Stacy E. Croteau

Director, Hemophilia/VWD Program, @BostonChildrens ; Medical Director, Boston Hemophilia Center #BostonHTC #hemophilia #vwd #genetherapy

[CDC_NCBDDD @CDC_NCBDDD]

Are you a hematologist, nurse practitioner, or physician assistant in the bleeding disorders community? Join an interactive training about von Willebrand disease (VWD) treatment across the lifespan for women and girls. Register: https://t.co/wniAxrqMpn
@NHF_Hemophilia

[Massachusetts Medical Society (MMS) @MassMedical]

"Access to evidenced-based abortion care is health care, and the implications of this decision out of Texas, if upheld, will further exacerbate existing inequities in health care access and outcomes in the United States." -@MMS_President Dr. Ted Calianos https://t.co/qNiIlKDkMD

[Gillian Branstetter @GBBranstetter]

In the article, Dr. Catherine Gordon condemned the state's efforts to criminalize gender-affirming care. "We look forward to the day when these youth will no longer be caught in the middle between politics, and their much needed medical care." https://t.co/9XWwrQNzu9

[Jordan Shavit @Clot1]

Announcing publication of our collaboration led by PI Andrew Yee in @JTHjournal. He developed a sophisticated phage display system with David Ginsburg and used it to evaluate inhibitor-reactive regions in VWF (see 🧵). Also with @CroteauMD @MiPipeline. https://t.co/woAGmwsvxe
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[Stacy E. Croteau @CroteauMD]

Great opportunity to see how our National network of HTCs is doing! #hemophilia #VWD #RBDs

[Univ of Colorado HTC @HTCColorado]

The Patient Satisfaction Survey is open and we want to hear from our bleeding disorder patients! You should have received a letter with the survey in the mail, but it's super easy (for you and for us) to take this online. Just go here: https://t.co/bkxbBUCAuw

[WFH @wfhemophilia]

Join the global campaign calling for the UN to take action for persons living with a rare disease! Adoption of this resolution by the UN can help members of our community advocate for better care and inclusion of people with #bleedingdisorders. Register: https://t.co/B010cPXh6v

[Hemophilia Federation of America (HFA) @hemophiliafed]

Today begins Bleeding Disorders Awareness Month & we'll post a fact each day this month: In the U.S., approximately 20,000 people are living with #hemophilia and one to two percent of the population are living with von Willebrand Disease (vWD). Learn more: https://t.co/IjPscv234l

[Emily Williams @EmDashily]

Thinking of my friend, @JenniferHandt, who learned last fall a typo in her son’s #DMD gene would change her family’s life forever. On this #RareDiseaseDay, help raise awareness for #Duchenne muscular dystrophy, visit https://t.co/AueKBTJ5EP to get involved, and (please) retweet.

[Stacy E. Croteau @CroteauMD]

Join us at 12pm ET today to celebrate #RareDiseaseDay2021 and the 10-yr anniversary of @BostonChildrens gene therapy program! I’ll be interviewing a #hemophilia #genetherapy recipient. https://t.co/Qxsc329BQQ

[Hemophilia Federation of America (HFA) @hemophiliafed]

Monday begins an entire month of recognizing #bleedingdisorders. Show your support and spread awareness by changing your profile picture to one of our social media graphics or I ❤️ Someone with a Bleeding Disorder frame. https://t.co/GQLplxddHf

[WAPPS-Hemo @WAPPS_Hemo]

Getting your centre registered on the WAPPS-Hemo platform takes just 4 simple steps! Visit our webpage @ https://t.co/SaJ8zW9Vtt for more details.

Have your hemophilia patients experience the benefits of popPK! Get started today!!
#WAPPS #hemophilia

[Stacy E. Croteau @CroteauMD]

Join us for a live virtual event on Feb. 28, #RareDiseaseDay and celebrate as the @BostonChildrens! I’ll be interviewing a #hemophilia #genetherapy recipient. https://t.co/IHFOVCZVV4

[National Bleeding Disorders Foundation @nbd_foundation]

NHF's Bleeding Disorders Conference is open to all families living with a bleeding disorder and is free of charge. Join us for education, connection, and fun on August 26-28, with a pre-con on August 25th! Registration is now open!
https://t.co/8qcRA3OjT6

[WFH @wfhemophilia]

The theme of this year’s #WorldHemophiliaDay is “Adapting to change: sustaining care in a new world”. Watch Cesar Garrido, WFH President , talk about the importance of this day and get free downloadable resources by visiting the full article here: https://t.co/Jy6UbirRLK

[JTH @JTHjournal]

New brief report: #Bleeding among severe FVIII deficiency pts variable, even with routine prophylactic FVIII administration. @croteaumd et al @DFBC_PedCare @harvardmed find 🔽 #platelets phosphatidylserine expression predicts 📈 bleeding https://t.co/u8wYpLopxV

[Boston Children's @BostonChildrens]

Have you scheduled an appointment to donate blood or platelets @BCHBloodDonor? Get involved here: https://t.co/cnCnAXIwCn #BloodDonorAwarenessMonth

[Stacy E. Croteau @CroteauMD]

Not sure if “tame” is ever the right word to describe these two...be sure to join us!

[Tiffany (Lin) Lucas @DrTiffanyL]

Dr. @CroteauMD received some advanced kudos for moderating a debate between @nashgreenie and @GuyYoungMD re: emicizumab relevant to us #PHODocs. As pointed out by Dr. Sidonio -- "thankfully it's virtual so will be a bit more tame!" #ASHatHome #ASH20

[Stacy E. Croteau @CroteauMD]

Join us! Starting live now

[Kate Regling DO @KateRegling]

Thought provoking discussion on the era of Emicizumab - PUPs and use of ITI @CroteauMD @GuyYoungMD @nashgreenie - be sure to join the live Q&A session at 12p.m. PST #ASH20 #EducationSession #Hemophilia

[Jonathan Marron MD MPH @JonMarronMD]

Out now, my piece w @kennedy_kerrio & Elaine Meyer of @BostonChildrens @HMSbioethics in @JAMAPediatrics

With the unfortunate death of Cassandra (Cassie) Callender in May 2020, we explore #communication & decision-making, particularly as it relates to #AYA & #ayacsm

A brief 🧵:

[Stacy E. Croteau @CroteauMD]

Thank you Mike. Here's a link to help with access https://t.co/wRldyIZLVp
#hemophilia #genetherapy

[Michael Makris @ProfMakris]

This is an excellent article about discussing Gene Therapy in #Hemophilia with patients. Considering the target readership, I do not understand why the authors did not go for full Open Access for this paper. https://t.co/YHQJm1Ybs0 #Haemophilia