Understanding unmet needs for people with #Telomere Biology Disorders. Updates from @cwilsnack former @NCIEpiTraining post-bacc fellow, current grad student, speaking @TeamTelomereInc family meeting
Thanks board members Jaclyn Schienda, ScM, CGC of @DanaFarber & Catherine Wilsnack, MSW, LMSW for representing us at #IMPAHC the 17th Int'l Meeting on Psychosocial Aspects of Hereditary #Cancer. Cat & Cam Rising @Camunicates presented on #telomere biology disorders #MentalHealth
An outstanding ending to an amazing conference - Cat Wilsnack sharing our Needs Assessment Study on #Telomere Biology Disorders in collaboration w/ @TeamTelomereInc
“Connect as much as you can with other people, both professionals and families, who have faced anything similar…I think that's a huge help, both the knowledge you gain from that and just knowing that you're not the first people to have gone through this.”
Meet our team @theNCI! We’re learning about unique needs of individuals & families living with dyskeratosis congenita and #telomere biology disorders. Share your experiences by participating in our study https://t.co/HZOj0R9MxE. Questions? Contact @Camunicates or @SharonSavageMD.