Clinically Vulnerable Families 💙💜💗

UK Covid-19 Inquiry Core Participant
| Safety | Health | Work | Education | Inclusion |⠀
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Donate: 📸cv_cev 🟦☁️@cvcev.bsky

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

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PLEASE share our message. ♻️
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[Clinically Vulnerable Families 💙💜💗 @cv_cev]

📋SURVEY
Schools offer family holiday, iPads, £100 voucher, and places on GCSE school trips for 100% attendance.

Children with health conditions miss school due to ill health or medical appointments.

1/

Are 100% attendance prizes unfair on kids with health conditions?

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@FirehorseP Gah you are the 4th!

Please screenshot (to show we arent tampering with data) and it will be removed later.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

📋SURVEY
Schools offer family holiday, iPads, £100 voucher, and places on GCSE school trips for 100% attendance.

Children with health conditions miss school due to ill health or medical appointments.

1/

Are 100% attendance prizes unfair on kids with health conditions?

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Apparently 3 people have voted "No" in error.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Please take our 5 mins survey for each of your children (if they existed when your child attended school).

https://t.co/FVMl1ulnGx

2/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@VelvetyPumpkinz Oops, okay that's 3 to remove.

Can you please send a screenshot (so it is clear we aren't manipulating data). Thanks!!!

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@TeemuTagg I wonder why they don't let you change it?

Please send a screenshot (dont want to be seen to be manipulating data) and it can be fixed at the end.

Also pls Retweet! ;)

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@southrunner24 Those are reasonable if they are based on the child's effort. Hard work is vital - and within the child's ability to control, but attendance shouldn't be treated as if it is a choice.

[Deborah Duffin MRSS @DeborahDuffin]

@cv_cev I think it's disgusting for schools to reward 100% attendance. Good health is its own reward & we shouldn't be adding yet another competition to the toxic school environment of petty rules, endless tests & exams. Concentrate on instilling a love of learning & supporting all kids.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@Paul_Briley But if the patient was in an accident that wouldn't work.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

We fully support a single patient record, rather than the harmful and fragmented system we currently have.

But you simply CANNOT have this discussion without addressing Palantir’s access to patient data.

[BBC News (UK) @BBCNews]

NHS single patient record to be debated for first time https://t.co/4dDgt8vM5v

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

We fully support a single patient record, rather than the harmful and fragmented system we currently have.

But you simply CANNOT have this discussion without addressing Palantir’s access to patient data.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Let's hope that earlier identification can eventually lead to prevention of Alzheimers.

[The Lancet @TheLancet]

Blood test can identify signs of Alzheimer’s Disease decades before symptoms, suggests new study in The Lancet.

Find out more: https://t.co/illfiR9tq3

[Sky News @SkyNews]

An injection that eradicated entire tumours in patients with otherwise treatment-resistant cancers in a trial has been praised for its "striking" benefits

https://t.co/e6TBCtJpN6

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@PreetKGillMP Any discussion of a single patient record must include scrutiny of Palantir’s access to patient data.

https://t.co/KVDMdmWh8N

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

We fully support a single patient record, rather than the harmful and fragmented system we currently have.

But you simply CANNOT have this discussion without addressing Palantir’s access to patient data.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@NigelHeal Totally agree!

Especially given our knowledge of high profile data breaches:

https://t.co/fVcYljpsuW

https://t.co/Rx59cMUq6G

[Dr Steve Taylor @DrSteveTaylor]

@BBCNews A summary record, visible across sectors, would be better & have most of that already

And whilst Palantir is anywhere near the NHS it’s a no from me

Patient safety is paramount but so is data security

Why share everything? As a clinician - summaries & tests are needed only!

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

@BBCNews Any discussion of a single patient record must include scrutiny of Palantir’s access to patient data.

https://t.co/KVDMdmWh8N

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

We fully support a single patient record, rather than the harmful and fragmented system we currently have.

But you simply CANNOT have this discussion without addressing Palantir’s access to patient data.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Concerns about NEET rates have put the spotlight back on the "lockdown generation".

Yet one important factor remains largely invisible: experiences of young people in Clinically Vulnerable families differed significantly from their peers.
@TrevorPTweets @ChildrensComm

[Reuters @Reuters]

Brazil investigates suspected Ebola case in Sao Paulo https://t.co/JqjCBVbEbG https://t.co/JqjCBVbEbG