janine culshaw

my biggest fight is with MND. I’m trying to stay well enough until a cure is out there. I would love my voice back.

[janine culshaw @culshawsuperj9]

RIP Rob Burrows. What an amazing man

[janine culshaw @culshawsuperj9]

@mndassoc @BowdonRugby I would love to go. I am a rugby fan but also have been struck by this cruel disease. Raising awareness and funding is necessary.

[janine culshaw @culshawsuperj9]

@alexwardfund @flymylove @mndassoc @MNDAEastKent @mndresearch @MNDoddie5 @MNDPatients @APPGonMND @AlfDubs @mndcampaigns He was far too young. You have a great photo he was a handsome young man. My thoughts are with you. Xx

[Patients United2EndMND @united2endmnd]

We are asking @MNDpatients & supporters to email their MP to ensure the patient voice is heard at @APPGonMND next Weds. Our statement & template message here https://t.co/9z8pEbyMJq Pls read to find out more. @DHSCmedia @NIHRresearch @VictoriaAtkins @BBCBreakfast @joncoates73

[janine culshaw @culshawsuperj9]

Today is the first day my rib pain has slightly eased. Bruised ribs are extremely painful.

[janine culshaw @culshawsuperj9]

@Jaynes__World Rest in peace. You’re smile and attitude made it easier to deal with MND. Xx

[janine culshaw @culshawsuperj9]

@ALSWARRIORSA It is terrifying you just can’t breathe or talk. I can’t talk anymore I just grunt at people. When it happened to me my 21 year old son saved me.

[janine culshaw @culshawsuperj9]

@kevwgs Absolutely

[janine culshaw @culshawsuperj9]

@ALSWARRIORSA I find I grind my teeth. I can’t talk either. MND takes the p

[janine culshaw @culshawsuperj9]

https://t.co/e1DTZLhB89

[janine culshaw @culshawsuperj9]

@StarkeyJennie It’s awful Jennie. I feel MND is still looked upon as a death sentence. This week the District Nurse and a doctor asked about my plans. I reply to stay alive. They wanted me to have a hospital bed. I’m still mobile and my bed is fine. I don’t need personal care.

[janine culshaw @culshawsuperj9]

https://t.co/oAbawq48i9

[Jennie Starkey @StarkeyJennie]

Let’s be like the scouts & BE PREPARED it’s all in the timing & #mndpatients can hear the months ticking by. Please can we get in the blocks ready for the starting pistol? We’ve got a race to win - 1st prize is more time with our loved ones #Proleukin #iltoopharma #mirocals trial

[janine culshaw @culshawsuperj9]

Do one MND

[janine culshaw @culshawsuperj9]

@MinoSean I’m desperation I traveled abroad for stem cell therapy. Not cheap.

[janine culshaw @culshawsuperj9]

@ObispoSouth @limpbroozkit I’ve had seven falls now. Three concussions on the same side and area of my head. It is worrying but I’m very stubborn.

[janine culshaw @culshawsuperj9]

Why won’t ILTOO publish the results?

[janine culshaw @culshawsuperj9]

https://t.co/zpqpH78qc5

[janine culshaw @culshawsuperj9]

#NewProfilePic