) & told me he was sick of #LongCovid & asked me what the point of life is..
@FineFail & @FineGael provided NO SERVICES for #LongCovidKids.
I can only think that they believe my son has fewer rights than adults, the right to healthcare.

[James Lucas @JamesLucasIT]

Colorized historical photos and videos that will make you feel like you're in a time machine 🧵

1. Jerusalem, April 1897

[Erin M @ErinAPN1]

My tube fed, bed/wheelchair bound, iv hydrated long covid teen daughter, who is too ill to leave a tertiary children’s hospital for 19 months, denied a home shower chair with a back (not sure when or how we might get her home) and I just fucking can’t anymore. OT happy to fight for it, but that she has to fight for it? Broken.
#LongCovidKids
#longcovid

[Mark Vink, MD @Huisarts_Vink]

Rosmalen heeft haar artikel “geüpdate” maar ze blijft onterecht claimen dat CGT en mindfulness effectief zijn
#MEcvs

Plus:
“de rol van psychosociale oorzaken is essentieel bij alle patienten met moeheid, ongeacht oorzaak, of die nu bekend is of niet”

https://t.co/pF57c4AnGn

[Kiyah Willis @kiyahwillis]

This is what a real freedom fighter looks like

[Luai Ahmed @JustLuai]

btw the only place in the Middle East where a Yemeni Muslim, a black Jew, a Lebanese Christian, and an Asian transgender can hang out (without getting flogged) is Israel.

[Habib Khan @HabibKhanT]

This iconic photo is now part of Iranian history, capturing the deep frustration of women with the regime—a powerful statement against repression.

[The Persian Jewess @persianjewess]

A student at Iran’s University of Science and Research was accosted by Islamic Regime morality police for showing her hair beneath her hijab. They tore her clothes as they attacked her.

So in protest she took her clothes off and stood in the square in nothing but her underwear.

Minutes after this video was taken, the women was beaten and forcibly disappeared by the IRGC.

Free Iran from Radical Islamists.

[crixmother @crixmother]

@AlinejadMasih What horrifies me is that the others stood by and did nothing.

[Masih Alinejad 🏳️ @AlinejadMasih]

In Iran, a student harassed by her university’s morality police over her “improper” hijab didn’t back down. She turned her body into a protest, stripping to her underwear and marching through campus—defying a regime that constantly controls women’s bodies. Her act is a powerful reminder of Iranian women’s fight for freedom. Yes we use our bodies like weapons to fight back a regime that kills women for showing their hair.

This happened at Tehran’s Science and Research University She has since been arrested by the authorities.
Be her voice.
#WomanLifeFreedom

[crixmother @crixmother]

May the odds be with you
#longcovid

[crixmother @crixmother]

@susandykeman @j_g_allen Nuclear energy is the only high density energy source that can be upscaled and where waste is minimal and managed properly and the CO2 output is minimal. If you see where the world is going-> need of more energy , but lowering the CO2 output, this is our only option.

[crixmother @crixmother]

@susandykeman @j_g_allen Transitioning to wind and sun, and batteries storage as energy source won’t cut it, we don’t have enough rare metals to accomplish this, and actually harms the environment where the raw materials are harvest.

[crixmother @crixmother]

@WoollerEmma We had a victim in a talkshow here in NL, and quite a lot of attention for a while on the subject. It triggers more reports. We have an expert in a place where lots of LC children get referee to. And though it is more rare, people seem to know this better than LC in children.

[Cat in the Hat 🐈‍⬛ 🎩 🇬🇧 @_CatintheHat]

SPECIAL MESSAGE TO JOE WICKS
(@thebodycoach)

Dear Joe,

You posted a question on Twitter yesterday:

“What’s your biggest barrier to getting fitter”.

I wonder if you were surprised about the overwhelming feedback in the comments…?

🧵

[crixmother @crixmother]

@thebodycoach I used to CrossFit and was super fit together with my teenager. We both have Longcovid now. My child can’t even go to school more than an hour a day. I drive him, he can’t cycle or walk to school, as that makes him ill and bedridden.

[crixmother @crixmother]

@WoollerEmma I understand your point in this. My problem with these documentaries is that we as parents of Longcovidkids often get investigated. The chances are 1 in a million, but is taken more seriously than our children’s illness. These investigations are scary; how to prove LC?