CureCHM

The Choroideremia Research Foundation supports research, education, and advocacy regarding CHM, a hereditary retinal-degenerative disease that causes blindness.

[CureCHM @curechm]

Register to join us on June 23 from 9:00–10:15 AM ET for the New Developments in RPE Cell Replacement webinar with Dr. Jogin Desai, Founder and CEO of EyeStem.

https://t.co/sT2Vsb854y

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The Choroideremia Research Foundation (CRF) is now accepting applications for its upcoming research grant cycle, with submissions due June 30, 2026.

https://t.co/DPhCgqJbNY

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Congratulations to Tim Galvin, a member of the CHM community, on being named a winner of the 2025/2026 CARTA Image Competition!

https://t.co/KkAdifCtLJ

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CRF’s UVA Capstone Team completed a year-long CHM research project using Spark trial and NIGHT natural history data (C-Path), building on prior work by Dr. Robert MacLaren. They found microperimetry may better detect progression, especially in younger patients (<40) vs older (>40). These findings support improved trial design through age stratification and more sensitive endpoints.

Team presented at UVA Biomedical Engineering and is preparing a manuscript. Huge thanks to Jack Albert, Ethan Scifres, and Andre Galistinos!
#curechm #Choroideremia #RareDiseaseResearch #ClinicalTrials

[CureCHM @curechm]

First-ever Canada CHM Patient &amp; Family Meeting took place May 9 at the Sandman Signature Toronto Airport Hotel. Co-hosted by CRF and CRFC, it brought together CHM families, researchers, and advocates for connection and learning.

[CureCHM @curechm]

Another meaningful year at the Association for Research in Vision and Ophthalmology (ARVO) meeting in Denver, CO. Grateful for the opportunity to connect with researchers, clinicians, companies, and advocates while raising awareness for choroideremia (CHM). Exciting to see advancements in vision research and technology shaping the future of eye care.

#ARVO2026 #VisionResearch #CHM

[CureCHM @curechm]

Help power the future of CHM research. Your gift goes twice as far with a $50,000 match supporting early-career researchers.

Give today: https://t.co/wUpchq30K6
Select “Peter G. Boone Endowment Fund” in the dropdown.

#Choroideremia #CHM #RareDisease #VisionResearch

[CureCHM @curechm]

New article introduces post-visual diagnosis distress (PVDD)—a term describing the common emotional response (fear, grief, overwhelm) after a vision-threatening diagnosis.
https://t.co/Fc4RLhempt

[CureCHM @curechm]

Charles Bonnet Syndrome (CBS) – Seeing More When Seeing Less
https://t.co/cdE2OmH8zw

[CureCHM @curechm]

For International Guide Dog Day, we’re honoring the trust behind every guide dog partnership. CHMer Jim Coulter shares how that trust isn’t instant—it’s built through challenges, patience, and persistence. What starts as uncertainty becomes something powerful: two beings moving as one. Not perfect—but transformative. It becomes freedom. Read more: https://t.co/r5w8UVTam9

[CureCHM @curechm]

What if making a difference didn’t mean giving more, just spending differently? Skipping one small, unnecessary purchase each week can add up to real impact for families affected by choroideremia. Become a monthly donor of $100 or more and receive a CRF Swag Pack. https://t.co/wWEpIMeDC7

[Penn Medicine CSO @PennMedCSO]

Congratulations to Jean Bennett, Albert Maguire (@ScheieEye) &amp; Katherine High (@ChildrensPhila), recipients of the 2026 @brkthroughprize in Life Sciences in recognition of their pioneering work developing gene therapy for inherited blindness! https://t.co/u5TiwWYU1I

[CureCHM @curechm]

Congratulations to Jean Bennett, MD, PhD, on being named a 2026 Breakthrough Prize laureate in Life Sciences, shared with Katherine A. High and Albert Maguire. Their work led to the first FDA-approved gene therapy for Leber congenital amaurosis, restoring vision and transforming care for inherited blindness.
https://t.co/RIS6ZeQuVR

[CureCHM @curechm]

We are incredibly grateful to our Team CHM runners who participated in the @parismarathon this past Sunday, April 12! #curechm #teamchm #RunForACause

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Rescheduled Date: April 29th. Register HERE: https://t.co/FvY3zqHLiN

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Have you or a loved one experienced visual hallucinations after vision loss? You’re not alone. This important webinar on April 2 (2:30PM EDT | 7:30PM BST) sheds light on Charles Bonnet Syndrome (CBS). Learn why it happens and what can help. Register to join: https://t.co/c3GGGmqpZj

[CureCHM @curechm]

Victorien Faure and Théo Leleu are preparing for their first Paris marathon, for a good cause.

https://t.co/puYvxU2oyZ