Barbara Crossley

oddball mix of enthusiasms -poetry, theatre, bronchiectasis

[Andrew Stewart @AndrewJohnStew2]

Bronchiectasis is a lung condition you might not have heard of, but it affects more than 200,000 people in the UK and millions around the world. There are no treatments and it remains hard to diagnose, which is why @lifearc1 and @asthmalunguk are working together to change this.

[Barbara Crossley @crossb]

We bronchiectasis patients are over the moon and incredibly grateful for all you have achieved and for what you continue to achieve to make a difference to our lives. We were totally neglected till you came on the scene. We can’t thank you enough.

[James D Chalmers @ProfJDChalmers]

Wow. Thank you so much to the Lancet for this profile, it is a real honour.
Medicine and Science are team sports and i've had amazing mentors, collaborators, clinical colleagues and the best team in Dundee that anyone could ask for. I feel very lucky and very grateful
Thank you❤️

[James D Chalmers @ProfJDChalmers]

We did it!
More than 1000 participants joined us for the World Bronchiectasis Conference #WBC2024 hosted in Dundee.
Incredible breakthroughs for bronchiectasis patients, warm friendship and so many memories.
Thank you to everyone who worked so hard to make this possible
❤️❤️❤️

[Barbara Crossley @crossb]

Absolutely agree with this, and Prof James Chalmers and Michal Shteinberg are brilliant at patient-friendly communication. We at the European Lung Foundation’s Patient Advisory Group are incredibly grateful for their support.

[R Tal-Singer Lung Health Researcher & Advocate 🫁 @rtalsinger1]

Grateful for the positive #patient-centered session at the patient village of #WBConf24, it’s critical in keeping patients and caregivers engaged.

[Barbara Crossley @crossb]

We patients were so pleased to work with Paul and Beatriz on demonstrating Airway Clearance Techniques that make a world of difference to how we manage our bronchiectasis. Patients - get referred to a respiratory physiotherapist, they can help you take control of your life.

[Beatriz Herrero @Beika_Physio]

So lovely to participate in #WBC24 highlighting the importance of the physiology behind the airway clearance therapies and having the opportunity to teach patients airway clearance skills in the amazing physio track!!. Thanks @EMBARCnetwork @TheACPRC

[The Lancet @TheLancet]

For most of the past 3 decades, bronchiectasis has been treated as an infectious disease.

A new Review in @LancetRespirMed argues that bronchiectasis is primarily a chronic inflammatory disease and introduces a novel concept of disease activity: https://t.co/GPQ88Wi6l4

[ATS Blue Journal @ATSBlueEditor]

The Precision Medicine Era of Bronchiectasis

🔓 Open Access

🔗 https://t.co/b8dh5s5sr7

[European Lung Foundation @EuropeanLung]

Good evening from #WBConf24!

Today we enjoyed meeting with our #bronchiectasis advisory group and hearing bronchiectasis facts presented in a patient-friendly way.

Visit our webpage and learn how we promote the voices of people with bronchiectasis: https://t.co/KUBhsg3GHz

[James D Chalmers @ProfJDChalmers]

Its time to shift the paradigm in bronchiectasis
Thinking about bronchiectasis as an inflammatory disease means
- earlier intervention
- focus on non-antibiotic treatments
- clinicians and scientists working together
- Pipeline of new anti-inflammatory treatments
@MereteLong

[Peter Wark @PeterWark1710]

No better in Australia. Only around a half of patients with bronchiectasis in Europe perform regular airway clearance. Techniques and use of airway clearance management is heterogeneous, suggesting the need for clearer guidelines and stronger evidence. https://t.co/pRBWXYJ2nW

[James D Chalmers @ProfJDChalmers]

Bronchiectasis is a heterogeneous disease. if we want personalised medicine, we need BIOMARKERS to guide treatment
Explore the pathophysiology of bronchiectasis by checking out our latest paper from @emma_d_johnson and @MereteLong
https://t.co/bY7DYM2E6h

[Dr. Kateryna Viligorska @viligorska]

Patient perspective represented by @crossb and her colleague from Greece @EuropeanLung @EMBARCnetwork

[James D Chalmers @ProfJDChalmers]

Tomorrow is World Bronchiectasis Day! Join us for a special webinar- ask you questions and get answers from real experts on the condition including @michalshteinber @AlibertiStefano @crossb and many more
I'll be behind the scenes answering as many questions as i can!

[European Lung Foundation @EuropeanLung]

Ask us your questions about bronchiectasis, particularly about current and future treatment. We will then answer these questions live in our Bronchiectasis Question Time webinar on 1 July.

Find out more: https://t.co/giDQma8n9p

#WorldBronchiectasisDay

[James D Chalmers @ProfJDChalmers]

New paper from @EMBARCnetwork
Diagnostic delay and access to care in bronchiectasis
A survey of 760 patients from 40 countries
40% of patients wait 5 years+ for a diagnosis and 25% wait >10 years from symptom onset
led by @AriettaSpinou @MichalShteinbe1
https://t.co/VzCqAikA7N

[Dr Arietta Spinou @AriettaSpinou]

Join us for a free @EMBARCnetwork webinar on airway clearance and pulmonary rehabilitation 👇🫁 @ErsPhysios @ERS_Assembly9 @TheACPRC @TheACPRClondon @KingsResp @Physio_KCL @lifecourse_KCL

[John McCullough 🏳️‍🌈 @JohnMcCullough_]

So sad to learn of the death of Kathryn Bevis. I knew her first of all as a kind soul who cheered other poets on, then as my student. Later, I watched her soar and I used her stunning, resonant work in my teaching. Thinking of her family and many friends. xxx

[James D Chalmers @ProfJDChalmers]

The UK has the worst death rate for lung conditions in Europe. Increasing funding for lung research will improve diagnosis and save lives. Here are the steps the government can take to improve the nation’s lung health: https://t.co/6AcQ9UwmZ2

[Barbara Crossley @crossb]

@failingwriters Kathryn Bevis would be good. Take a look at her ‘The Title of this poem is “What’s the title of this poem”’? It’s a masterclass in the construction of many prizewinning poems (it’s in her pamphlet’Flamingo’ (published by Seren).

[Barbara Crossley @crossb]

@keridavies something’s been bothering me about Alice’s drinking when pregnant with Martha. I seem to remember she got drunk out of her skull, passed out on a road verge where Harrison found her. Yet Martha’s showing no dire effects that would apply in real life. Explain?