CRPSA

CRPSA's mission is to provide support, education and hope to everyone affected by CRPS while we drive research for better treatments and a cure. Formerly RSDSA.

[CRPSA @CRPSAinc]

8 Ways Better Policy Could Improve Life With Chronic Pain (by @US_Pain) https://t.co/IhKbeyoTVS

[CRPSA @CRPSAinc]

RSDSA is now Complex Regional Pain Syndrome Association (CRPSA)

We are excited to now align our organization’s name with the updated name of the condition in an effort to reduce confusion amongst the community and physicians: https://t.co/5KtuQJ7916

[CRPSA @CRPSAinc]

9 Lessons We’ve Learned By Listening to Thousands of People With Pain (by @US_Pain) https://t.co/YznnftfjPo

[U.S. Pain Foundation @US_Pain]

This #PainAwarenessMonth, learn to tell your story with clarity, confidence, and purpose—and help raise #OneVoiceForPain.

Join Christie Cox for a virtual #BuildingYourToolbox presentation, Crafting Healing Narratives, at 7:30 p.m. ET on 9/9.

Register: https://t.co/RDMAlwdZbl

[CRPSA @CRPSAinc]

🎥 Rewatch our latest livestream with Dr. Salim Hayek and RSDSA Board Member Dr. Joshua Prager as they discuss having surgery when you have #CRPS: https://t.co/FpRnOJ1Z1L

[CA Chronic Care Coalition @CAChronicCare]

🚨 Governor @GavinNewsom, AB 1887 is on your desk! This bill will reduce prior authorization barriers for FDA-approved rare disease therapies—ensuring faster, lifesaving access for Californians living with rare diseases. Please sign it now! #SignAB1887

[CRPSA @CRPSAinc]

The August 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: https://t.co/kTUPyA4NOB. This edition of In Rare Form is sponsored by Abbott.

If you are interested in sponsoring a future issue of In Rare Form, please contact us at [email protected].

[CRPSA @CRPSAinc]

The 6th annual Picklin’ for a Cure Awareness and Fundraising Pickleball Tournament will take place at Udall Park in Tucson, Arizona from October 16-18, 2026.

Learn more: https://t.co/JXThuFZJp4

[U.S. Pain Foundation @US_Pain]

Better data, research & treatments = renewed hope.

The #AdvancingResearchForChronicPainAct, introduced by @SenTimKaine, @SenKevinCramer, @AndyKimNJ, & @SteveDaines, would help strengthen research through improved #chronicpain data collection.

Learn more: https://t.co/L0onUnsYD8

[CRPSA @CRPSAinc]

This guide walks you through the exact booking steps for Uber and Lyft, shows you which cities have service, explains your protections under the Americans with Disabilities Act (ADA), and gives you backup plans for when a WAV does not show. https://t.co/8WFfbdjbci

[CRPSA @CRPSAinc]

As a thank you, two participants will be randomly selected to receive a $50 Visa gift card on August 13.

The information collected will be used for our organization's development and impact reporting.

[CRPSA @CRPSAinc]

RSDSA would love to learn more about our community members so we can better serve you. Please take a few minutes to complete our survey (and help us spread the word!): https://t.co/sv08Vp51tc

Participation is completely optional, and nothing will change if you do not respond.

[CRPSA @CRPSAinc]

→ sarahgonzales' thread on spinal cord stimulators has sparked tons of conversations and questions about insurance, approval, and the different brands of stimulators https://t.co/ek39OyrE7R

Join the conversations, and ask your own question, by visiting https://t.co/HGgU5RENmu.

[CRPSA @CRPSAinc]

Check out these recent conversations on the RSDSA Message Board:

→ muhmo wants to learn more about supporting their partner who has CRPS. https://t.co/kSWGbCsKoP

→ fraublucher is in Georgia and is looking to connect with others in GA, SC, and FL. https://t.co/nlL8u8rDUx

[CRPSA @CRPSAinc]

This week on the RSDSA blog we hear from #CRPS Warrior Marti Ann Ramirez who discusses the journey many go on once they are officially diagnosed, why it's okay to grieve, and how to build a meaningful life. https://t.co/2Lu5tyqtUG

[CRPSA @CRPSAinc]

As a reminder, this is not RSDSA's study. Please direct your questions to the study contacts on the Clinical Trails website.

[CRPSA @CRPSAinc]

Researchers at UC San Diego Health are wrapping up a research study examining the efficacy of a botanical CBD extract for pain relief in individuals diagnosed with #CRPS.

Please visit the study's page on the Clinical Trials website to learn more: https://t.co/IiEFutBlTz

[CRPSA @CRPSAinc]

In the latest post for the RSDSA blog, we hear from Erika Warren who discusses the best uses for #AI when researching #CRPS (or anything else), why you should not rely on AI for *all* of your medical questions, accountability, and much more. ↓ https://t.co/4vbG4ut1jv

[Pain News Network @PainNewsNetwork]

Many people "think" they know what chronic pain is like and how they would handle it. But Crystal LIndell says until you've actually experienced it, you have no idea. https://t.co/nQZxrfJ9iH

[Pain News Network @PainNewsNetwork]

Many doctors like to refer chronic pain patients to physical therapy. But for many patients, physical therapy doesn't work, takes too long, or is poorly covered by insurance. What's been your experience? https://t.co/M5RvbWqC00