CureAHCUK

The aim: facilitate research aimed at treating and ultimately curing Alternating Hemiplegia of Childhood (AHC) THERE IS HOPE

[email protected]

[CureAHCUK @CureAHCUK]

#istandwithNHSstaff

[NHS Million @NHSMillion]

#londonprotest is trending no7 in the UK as NHS staff watch on in utter devastation. If you will stand with NHS staff will you tweet with the hashtag #IstandwithNHSstaff and help us get this trending instead?

Please RT & follow

💙 NHS staff everywhere

[CureAHCUK @CureAHCUK]

@blackwelloxford @blackwellbooks @dolphinsands @thecosyreader @HarvillSecker @PenguinUKBooks Will these only be instore? We are still having to shield with daughter 😊

[Tonia Antoniazzi @ToniaAntoniazzi]

18 months on from a law change, why are sick children and their parents still waiting for access to medical cannabis?

This National Epilepsy week, the government should make good on its promises and allow access to medical cannabis on the NHS.

[Roald Dahl Charity @RoaldDahlFund]

#RoaldDahlNurses & children they support are illuminated on the iconic #PiccadillyLights to mark the launch of our Nurses Appeal ahead of tomorrow's International #NursesDay - Every seriously ill child deserves a Roald Dahl Nurse, please donate: https://t.co/AoNY33h7pE #IDN2020

[Sir Stevo Timothy @SirStevoTimothy]

Please please RT 😊
Hi all. I'm doing a charity cycle for the Irish Wheelchair Association in memory of my mother and to raise some vital funds for all the good work they do. I use a wheelchair and crutches to walk so this will be a challenge!

GoFundMe: https://t.co/L1Y1Ud25Zi

[Lauren🌻 @laurennwillis09]

He’s been found. Thanks everyone

[CureAHCUK @CureAHCUK]

@Nancywaddell18 Cureahcukmummy

[Pistachios Greenwich @cafepleasaunce]

Our friend has a week left to live, I have organised a wedding for today at 12.30 at Guys hospital. The bridesmaids dresses failed to arrive. Can anyone help?

[CureAHCUK @CureAHCUK]

https://t.co/6PD1pZucv1

[NHS Million @NHSMillion]

If everyone who has ever been grateful for the NHS followed and retweeted we would reach a million by Monday

[Kay~Kay @kayleighwallsy]

#archieschoice please share! #Downsyndrome #DisabilityRights Archie deserves better then to be treated the way he his!!!!!!

[CureAHCUK @CureAHCUK]

https://t.co/zbd8l7qjcX

[The Teacher Book Awards @book_awards]

The details and outline of our new book awards. Please share far and wide. We want to promote quality literature and recognise those making a big impact in our classrooms. https://t.co/sczWN6h1P7

[Cascade Dafo @cascadedafo]

Learn about Carmel's diagnosis of Alternating Hemiplegia of Childhood and her family's journey as they navigate the twists and turns of this rare condition. https://t.co/F4FnO1iX6M via @YouTube

[College of Charleston @CofC]

Inspired by his daughter's diagnosis of Alternating Hemiplegia of Childhood, Computer Science professor Brent Munsell decided to take action. https://t.co/groPJAWYR0

[Epilepsy Action @epilepsyaction]

Frisium (clobazam) tablets are out of stock in the UK. Sanofi expects to have more stock available to send to wholesalers in the week beginning 6 August 2018. More information here - https://t.co/KCGXs62gSH

[CreatedbyParents @CbyP_HFHC]

Supermarket shopping can be overwhelming – @Morrisons the supermarket chain has introduced a weekly ‘quieter hour’. Learn more: https://t.co/4umr2Ep11J #autismfriendly #quieterhour #autism #morrisons #learningdisability

[CureAHCUK @CureAHCUK]

FYI for anyone who has epilepsy or other medical conditions that are affected by flashing / strobe lights.

[IHMF @IHMFtweets]

Epilepsy as part of the phenotype associated with ATP1A2 mutations https://t.co/SwtdqBXO09

[IHMF @IHMFtweets]

“Alternating hemiplegia of childhood is a neurological condition characterized by recurrent episodes of temporary... https://t.co/qmtI8FnmsI