Ryan's Challenge

Ryan's Challenge is a nonprofit organization, dedicated to raising awareness and funding research to cure vascular Ehlers-Danlos Syndrome (vEDS).

[Douglas E Wood @DouglasEWood1]

Proud of Dr. Luks and the great health care teams at Harborview Medical Center @harborviewmc @UWMedicine @UWSurgery

[Ryan's Challenge @cureveds]

Ryan’s Challenge learned so much in Albuquerque at the Regional Genetics Network Summit! We can’t wait to bring it all home! @cureveds

[Ryan's Challenge @cureveds]

We’re off to Albuquerque to attend the Genetics Network Summit. We are trying to make a difference in the lives of those who have rare genetic disorders. #cureveds

[Ryan's Challenge @cureveds]

Ryan is having a MRA today at Texas Children’s Hospital and seeing Dr. Shaine Morris, world’s best pediatric vascular doc. Another day in the life of VEDS.

[Ryan's Challenge @cureveds]

Ryan and Kyle got to thank Senator @loiskolkhorst and Representative @RepSenfronia for sponsoring SB 748 yesterday. The bill creates a dedicated savings account for newborn screening.

[Ryan's Challenge @cureveds]

https://t.co/5Jl9cCojju

[Ryan's Challenge @cureveds]

Kyle testifies before the Texas Senate for newborn screening. Please support us by writing your Texas Senate and Representatives!

[Ryan's Challenge @cureveds]

We would like to thank Texas State Senator @loiskolkhorst and her staff and colleagues for championing Senate Bill 748! Newborn screening saves life’s!

[Ryan's Challenge @cureveds]

Kyle Dolliver will testify Tuesday to the Texas Senate about the importance of newborn screening for vEDS!

[Ehlers-Danlos Support UK @ehlersdanlosuk]

We are very saddened to hear of the passing of Kalila Elizabeth on February 28th. Our thoughts are with Kalila's family and friends at this difficult time and we are here to support them 💗 https://t.co/M35U862sZX

#EDS #EhlersDanlosSyndrome

[Ryan's Challenge @cureveds]

@EDS_Today He does take supplements also

[Ryan's Challenge @cureveds]

vEDS sucks! Ryan’s foot looks like a truck ran over it! Fragile vascular systems show up randomly and without warning⚠️

[Ryan's Challenge @cureveds]

@EDS_Today That is a lot for a 35 pound child.

[Ryan's Challenge @cureveds]

@EDS_Today Probably had something to do with the flu last week

[Ryan's Challenge @cureveds]

@TranslucentOne Agreed, no change in shoes and his feet have not grown, he says it doesn’t hurt.

[Ryan's Challenge @cureveds]

Set the date for May 4 for the first annual skeet tournament benefiting Ryan’s Challenge! @cureveds

[Ryan's Challenge @cureveds]

Help us spread awareness by retweeting. https://t.co/YmL8OLMjcN

[Ryan's Challenge @cureveds]

@TAMU welcoming new members to the #Aggies4RyansChallenge.

[Ryan's Challenge @cureveds]

Bearkats for Ryan’s Challenge make back to school cookies!