Cushing's Support & Research Foundation

Supporting patients in all ways; direct peer contact, trustworthy science-supported resources, community events, access to patient voice research opportunities.

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Sandra M. - Embrace the Journey https://t.co/uBfH1p6McM

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Lauren I. https://t.co/4pdlzmSm46

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: CSRF Interviews One of Its First Members: Neddy Zaleski https://t.co/Sc32nOGrAG

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Bridget H. https://t.co/iTHDoR4wbs

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Cushing's and Blood Sugar - What's the Connection? https://t.co/WWeVe9lhgb

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Doctors' Answers https://t.co/88HUJzhd57

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Three Takes on the COVID-19 Pandemic https://t.co/91KnzosVkB

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Medications for Cushing's - Old and New: Part One in a Two-Part Series https://t.co/X7ZmHEVB8p

[Cushing's Support & Research Foundation @CSRFnet]

A breakdown of the new Medicare law, by our partner @PAN_Foundation
https://t.co/K5RM39XlKA

[Cushing's Support & Research Foundation @CSRFnet]

We feel seen! Sharon Terry of Genetic Alliance goes hard for rare patients everywhere and makes the ENTIRE case for registries led by patient organizations. https://t.co/p018VaADRt

[Cushing's Support & Research Foundation @CSRFnet]

@ShannonDingle Feel free to email us at [email protected] or [email protected] to discuss. If you need and qualify for any of the cortisol-controlling medications, no reason you can't have it in your hands within a couple of weeks, max.

[Cushing's Support & Research Foundation @CSRFnet]

@ShannonDingle Can we assist you w/ some correct information about the process of qualifying for & receiving a cortisol-controlling medication? The last decade has brought access & assistance programs to a point where there aren't really barriers today. Korlym is not affected by these politics.

[Cushing's Support & Research Foundation @CSRFnet]

We are relieved and encouraged when we see efforts like this to educate and connect people to how Cushing's affects everything and everyone in our lives far beyond the clinical data captured in the office setting.

@MedStoriesTV

https://t.co/Osg3bSMpd0

[Cushing's Support & Research Foundation @CSRFnet]

Great information for patients facing transsphenoidal surgery by Drs. Raj Mukherjee and Nick Rowan (Johns Hopkins) https://t.co/a8JTZHQs9E

[Cushing's Support & Research Foundation @CSRFnet]

In honor of Cushing's Awareness Day, a patient video from Recordati Rare Diseases. https://t.co/x94FDASbxx

[Cushing's Support & Research Foundation @CSRFnet]

Today is Cushing's Awareness Day! Hug a Cushie, and help us work toward faster diagnosis, better prognosis, and kinder understanding.

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Michelle B https://t.co/m0eXQXoapT

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Kate W https://t.co/omyimgZyFM

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Amanda P https://t.co/OFZdxVRw9z

[Cushing's Support & Research Foundation @CSRFnet]

New post on CSRF: Joanna https://t.co/LUBpKa1PRP